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Author: Lola Oni
Publisher:
ISBN: 9780953190270
Category :
Languages : en
Pages : 97
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Book Description
Author: Lola Oni
Publisher:
ISBN: 9780953190270
Category :
Languages : en
Pages : 97
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Book Description
Author: Samir K. Ballas
Publisher: Lippincott Williams & Wilkins
ISBN: 1496331834
Category : Medical
Languages : en
Pages : 1004
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Book Description
Sickle Cell Pain is a panoramic, in-depth exploration of every scientific, human, and social dimension of this cruel disease. This comprehensive, definitive work is unique in that it is the only book devoted to sickle cell pain, as opposed to general aspects of the disease. The 752-page book links sickle cell pain to basic, clinical, and translational research, addressing various aspects of sickle pain from molecular biology to the psychosocial aspects of the disease. Supplemented with patient narratives, case studies, and visual art, Sickle Cell Pain’s scientific rigor extends through its discussion of analgesic pharmacology, including abuse-deterrent formulations. The book also addresses in great detail inequities in access to care, stereotyping and stigmatization of patients, the implications of rapidly evolving models of care, and recent legislation and litigation and their consequences.
Author: Lola Oni
Publisher:
ISBN: 9781838309824
Category : Parents of chronically ill children
Languages : en
Pages : 0
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Book Description
Author: U. S. Department of Health
Publisher: Createspace Independent Publishing Platform
ISBN: 9781495279157
Category : Sickle cell anemia
Languages : en
Pages : 0
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Book Description
#1 Best Seller on Sickle Cell Disease (SCD). Sickle cell disease is a group of blood disorders passed down from parents to children. Sickle cell anemia shortens life expectancy by 30 years via bacterial infections, painful swellings, fever, arthritis, leg ulcers, eye, lung & heart damage. Over 100,000 people, mostly African-Americans, in the United States have sickle cell disease. Over 2 million people have sickle cell trait in America. It is estimated that more than 300,000 children are born each year with SCD around the world. This edition of The Management of Sickle Cell Disease (SCD) is organized into four parts: 1. Diagnosis and Counseling 2. Health Maintenance 3. Treatment of Acute and Chronic Complications 4. Special Topics. The original intent was to incorporate evidence-based medicine into each chapter, but there was variation among evidence-level scales, and some authors felt recommendations could be made, based on accepted practice, without formal trials in this rare disorder. The best evidence still is represented by randomized, controlled trials (RCTs), but variations exist in their design, conduct, endpoints, and analyses. It should be emphasized that selected people enter a trial, and results should apply in practice specifically to populations with the same characteristics as those in the trial. Randomization is used to reduce imbalances between groups, but unexpected factors sometimes may confound analysis or interpretation. In addition, a trial may last only a short period of time, but long-term clinical implications may exist. Another issue is treatment variation, for example, a new pneumococcal vaccine developed after the trial, which has not been tested formally in a sickle cell population. Earlier trial results may be accepted, based on the assumption that the change is small. In some cases, RCTs cannot be done satisfactorily (e.g., for ethical reasons, an insufficient number of patients, or a lack of objective measures for sickle cell "crises"). Thus the bulk of clinical experience in SCD still remains in the moderately strong and weaker categories of evidence. Not everyone has an efficacious outcome in a clinical trial, and the frequency of adverse events, such as with long-term transfusion programs or hematopoietic transplants, might not be considered. Thus, an assessment of benefit-to-risk ratio should enter into translation of evidence levels into practice recommendations. A final issue is that there may be two alternative approaches that are competitive (e.g., transfusions and hydroxyurea). In this case the pros and cons of each course of treatment should be discussed with the patient. This book is B&W copy of the government agency publication.
Author: Clarice D. Reid
Publisher: DIANE Publishing
ISBN: 9780788138539
Category : Genetic disorders
Languages : en
Pages : 128
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Book Description
Serves as a guide for the health care worker involved in the management of patients with sickle cell disease. Represents a collective summary of experiences with therapeutic regimens rather than the by-product of controlled clinical trials. Referred to as the Bible or "cookbook". Covers: child, adolescent and adult health care maint.; patient care coord.; psychosocial mgmt.; newborn screening; infection; painful events; lung; stroke; transfusion; eye; contraception and pregnancy; prenatal diagnosis; gallbladder& liver; leg ulcers; bones and joints; etc.
Author: Robin Caz
Publisher:
ISBN: 9781701611887
Category :
Languages : en
Pages : 108
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Book Description
An Invaluable Resource For Parents Raising A Child With Sickle Cell Disease You spent the last 9 months looking forward to the day you will meet your little one, hold them in your hands, kiss them and introduce them to the rest of the family. So when they was born and you held them in your hands, you were elated. But soon after, you received one of the most painful, disheartening and frightening news; your child has sickle cell disease or probably you may have received the news earlier before they was even born. As a parent, you may blame yourself for this, think that maybe you could have done something differently. You may even think that you are alone and no one seems to understand what you and your family may be going through, and the truth is that many people might not understand what you are going through but you are not alone. Did you know that over 14000 people live with SCD in the UK with 350 babies born each year with the condition in England? When I learned my child had sickle cell disease, I was crushed. It took a while for me to accept the situation and care for him and I have learned a lot throughout the process. My son has grown up and we have learned how he can live a full life even with his condition. I wrote this book to share my experience of having a child with sickle cell disease to create more awareness and for people to learn more about the disease in an easily understandable way. This book provides comprehensive information about sickle cell disease to equip you with all the information you need to take care of your child. Here is what the book covers: A comprehensive understanding of sickle cell disease Common myths about sickle cell disease How to deal with denial, guilt and criticism as a parent Sickle cell disease at different ages The importance of emotional support throughout this journey How your life changes when you have a child with sickle cell disease How best to communicate with the caregivers How best to strengthen the immune system The role of nutrition and exercise in people who have sickle cell disease Experiences of people who have lived with sickle cell disease Among many other things If you are looking for information to help you understand sickle cell disease to equip you with the knowledge to better care for your child..... Click Buy Now With 1-Click or Buy Now to get started!
Author: Yvette LaPierre
Publisher: ABDO
ISBN: 1098215303
Category : Juvenile Nonfiction
Languages : en
Pages : 115
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Book Description
This book explores sickle cell disease and how people with the disease manage it. It examines how sickle cell affects daily life, work, and school, and it explains the latest treatments available. Features include a glossary, web resources, source notes, and an index. Aligned to Common Core Standards and correlated to state standards. Essential Library is an imprint of Abdo Publishing, a division of ABDO.
Author: M D George R Buchanan
Publisher: Createspace Independent Publishing Platform
ISBN: 9781502452788
Category : Sickle cell anemia
Languages : en
Pages : 0
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Book Description
Sickle cell disease can be severe and disabling. When properly treated, patients live longer and with better quality life. This is a US government publication intended to provide evidence-based guidelines for the care of these patients for the use of all concerned providers as well as patients and family members. This book is available in print here for convenience.
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
ISBN: 0309669634
Category : Medical
Languages : en
Pages : 523
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Book Description
Sickle cell disease (SCD) is a genetic condition that affects approximately 100,000 people in the United States and millions more globally. Individuals with SCD endure the psychological and physiological toll of repetitive pain as well as side effects from the pain treatments they undergo. Some adults with SCD report reluctance to use health care services, unless as a last resort, due to the racism and discrimination they face in the health care system. Additionally, many aspects of SCD are inadequately studied, understood, and addressed. Addressing Sickle Cell Disease examines the epidemiology, health outcomes, genetic implications, and societal factors associated with SCD and sickle cell trait (SCT). This report explores the current guidelines and best practices for the care of patients with SCD and recommends priorities for programs, policies, and research. It also discusses limitations and opportunities for developing national SCD patient registries and surveillance systems, barriers in the healthcare sector associated with SCD and SCT, and the role of patient advocacy and community engagement groups.
Author:
Publisher: U.S. Government Printing Office
ISBN:
Category : Medical
Languages : en
Pages : 22
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Book Description
