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Author: Chris Benyo
Publisher: Christian Faith Publishing, Inc.
ISBN: 1640284028
Category : Religion
Languages : en
Pages : 120
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Book Description
"You have ALS. There is no cure or known treatment plan. This is a fatal disease. Life expectancy is two to five years. I'm sorry." These words were spoken to us in a dimly lit doctor's office on December 9, 2010, less than six months after we married. A choice needed to be made at that moment. Die with ALS or Live with ALS and be All In. By the grace of God and Denise's amazing faith we chose to live not die with ALS. This is a story of love, of survival, and running, the sport that united us and enables me to keep the memory of Denise alive. There is a lot to her empty chair as you will discover in these pages. Be inspired by my wife and know our God is with us always.
Author: Chris Benyo
Publisher: Christian Faith Publishing, Inc.
ISBN: 1640284028
Category : Religion
Languages : en
Pages : 120
Get Book Here
Book Description
"You have ALS. There is no cure or known treatment plan. This is a fatal disease. Life expectancy is two to five years. I'm sorry." These words were spoken to us in a dimly lit doctor's office on December 9, 2010, less than six months after we married. A choice needed to be made at that moment. Die with ALS or Live with ALS and be All In. By the grace of God and Denise's amazing faith we chose to live not die with ALS. This is a story of love, of survival, and running, the sport that united us and enables me to keep the memory of Denise alive. There is a lot to her empty chair as you will discover in these pages. Be inspired by my wife and know our God is with us always.
Author: Bruce H. Kramer
Publisher: U of Minnesota Press
ISBN: 1452945195
Category : Health & Fitness
Languages : en
Pages : 215
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Book Description
Nautilus Book Awards — Silver Award Winner 2010 had been a very good year for Bruce H. Kramer. But what began as a floppy foot and leg weakness led to a shattering diagnosis: he had amyotrophic lateral sclerosis. ALS is a cruel, unrelenting neurodegenerative disease in which the body’s muscles slowly weaken, including those used to move, swallow, talk, and ultimately breathe. There is no cure: ALS is a death sentence. When death is a constant companion, sitting too closely beside you at the dinner table, coloring your thoughts and feelings and words, your outlook on life is utterly transformed. The perspective and insights offered in We Know How This Ends reveal this daily reality and inspire a way forward for anyone who has suffered major loss and for anyone who surely will. Rather than wallowing in sadness and bitterness, anger and denial, Kramer accepted the crushing diagnosis. The educator and musician recognized that if he wanted a meaningful life, then embracing his imminent death was his only viable option. His decision was the foundation for profound, personal reflection and growth, even as his body weakened, and inspired him to share the lessons he was learning from ALS about how to live as fully as possible, even in the midst of devastating grief. At the time Kramer was diagnosed, broadcast journalist Cathy Wurzer was struggling with her own losses, especially her father’s slow descent into the bewildering world of dementia. Mutual friends put this unlikely pair—journalist and educator—together, and the serendipitous result has been a series of remarkable broadcast conversations, a deep friendship, and now this book. Written with wisdom, genuine humor, and down-to-earth observations, We Know How This Ends is far more than a memoir. It is a dignified, courageous, and unflinching look at how acceptance of loss and inevitable death can lead us all to a more meaningful and fulfilling life.
Author: Bret Witter
Publisher: Hachette UK
ISBN: 1444762214
Category : Biography & Autobiography
Languages : en
Pages : 346
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Book Description
THE NEW YORK TIMES BESTSELLER What would you do with one last year? Susan Spencer-Wendel was determined to laugh instead of cry. In June 2011, Susan Spencer-Wendel learned she had amyotrophic lateral sclerosis (ALS) - Lou Gehrig's disease - an irreversible condition that systematically destroys the nerves that power the muscles. She was 44-years-old, with three young children, and she had only one year of health remaining. She decided to live that year with joy. She left her job as a journalist and spent time with her family. She built a meeting place for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She went to the beach with her sons and to Kleinfeld's bridal shop in New York City with her teenage daughter, Marina, for a glimpse of the wedding she would never attend. She also wrote this book. No longer able to walk or even lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working. And yet Until I Say Good-Bye is not angry or bitter. It is sad in parts - how could it not be? - but it is filled with Susan's optimism, joie de vivre and sens of humour. It is a book that, like Susan, will make everyone smile. From a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is Susan Spencer-Wendel's unforgettable gift to her loved ones and to us: a record of their final experiences together and a reminder that every day is better when it is lived with joy.
Author: Lisa Genova
Publisher: Simon and Schuster
ISBN: 1476717826
Category : Fiction
Languages : en
Pages : 336
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Book Description
“Unsparing in her depiction of the disease’s harrowing effects, neuroscientist Genova also celebrates humanity.” —People “Sometimes it’s easier to tell truth in fiction…And she tells it with heart and hope.” —NPR “Her juxtaposition of scientific detail with compassionate, heartfelt storytelling is unparalleled.” —Bookreporter “Every Note Played will grip and gut you.” —The Boston Globe From neuroscientist and New York Times bestselling author of Still Alice comes a powerful exploration of regret, forgiveness, freedom, and what it means to be alive. An accomplished concert pianist, Richard received standing ovations from audiences all over the world in awe of his rare combination of emotional resonance and flawless technique. Every finger of his hands was a finely calibrated instrument, dancing across the keys and striking each note with exacting precision. That was eight months ago. Richard now has ALS, and his entire right arm is paralyzed. His fingers are impotent, still, devoid of possibility. The loss of his hand feels like a death, a loss of true love, a divorce—his divorce. He knows his left arm will go next. Three years ago, Karina removed their framed wedding picture from the living room wall and hung a mirror there instead. But she still hasn’t moved on. Karina is paralyzed by excuses and fear, stuck in an unfulfilling life as a piano teacher, afraid to pursue the path she abandoned as a young woman, blaming Richard and their failed marriage for all of it. When Richard becomes increasingly paralyzed and is no longer able to live on his own, Karina becomes his reluctant caretaker. As Richard’s muscles, voice, and breath fade, both he and Karina try to reconcile their past before it’s too late. Poignant and powerful, Every Note Played is a masterful exploration of redemption and what it means to find peace inside of forgiveness.
Author: Ady Barkan
Publisher: Simon and Schuster
ISBN: 1982111569
Category : Biography & Autobiography
Languages : en
Pages : 304
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Book Description
In this “gripping story of resistance and the triumph of human will” (Senator Elizabeth Warren), activist and subject of the documentary Not Going Quietly Ady Barkan explores his life with ALS and how his diagnosis gave him a profound new understanding of his commitment to social justice for all. Ady Barkan loved taking afternoon runs on the California coast and holding his newborn son, Carl. But one day, he noticed a troubling weakness in his hand. At first, he brushed it off as carpal tunnel syndrome, but after a week of neurological exams and two MRIs, he learned the cause of the problem: amyotrophic lateral sclerosis, better known as ALS or Lou Gehrig’s disease. At age thirty-two, Ady was given just three to four years to live. Yet despite the devastating diagnosis, he refused to let his remaining days go to waste. Eyes to the Wind is a rousing memoir featuring intertwining storylines about determination, perseverance, and how to live a life filled with purpose and intention. The first traces Ady’s battle with ALS: how he turned the initial shock and panic from his diagnosis into a renewed commitment to social justice—not despite his disability but because of it. The second, told in flashbacks, illustrates Ady’s journey from a goofy political nerd to a prominent figure in the enduring fight for equity and justice whose “selfless activism fighting to make health care a right should be an inspiration to us all” (Senator Bernie Sanders). From one of the most vocal advocates for social justice, Eyes to the Wind’s “primary question is existential: how to live when you are dying? Barkan’s answer is to share, open up, act, and capital-R Resist, and his memoir, clearly and candidly written, establishes a legacy” (Booklist).
Author: Ulla-Carin Lindquist
Publisher: Penguin
ISBN: 1440678634
Category : Biography & Autobiography
Languages : en
Pages : 118
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Book Description
Ulla-Carin Lindquist was happily married, with four adoring children and a successful career as a newscaster. All of that changed when her fiftieth birthday drew near, and she was diagnosed with ALS, also known as Lou Gehrig’s disease. In the face of this incurable, degenerative disease, Ulla kept a journal chronicling the last years of her life, not only for her children’s sake but also to help her cope with her impending death. As powerful and moving as books such as The Diving Bell and the Butterfly and Tuesdays with Morrie, Ulla’s unflinching account is an unforgettable reminder of how precious life really is.
Author: David Feldman
Publisher: New Harbinger Publications
ISBN: 1608824985
Category : Self-Help
Languages : en
Pages : 202
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Book Description
This book address both the emotional and psychological issues associated with death and dying and the practical and medical realities typically dealt with at this time-unusual among titles in this subject area. The authors, a psychologist and medical doctor, are passionate advocates for quality end-of-life care. Author Feldman's background in positive psychology brings an emphasis on hope, inspiration, meaning, and human connection at the end of life to the book. As medical technology progresses and life expectancies edge upward, families are being faced with ever-more-complicated choices as loved ones approach their final hours. This book offers readers much-needed guidance and support for making these often difficult decisions.
Author: John R. Paine
Publisher: Nelson Books
ISBN: 9781400210022
Category : Amyotrophic lateral sclerosis
Languages : en
Pages : 224
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Book Description
How do you experience God's intimate, comforting, tangible presence? In The Luckiest Man, John Paine reveals how he found the answer to this most important of all questions--by facing a terminal diagnosis. At middle age, John Paine thought he knew what it meant to have a relationship with God. He was a successful businessman, a well-respected Christian leader, a Bible teacher, and--outwardly, at least--the spiritual leader of his family. He was satisfied and thought he understood what it meant to know and experience God. But did he? John's journey into true, mystical intimacy with God began when a neurologist diagnosed him with ALS, or Lou Gehrig's disease, and said, "Go home and get your affairs in order." Seventeen years later, John tells his story, recounting the ways God intervened in his life, freeing him from all that prevented intimacy with God, even as John slipped into pain, paralysis, and further toward death. In stunning, insightful prose, The Luckiest Man points to the God who lovingly, though occasionally painfully, drew John into the richness of friendship. In this profoundly moving memoir, John Paine reveals the secret to intimacy with God and provides hope to all who are in the middle of their own trials. They, too, will understand why John considers himself the "luckiest man."
Author: Sam Shepard
Publisher: Vintage
ISBN: 0525521577
Category : Fiction
Languages : en
Pages : 97
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Book Description
The final work from the Pulitzer Prize–winning writer, actor, and musician, drawn from his transformative last days In searing, beautiful prose, Sam Shepard’s extraordinary narrative leaps off the page with its immediacy and power. It tells in a brilliant braid of voices the story of an unnamed narrator who traces, before our rapt eyes, his memories of work, adventure, and travel as he undergoes medical tests and treatments for a condition that is rendering him more and more dependent on the loved ones who are caring for him. The narrator’s memories and preoccupations often echo those of our current moment—for here are stories of immigration and community, inclusion and exclusion, suspicion and trust. But at the book’s core, and his, is family—his relationships with those he loved, and with the natural world around him. Vivid, haunting, and deeply moving, Spy of the First Person takes us from the sculpted gardens of a renowned clinic in Arizona to the blue waters surrounding Alcatraz, from a New Mexico border town to a condemned building on New York City’s Avenue C. It is an unflinching expression of the vulnerabilities that make us human—and an unbound celebration of family and life.
Author: David Oliver
Publisher: OUP Oxford
ISBN: 0191509507
Category : Medical
Languages : en
Pages : 353
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Book Description
Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a progressive neurodegenerative disease that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families. Case studies are used to emphasise the complexity of the care needs and involvement of the patient and family, culminating in discussion of bereavement. Different models of care are explored, and this new edition utilizes the increase in both the evidence-base and available literature on the subject. New topics discussed include complementary therapies, personal and family experiences of ALS, new genetics research, and updated guidelines for patient care, to ensure this new edition remains the essential guide to palliative care in ALS.
