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Author: Committee on Care at the End of Life
Publisher: National Academies Press
ISBN: 0309518253
Category : Medical
Languages : en
Pages : 457
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Book Description
When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."
Author: Committee on Care at the End of Life
Publisher: National Academies Press
ISBN: 0309518253
Category : Medical
Languages : en
Pages : 457
Get Book
Book Description
When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."
Author: Nathan I. Cherny
Publisher: Oxford University Press, USA
ISBN: 0199656096
Category : Medical
Languages : en
Pages : 1281
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Book Description
Emphasising the multi-disciplinary nature of palliative care the fourth edition of this text also looks at the individual professional roles that contribute to the best-quality palliative care.
Author: Rabbi Julia Neuberger
Publisher: CRC Press
ISBN: 1315358417
Category : Medical
Languages : en
Pages : 160
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Book Description
This book explores the Care Trust concept promoted by central government for improving partnership working between health and social care. Using case studies and examples to raise current issues related to partnership working it explains how Care Trusts are bridging the gap between health and social care and considers how they are delivering more co-ordinated services and improved outcomes. All healthcare and social care professionals with responsibility for involved in or affected by the new partnership working arrangements will find this book useful reading.
Author: Chris Palmer
Publisher: Rowman & Littlefield
ISBN: 1475850522
Category : Family & Relationships
Languages : en
Pages : 0
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Book Description
Death is inevitable, dying badly is not. A good death is achievable, and this book explains how. There is an art to dying well that can be taught and learned. While death is inevitable, dying badly is not. This practical guide to achieving a good death will reduce the fear that often cloaks discussions about death and dying and give readers the knowledge and skills to achieve a peaceful and gentle death. With the multiple options available at the end of life, people can design and direct their end-of-life journey so they have as fulfilling and meaningful life as possible right up to the end and achieve the elusive good death when the time comes. Chapters focus on essential elements of living well and preparing for a good death including: Death cleaning so we don’t burden our loved ones with a big mess Talking with loved ones and doctors about our end-of-life wishes and aspirations so they know what matters to us and how we want to be treated Writing a legacy letter (an ethical will) and a memoir to let loved ones know what is deep in our hearts. Understanding caregivers, an under-appreciated group of people, usually unpaid women, who number in the millions. The benefits of palliative care, hospice care, and end-of-life doulas and the necessary vigilance to get the most out of these essential services. End-of-life options, including medical-aid-in-dying (MAID) and voluntarily stopping eating and drinking (VSED). What it’s like to die and how to help people as they die. Options for disposition of the body of a loved one (or your own body) after death, especially in an economically and ecologically responsible way Planning commemorations and celebrations of life. The nature of grief, including how to deal with it, and why it is often unbearably painful. This thoughtful and gentle guide, exploring one of the most difficult human topics, equips every reader with the information they need to overcome the anxiety and confusion that so often overwhelms end-of-life planning so they may intentionally plan for “a good death” that will provide comfort for all during one’s final act.
Author: Katy Butler
Publisher: Scribner
ISBN: 1501135473
Category : Self-Help
Languages : en
Pages : 288
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Book Description
This “comforting…thoughtful” (The Washington Post) guide to maintaining a high quality of life—from resilient old age to the first inklings of a serious illness to the final breath—by the New York Times bestselling author of Knocking on Heaven’s Door is a “roadmap to the end that combines medical, practical, and spiritual guidance” (The Boston Globe). “A common sense path to define what a ‘good’ death looks like” (USA TODAY), The Art of Dying Well is about living as well as possible for as long as possible and adapting successfully to change. Packed with extraordinarily helpful insights and inspiring true stories, award-winning journalist Katy Butler shows how to thrive in later life (even when coping with a chronic medical condition), how to get the best from our health system, and how to make your own “good death” more likely. Butler explains how to successfully age in place, why to pick a younger doctor and how to have an honest conversation with them, when not to call 911, and how to make your death a sacred rite of passage rather than a medical event. This handbook of preparations—practical, communal, physical, and spiritual—will help you make the most of your remaining time, be it decades, years, or months. Based on Butler’s experience caring for aging parents, and hundreds of interviews with people who have successfully navigated our fragmented health system and helped their loved ones have good deaths, The Art of Dying Well also draws on the expertise of national leaders in family medicine, palliative care, geriatrics, oncology, and hospice. This “empowering guide clearly outlines the steps necessary to prepare for a beautiful death without fear” (Shelf Awareness).
Author: Paulina Taboada
Publisher: Springer
ISBN: 9401791066
Category : Philosophy
Languages : en
Pages : 190
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Book Description
The book’s main contribution is its interdisciplinary approach to the issue of sedation at the end-of-life. Because it occurs at the end of life, palliative sedation raises a number of important ethical and legal questions, including whether it is a covert form of euthanasia and for what purposes it may legally be used. Many of the book chapters address the first question and almost all deal with a specific form of the second: whether palliative sedation should be used for those experiencing “existential suffering”? This raises the question of what existential suffering is, a topic that is also discussed in the book. The different chapters address these issues from the perspectives of the relevant disciplines: Palliative Medicine, Bioethics, Law and Theology. Hence, helpful accounts of the clinical and historical background for this issue are provided and the importance of drawing accurate ethical and legal distinctions is stressed throughout the whole book. So the volume represents a valuable contribution to the emerging literature on this topic and should be helpful across a broad spectrum of readers: philosophers, theologians and physicians.
Author: Sunita Puri
Publisher: Viking
ISBN: 0735223319
Category : Biography & Autobiography
Languages : en
Pages : 322
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Book Description
"A ... memoir about how the essential parts of one young woman's early life--her mother's work as a surgeon and her spiritual practice--led her to become a doctor and to question the premise that medicine exists to prolong life at all costs."--
Author: Irwin Epstein
Publisher: Oxford University Press
ISBN: 019533552X
Category : Social Science
Languages : en
Pages : 241
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Book Description
Clinical Data-Mining (CDM) involves the conceptualization, extraction, analysis, and interpretation of available clinical data for practice knowledge-building, clinical decision-making and practitioner reflection. Depending upon the type of data mined, CDM can be qualitative or quantitative; it is generally retrospective, but may be meaningfully combined with original data collection.Any research method that relies on the contents of case records or information systems data inevitably has limitations, but with proper safeguards these can be minimized. Among CDM's strengths however, are that it is unobtrusive, inexpensive, presents little risk to research subjects, and is ethically compatible with practitioner value commitments. When conducted by practitioners, CDM yields conceptual as well as data-driven insight into their own practice- and program-generated questions.This pocket guide, from a seasoned practice-based researcher, covers all the basics of conducting practitioner-initiated CDM studies or CDM doctoral dissertations, drawing extensively on published CDM studies and completed CDM dissertations from multiple social work settings in the United States, Australia, Israel, Hong Kong and the United Kingdom. In addition, it describes consulting principles for researchers interested in forging collaborative university-agency CDM partnerships, making it a practical tool for novice practitioner-researchers and veteran academic-researchers alike.As such, this book is an exceptional guide both for professionals conducting practice-based research as well as for social work faculty seeking an evidence-informed approach to practice-research integration.
Author: Dr. Robert Firestone, PhD
Publisher: Springer Publishing Company
ISBN: 9780826105523
Category : Family & Relationships
Languages : en
Pages : 392
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Book Description
"This book fruitfully serves those looking to apply Ernest Beckerís ideas psychotherapeutically, in individual counseling or in group therapy. A capstone to Robert Firestoneís 50 years of work in psychotherapy, psychoanalysis and psychiatry and to the numerous books written by these authors, Firestone and Catlett show how to apply the themes and implications of the ideas of Ernest Becker in everyday life. Their basic premise is that accepting death is part of developing an affirming and meaningful experience of life. Contributing to the credibility of their presentation is the wealth of clinical evidence and personal experience Firestone and Catlett incorporate." --The Ernest Becker Foundation "[F]ascinating and an enjoyable read....steeped in well researched and relevant psychological and sociological perspectives applicable to all social studies areas..." --Carol Lloyd University of Chichester "Firestone and Catlettís work is a marvelous achievement....This volume is both innovative and intrepid. Firestone and Catlett challenge prevailing psychoanalytic views on death and they demolish many of the accepted canons of thanatology and existential psychology. ...This is required reading for anyone who purports to talk about death." -- Jerry Piven, PhD Author of Death and Delusion: A Freudian Analysis of Mortal Terror "[A] towering synthesis of personal and clinical wisdom about death....with a superb overview of the psychology of death and death anxiety....Dr. Firestone draws on the best of the existential-humanistic as well as the psychoanalytic thinkers to address a flourishing path toward self-realization." -Kirk J. Schneider, PhD Author, Existential-Integrative Psychotherapy and Awakening to Awe (From the Foreword) Firestone and Catlett's groundbreaking volume assists mental health practitioners in helping their clients learn to accept and face their mortality. They describe the many defenses of death anxiety that keep individuals from achieving personal fulfillment, and also suggest methods to cope directly with fears of death; an approach that, ironically, can lead to more satisfaction, more freedom, and a greater appreciation for the gift of life. This book examines the many destructive consequences of death anxiety, including introversion, depression, and withdrawal from life. Throughout the book, the authors demonstrate the importance of achieving what they call life-affirming death awareness. Key topics include: The dawning awareness of death and its impact on the developing child Literal and symbolic defenses against death anxiety Separation theory and "the fantasy bond" Challenging the defenses that interfere with living fully Microsuicide: the death of the spirit Breaking with limiting religious dogma and cultural worldviews With this book, mental health practitioners and their clients will be able to better understand death awareness, overcome the defenses against death anxiety, and ultimately lead richer, more fulfilling lives.
Author: Lisa Kastbom
Publisher: Linköping University Electronic Press
ISBN: 9179297196
Category : Electronic books
Languages : en
Pages : 83
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Book Description
Previous research has indicated that what constitutes a good death is heterogenic and complex although there are some recurrent themes and similarities regardless individual background factors. Studies on advance care planning (ACP), i.e. making proactive plans regarding content of care and treatment limitations, on nursing home (NH) patients are rare. Positive effects of ACPs are shown, but also that these often are lacking. The overall aim with this thesis was to explore the perceptions of a good death from the perspective of patients with severe illness and to investigate, from different perspectives, experiences of ACP in a NH context. In paper I, patients with cancer in a palliative phase were interviewed on their perceptions of a good death. Death was viewed as a process and previous experiences on the death of others influenced their own perceptions. A good death was associated with living with the prospect of imminent death, preparing oneself and others for one’s death and dying comfortably, e.g. without suffering, with independence and with social relations intact. Some were comforted by their belief that death is predetermined, and that after death, there is something else. Others felt uncomfortable when they viewed death as the end of the existence. In paper II, nurses and physicians were interviewed on their experiences of the factors that shape the ACP process in NHs. Exploration of the patient’s preferences regarding content of care and treatment limitations was important, as well as integration of the patient’s preferences and the views of the family members and staff concerning these questions. ACP documentation had to be clear, updated and available for staff and the implementation and reevaluation of ACP were also considered important, according to the participants. Significance of clinicians’ perceiving beneficence as well as fear of accusations of maleficence were shown to be essential factors to contemplate. In a retrospective chart review (paper III), medical records of 367 deceased NH patients were analysed. A high prevalence of ACP was shown, using two different definitions of ACP (ACP I and ACP II). Moreover, adherence to the ACP content was strong and positive associations were seen between ACP and variables of the three research aims, such as: diagnosis (dementia), physician attendance at NH and end-of-life (EOL) care. In paper IV, family members of deceased NH patients were interviewed on their experiences of ACP in NHs. EOL issues were challenging to talk about, although the family members appreciated staff raising these questions. The patient’s preferences were sometimes explicitly or implicitly communicated. However, in some cases, family members had a feeling of the patient’s preferences, although they had not been clearly communicated. Everyday details symbolised staff commitment. The family members viewed the nurse as central. The physician was described as absent and ACP meetings often went unnoticed. Both involvement and lack of involvement could cause the family members feelings of guilt. In conclusion, we found that what constitutes a good death is highly individual, although recurrent themes are seen. EOL conversations are important and challenging and need staff training and experience. It seems important to support healthcare staff not only to initiate ACP in NH patients, but also to involve the patient and family members in the ACP and planning EOL care. Making proactive plans regarding content of care including treatment limitations, could enable patient autonomy, optimise the chances for the patient to experience a good death and enhance for the family members during the dying trajectory and after the patient’s death.
