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Author: Cara A. Chiaraluce
Publisher: Rutgers University Press
ISBN: 1978831927
Category : Psychology
Languages : en
Pages : 90
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Book Description
“The hardest thing is dealing with the rest of the world. And we kind of accommodate our lives around that. But the rest of the world doesn’t.” These poignant words were spoken by Charlotte, a mother and primary caregiver of a five-year-old autistic boy, and her words reference the structural arrangements of our world that shape autism carework today. This book features the voices of fifty primary caregivers of autistic and neurodivergent children who illuminate the process through which laywomen become expert caregivers to provide the best care for their children. Expert caregiving captures an intensification of traditional family carework – meeting dependents’ financial, emotional, and physical needs – that transcends the walls of one’s private home and family and challenges the strict boundaries between many worlds: lay and professional, family and work, private and public, medical and social, and individual and society. The process of becoming an expert caregiver spotlights several interesting paradoxes in sociological literature, particularly regarding gender, family, and medicalization, and often forgotten structural flaws in “the rest of the world.” Throughout the chapters in this book, the expert caregiver is one person who faces unbelievably daunting tasks of filling or reforming persistent institutional gaps, primarily in education and health care, and subverting ableist cultural norms. Without institutional support, answers to their questions, or pragmatic avenues to access resources, lay caregivers become the experts. Their trials and tribulations, especially when navigating the boundaries of professional/lay and private/public worlds, illuminate a type of carework that is increasingly relevant to a growing number of young families caring for neurodivergent, disabled, medically fragile, and/or chronically ill children. These stories offer a vivid picture of the often invisible complex challenges and structural forces that drive individuals to become expert caregivers in the first place.
Author: Cara A. Chiaraluce
Publisher: Rutgers University Press
ISBN: 1978831927
Category : Psychology
Languages : en
Pages : 90
Get Book Here
Book Description
“The hardest thing is dealing with the rest of the world. And we kind of accommodate our lives around that. But the rest of the world doesn’t.” These poignant words were spoken by Charlotte, a mother and primary caregiver of a five-year-old autistic boy, and her words reference the structural arrangements of our world that shape autism carework today. This book features the voices of fifty primary caregivers of autistic and neurodivergent children who illuminate the process through which laywomen become expert caregivers to provide the best care for their children. Expert caregiving captures an intensification of traditional family carework – meeting dependents’ financial, emotional, and physical needs – that transcends the walls of one’s private home and family and challenges the strict boundaries between many worlds: lay and professional, family and work, private and public, medical and social, and individual and society. The process of becoming an expert caregiver spotlights several interesting paradoxes in sociological literature, particularly regarding gender, family, and medicalization, and often forgotten structural flaws in “the rest of the world.” Throughout the chapters in this book, the expert caregiver is one person who faces unbelievably daunting tasks of filling or reforming persistent institutional gaps, primarily in education and health care, and subverting ableist cultural norms. Without institutional support, answers to their questions, or pragmatic avenues to access resources, lay caregivers become the experts. Their trials and tribulations, especially when navigating the boundaries of professional/lay and private/public worlds, illuminate a type of carework that is increasingly relevant to a growing number of young families caring for neurodivergent, disabled, medically fragile, and/or chronically ill children. These stories offer a vivid picture of the often invisible complex challenges and structural forces that drive individuals to become expert caregivers in the first place.
Author: Peter W. Rosenberger
Publisher: Morgan James Publishing
ISBN: 1642790028
Category : Health & Fitness
Languages : en
Pages : 62
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Book Description
This guide identifies the ideas and actions that can harm both caregivers and their loved one—from the author of Hope for the Caregiver. A caregiver’s journey often contains beliefs and behaviors that act like emotional landmines and can cause serious damage. Avoiding these landmines, while finding a path to safety, requires caregivers to hear from someone with experience they can trust. Author and radio host Peter Rosenberger draws upon three decades of caring for his wife through a medical nightmare to discuss seven caregiver landmines that wreak havoc in a caregiver’s life. Helping them navigate to a place of safety, 7 Caregiver Landmines equips fellow caregivers to live a healthier, calmer, and even more joyful life—because “healthy caregivers make better caregivers!” Praise for Peter Rosenberger and Hope for the Caregiver “With tenacity, tenderness, and humor Peter Rosenberger brings hope to those who find themselves in the overwhelming and sometimes lonely role of caregiver.” —Amy Grant, Grammy Award–winning singer/songwriter, author and actress “In a world hung up on trying to make sense out of hard times, Peter drives the point home that ‘we don’t have to understand—God understands, and that’s enough.’ This is THE book for caregivers, written by one with scars and immense credibility.” —Jeff Foxworthy, comedian, author, television host “Peter Rosenberger was the keynote speaker at the NYS Caregiving & Respite Coalition™’s annual conference. Through humor, he gave practical advice to caregivers living the care partnering experience. More importantly, he brought hope to professionals and family caregivers who deal with the struggles of caregiving day in and out.” —Ann Marie Cook, President/CEO of Lifespan
Author: Pamela D. Wilson
Publisher:
ISBN: 9781630475352
Category : Family & Relationships
Languages : en
Pages : 0
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Book Description
"The Caregiving Trap" combines the authentic life and professional experience of Pamela D. Wilson, who provides recommendations for overwhelmed and frustrated caregivers who themselves may one day need care. "The Caregiving Trap" includes stories about Pamela's actual personal and professional experience along with end of chapter exercises to support caregivers. Common caregiving issues include: A sense of duty and obligation to provide care that damages family relationships Emotional and financial challenges resulting in denial of care needs Ignorance of predictive events that result in situations of crises or harm Delayed decision making and lack of planning resulting in limited choices Minimum standards of care supporting the need for advocacy
Author: Robert L. Kane Dr.
Publisher: Penguin
ISBN: 1101478896
Category : Family & Relationships
Languages : en
Pages : 343
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Book Description
A survival guide with an insider's perspective, for the millions of unprepared caregivers of aging loved ones. As Americans are living longer, an unprecedented number of people now require long-term care during their last years. More than 15 million adult children now care for their elderly parents, and unsuspecting caregivers are usually unprepared financially, emotionally, and practically for the relentless job they will face. In The Good Caregiver, world-renowned expert on aging and long- term care Dr.Robert Kane provides a road map for caregiving. More than just a professional expert, Dr. Kane draws on his personal experience of caring for his aging mother after she struggled from a debilitating stroke. Dr. Kane offers heartfelt advice for those learning how to best care for their loved one and how to make thoughtful, informed decisions at each stage of the caring process: ? How does a nursing home differ from assisted living? ? How is a homemaker different from a home health aide? ? How far can you trust a hospital discharge planner? ? What services does Medicare cover, and much, much more The Good Caregiver equips readers to deal more effectively with the challenges of day-to-day care and to navigate the system itself, including legal, financial, and interpersonal hurdles. Filled with stories and sidebars from other caregivers, The Good Caregiver offers a candid, personal approach to caregiving, providing fearless answers to difficult scenarios with humor and encouragement.
Author: Edward M. Smink
Publisher: Wise Media Group
ISBN: 9781629672243
Category : Medical
Languages : en
Pages : 228
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Book Description
2022 Revised Edition Who are the caregivers? We all are, for at the heart of being human is the capacity to care, to reach out to others and explore the relationships we build. The Soul of Caregiving is about us, and how we, as caregivers, serve, even sacrifice, for those in need. I invite you to explore with me how we can partake in a kind of sacred journey exploring our experiences as caregivers. Who will be your guide on this journey? Unlike other pilgrims who have a guide assigned to them, you will soon discover it is your own Soul guiding you. We may be professionally skilled to meet the needs of others, but we must also learn to stop and rest. It is not a waste of time, but rather, a necessity. We need time to ponder, reflect, and grow from our experiences. Not an easy endeavor amid a whirlwind of activity. We, as caregivers, experience vulnerability, helplessness, fears, and pain over the traumatic events we experience because we care. We care about those whom we are called to serve. Compassion fatigue arises because we care. Overview of the Chapters Chapter 1 begins by outlying the tension most caregivers experience: the tension their own needs and the needs of those they care for. I call this tension the Dance of Caregiving. Chapter 2 discusses the importance of discovering interior strengths and values where one discovers Soul. Chapter 3 emphasizes caregivers do not care in a vacuum, as there are broad cultural boundaries and expectations which affect them and shape their behaviors. Chapter 4 describes The Archetype of Caregiving, both its strengths and shadow sides. This archetype also relates to several other leadership archetypes, which are also discussed. Chapter 5 discusses hospitality. This chapter positions the caregiver as the host who experiences three different dimensions of hospitality: to host the stranger, to listen to the stories of the guest, and to reflect on their reactions and experiences. Chapter 6 address the frailty of humankind and the notion that we are wounded healers. Chapter 7 addresses the art of reflection as a fundamental skill for caregivers. Chapter 8 argues that the essential actions of a caregiver are spiritual. Chapter 9 explores how the ordinary becomes spiritual as inner strengths and values give birth to meaning, insight, and transformation. Chapter 10 explores compassion fatigue and its two sisters, secondary traumatic stress disorder and burnout. In this chapter, we learn how to recover from compassion fatigue and burnout by building compassion resilience. At the end of each chapter, the reader is invited to ponder and reflect. Your insights are the gold hidden beneath the sands of confusion. Mining these insights will lead to a greater understanding of your strengths and values. The questions at the end of each chapter help facilitate this process.
Author: Kelly Marsh
Publisher: iUniverse
ISBN: 1532002866
Category : Self-Help
Languages : en
Pages : 196
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Book Description
At thirty-six years old, Kelly Marsh was a successful businesswoman with roles at the Cincinnati Museum Center and, most recently, chief marketing officer at Thomas More College. Her husband, thirty-nine-year-old Brad Marsh, was a successful entrepreneur and businessman. In Love Stroke, they tell their story after Kelly suffered a stroke August 30, 2009. This memoir narrates the firsthand, chronological views from both the survivor and the primary caregiver, including their life before, the day everything changed, and the first two years of recovery. Kelly and Brad share personal trial-and-error insights from their journey, and they challenge some conventional medical wisdom about what is possible. They also give advice to friends and family on the best way to support their loved one and each other, and they offer useful lessons and resources. Practical and inspirational, the Marshes' story is intended to assist all traumatic brain injury survivors and caregivers, but particularly younger survivors and caregivers as they shape their own destinies in recovery. This book, written by both a young stroke survivor and her husband/caregiver (the roles are not separate), is filled with some great advice for stroke survivors and their loved ones. Despite having taken a full history of Kelly's stroke, and seeing her in clinic on many occasions, I still did not know many parts of her story, and certainly did not know her inner thoughts and emotions. I was fascinated to hear the details from both perspectives, but especially from Kelly and in her own words. Brett M. Kissela, MD, MS, Albert Barnes Voorheis professor and chair, Department of Neurology and Rehabilitation Medicine, University of Cincinnati
Author: Sherri Snelling
Publisher: BalboaPress
ISBN: 1452559147
Category : Family & Relationships
Languages : en
Pages : 550
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Book Description
What caregiving role will you play? How will you avoid the caregiving cost drain? Are you prepared for the end? How will you overcome stress, burn-out, depression, guilt? How will you find happiness and support? How do you start the caregiving conversation with a loved one? Are you caring for yourself while caregiving? More than 65 million Americans are caring for a loved one yet most dont know what they are facing or where to get help. Caregiving expert Sherri Snelling shines a spotlight on the world of caregiving and interviews celebrities who have taken the caregiving journey and shared their lessons learned. This how-to guide also covers caregiving topics A to Z, self-care advice and more. Inside you will find numerous expert interviews and tips on how to have the C-A-R-E Conversation and how to find your Me Time Monday. Written to inspire and empower you, this is your screenplay for health and happiness while caregiving. As Dorothy said in The Wizard of Oz, Toto, I have a feeling were not in Kansas anymore. Welcome to the Cast of Caregivers.
Author: Peter Rosenberger
Publisher: Hachette UK
ISBN: 161795750X
Category : Religion
Languages : en
Pages : 202
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Book Description
There are 65.7 million caregivers in America, making up 29 percent of the U.S. adult population. Where does the caregiver turn when dealing with their own need for encouragement and renewal?
Author: Kari Berit
Publisher:
ISBN: 9781578616060
Category : Adult children of aging parents
Languages : en
Pages : 0
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Book Description
This book is aimed at GroupWise System Administrators and those who are in the process of become an Administrator. The book covers the GroupWise basics such as the architecture, design and management of a GroupWise system and also offers information on preventive maintenance and troubleshooting. For experienced administrators this book offers a complete overview of what's new in GroupWise version 8. The author has over 15 years of experience in working with GroupWise systems and therefor is able to offer valuable tips that will be useful for day to day operations and in troubleshooting problems. In addition, the book provides an overview of Teaming + Conferencing, and its integration into GroupWise.
Author: Linda Abbit
Publisher: Simon and Schuster
ISBN: 1440597731
Category : Family & Relationships
Languages : en
Pages : 256
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Book Description
Linda Abbit, founder of Tender Loving Eldercare and a veteran of the caregiving industry, shares her advice on taking care of an older parent or loved one and how to handle everything that goes along with this dramatic life change. Being a caregiver can be a difficult role. It requires patience, tenderness, selflessness, and hard work. Providing care for someone, whether it’s a parent, a loved one, or as a professional requires a high level of self-love and self-care. But while it may be a rewarding experience to care for a loved one, the emotional and physical stress of caregiving can lead to burnout and exhaustion—causing caregivers to put themselves and their own well-being in the background. How can you fulfill your role as a caregiver without losing yourself? Conscious Caregiver teaches you how to navigate caring for your loved one, whether it’s full-time in-house caregiving or hiring support from outside services. With information on how to talk to your loved ones about the situation, handle the emotional stress, stay financially secure, and take the time to care for yourself, this guide can help you care for your loved one and yourself at the same time.
