Data Accountability and Trust Act (DATA) PDF Download
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Author: United States. Congress. House. Committee on Energy and Commerce
Publisher:
ISBN:
Category : Computer networks
Languages : en
Pages : 32
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Book Description
Author: United States. Congress. House. Committee on Energy and Commerce
Publisher:
ISBN:
Category : Computer networks
Languages : en
Pages : 32
Get Book Here
Book Description
Author:
Publisher:
ISBN:
Category : Computer networks
Languages : en
Pages : 32
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Book Description
Author:
Publisher:
ISBN:
Category :
Languages : en
Pages : 24
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Book Description
Author:
Publisher:
ISBN:
Category :
Languages : en
Pages : 30
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Book Description
Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309316324
Category : Medical
Languages : en
Pages : 236
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Book Description
Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.
Author: Federal Trade Commission
Publisher: Createspace Independent Pub
ISBN: 9781508815129
Category : Political Science
Languages : en
Pages : 110
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Book Description
In this report, the Federal Trade Commission discusses the results of an in-depth study of nine data brokers. These data brokers collect personal information about consumers from a wide range of sources and provide it for a variety of purposes, including verifying an individual's identity, marketing products, and detecting fraud. Because these companies generally never interact with consumers, consumers are often unaware of their existence, much less the variety of practices in which they engage. By reporting on the data collection and use practices of these nine data brokers, which represent a cross-section of the industry, this report attempts to shed light on the data broker industry and its practices. For decades, policymakers have expressed concerns about the lack of transparency of companies that buy and sell consumer data without direct consumer interaction. Indeed, the lack of transparency among companies providing consumer data for credit and other eligibility determinations led to the adoption of the Fair Credit Reporting Act ("FCRA"), a statute the Commission has enforced since its enactment in 1970. The FCRA covers the provision of consumer data by consumer reporting agencies where it is used or expected to be used for decisions about credit, employment, insurance, housing, and similar eligibility determinations; it generally does not cover the sale of consumer data for marketing and other purposes. While the Commission has vigorously enforced the FCRA, 1 since the late 1990s it has also been active in examining the practices of data brokers that fall outside the FCRA.
Author: United States. Department of Health, Education, and Welfare. Secretary's Advisory Committee on Automated Personal Data Systems
Publisher:
ISBN:
Category : Business records
Languages : en
Pages : 396
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Author:
Publisher:
ISBN:
Category : Computer security
Languages : en
Pages : 48
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Book Description
Author: United States. General Accounting Office. Office of Information Management and Communications
Publisher:
ISBN:
Category : Information resources management
Languages : en
Pages : 36
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Book Description
Author: Ari Ezra Waldman
Publisher:
ISBN: 1107186005
Category : Computers
Languages : en
Pages : 219
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Book Description
Proposes a new way of thinking about information privacy that leverages law to protect disclosures in contexts of trust.
