Two For Joy - The true story of one family's journey to happiness with severely disabled twins

Two For Joy - The true story of one family's journey to happiness with severely disabled twins PDF Author: James Melville-Ross
Publisher: Kings Road Publishing
ISBN: 1786062011
Category : Biography & Autobiography
Languages : en
Pages : 267

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Book Description
Two for Joy is the heart-warming true story of disabled twins Thomas and Alice, and their desperate fight for life after being born four months prematurely. James Melville-Ross, their father, tells of how the twins not only survived – despite being given the last rites as babies – but also thrived. From the dramatic first few months of the twins' lives – when Alice suffered a heart attack when only a day old, and Thomas's lungs filled with blood, leaving him only twenty minutes away from death – Two for Joy reveals the path that James and his wife Georgie have followed as parents to two severely disabled children. After the initial anger came the sheer hard work: the sleepless nights; the hospital dashes; the curious stares and unwelcome comment from strangers. But slowly came acceptance and, eventually, celebration of the joy that the medical marvels Thomas and Alice – now happy and energetic ten year olds – have brought to their lives. Finally they understood that disability might have turned their world upside down, but that it has also provided rewards beyond anything they could have imagined. This story is for any parent experiencing the shock of having extremely premature babies or coming to terms with having a child diagnosed with a disability. More than that, this story will change people's attitudes to disability, and show that love and true happiness can be found in even the most challenging of circumstances.

Two For Joy - The true story of one family's journey to happiness with severely disabled twins

Two For Joy - The true story of one family's journey to happiness with severely disabled twins PDF Author: James Melville-Ross
Publisher: Kings Road Publishing
ISBN: 1786062011
Category : Biography & Autobiography
Languages : en
Pages : 267

Get Book Here

Book Description
Two for Joy is the heart-warming true story of disabled twins Thomas and Alice, and their desperate fight for life after being born four months prematurely. James Melville-Ross, their father, tells of how the twins not only survived – despite being given the last rites as babies – but also thrived. From the dramatic first few months of the twins' lives – when Alice suffered a heart attack when only a day old, and Thomas's lungs filled with blood, leaving him only twenty minutes away from death – Two for Joy reveals the path that James and his wife Georgie have followed as parents to two severely disabled children. After the initial anger came the sheer hard work: the sleepless nights; the hospital dashes; the curious stares and unwelcome comment from strangers. But slowly came acceptance and, eventually, celebration of the joy that the medical marvels Thomas and Alice – now happy and energetic ten year olds – have brought to their lives. Finally they understood that disability might have turned their world upside down, but that it has also provided rewards beyond anything they could have imagined. This story is for any parent experiencing the shock of having extremely premature babies or coming to terms with having a child diagnosed with a disability. More than that, this story will change people's attitudes to disability, and show that love and true happiness can be found in even the most challenging of circumstances.

Parent's Guide to Coping with Autism

Parent's Guide to Coping with Autism PDF Author: Sarah Ziegel
Publisher: Robert Hale Ltd
ISBN: 0719820480
Category : Family & Relationships
Languages : en
Pages : 165

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Book Description
This is an essential guide for parents and carers coping with children with autism. When Sarah Ziegel's twin boys were diagnosed with autism, aged almost three, she realized that there was very little practical information about what to do. When her next two children were also diagnosed with the condition, she was even more determined to put that lack of information right. This book is the result of Sarah's experiences of dealing with autism in the family. While covering personal aspects such as coping emotionally with a diagnosis, the book also tackles practical matters, such as education and the EHCP process, how to get help and support, and also considers the medical side of autism. Written by a former nurse, and full-time mother and carer, A Parent's Guide to Coping with Autism is a highly sensitive and professional guide and is the book you will want to reach for when faced with a diagnosis, or if you simply want to find out more about the condition.

Two for Joy

Two for Joy PDF Author: James Melville-Ross
Publisher: John Blake
ISBN: 9781786060105
Category : Biography & Autobiography
Languages : en
Pages : 0

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Book Description
Two for Joy is the heart-warming true story of disabled twins Thomas and Alice, and their desperate fight for life after being born four months prematurely. James Melville-Ross, their father, tells of how the twins not only survived--despite being given the last rites as babies--but also thrived. From the dramatic first few months of the twins' lives--when Alice suffered a heart attack when only a day old, and Thomas's lungs filled with blood, leaving him only 20 minutes away from death--Two for Joy reveals the path that James and his wife Georgie have followed as parents to two severely disabled children. After the initial anger came the sheer hard work: the sleepless nights; the hospital dashes; the curious stares and unwelcome comment from strangers. But slowly came acceptance and, eventually, celebration of the joy that the medical marvels Thomas and Alice--now happy and energetic ten year olds--have brought to their lives. Finally they understood that disability might have turned their world upside down, but that it has also provided rewards beyond anything they could have imagined. This story is for any parent experiencing the shock of having extremely premature babies or coming to terms with having a child diagnosed with a disability. More than that, this story will change people's attitudes to disability, and show that love and true happiness can be found in even the most challenging of circumstances.

I Love Jesus, But I Want to Die

I Love Jesus, But I Want to Die PDF Author: Sarah J. Robinson
Publisher: WaterBrook
ISBN: 0593193539
Category : Religion
Languages : en
Pages : 257

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Book Description
A compassionate, shame-free guide for your darkest days “A one-of-a-kind book . . . to read for yourself or give to a struggling friend or loved one without the fear that depression and suicidal thoughts will be minimized, medicalized or over-spiritualized.”—Kay Warren, cofounder of Saddleback Church What happens when loving Jesus doesn’t cure you of depression, anxiety, or suicidal thoughts? You might be crushed by shame over your mental illness, only to be told by well-meaning Christians to “choose joy” and “pray more.” So you beg God to take away the pain, but nothing eases the ache inside. As darkness lingers and color drains from your world, you’re left wondering if God has abandoned you. You just want a way out. But there’s hope. In I Love Jesus, But I Want to Die, Sarah J. Robinson offers a healthy, practical, and shame-free guide for Christians struggling with mental illness. With unflinching honesty, Sarah shares her story of battling depression and fighting to stay alive despite toxic theology that made her afraid to seek help outside the church. Pairing her own story with scriptural insights, mental health research, and simple practices, Sarah helps you reconnect with the God who is present in our deepest anguish and discover that you are worth everything it takes to get better. Beautifully written and full of hard-won wisdom, I Love Jesus, But I Want to Die offers a path toward a rich, hope-filled life in Christ, even when healing doesn’t look like what you expect.

Aching Joy

Aching Joy PDF Author: Jason Hague
Publisher: NavPress
ISBN: 1631469428
Category : Religion
Languages : en
Pages : 184

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Book Description
When his oldest son was diagnosed with severe autism, pastor Jason Hague found himself trapped, stuck between perpetual sadness and a lower, safer kind of hope. This is the common struggle for those of us walking through the Land of Unanswered Prayer. Life doesn’t look the way we expected, so we seek to protect ourselves from further disappointment. But God has a third path for us, beyond sadness or resignation: the way of aching joy. Christ himself is with us here, beckoning us toward the treasures hidden in the darkness. Aching Joy is an honest psalm of hope for those walking between pain and promise: the aching of a broken world and the beauty of a loving God. In this place, rather than trying to dodge the pain, we choose to feel it all—and to see where Jesus is in the midst of struggle. And because we make that choice, we feel all the good that comes with it, too. This is Jason’s story. This is your story. Come, find your joy within the aching.

Chasing Miracles

Chasing Miracles PDF Author: John Crowley
Publisher: Harper Collins
ISBN: 1557049270
Category : Biography & Autobiography
Languages : en
Pages : 142

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Book Description
When John and Aileen Crowley learned that their two youngest children had a rare and little understood genetic disorder, they didn't hope for miracles: they made them happen. In 1998, 15-month-old Megan and 4-month-old Patrick were diagnosed with Pompe disease, a rare and fatal neuromuscular disorder that affects only a few thousand children worldwide, usually leaving them with little to no muscle function, enlarged hearts, and severe difficulty breathing. The Crowleys were told to take their children home and "enjoy their short time together...there is nothing that can be done." Raised in a blue-collar neighborhood in northern New Jersey, John Crowley, a recent Harvard MBA graduate working at Bristol-Myers Squibb, was just beginning to taste success in corporate America. But now he was absolutely determined to find a treatment to save his children's lives. Frustrated with the pace of Pompe research, Crowley walked away from the corporate world at the age of 31 to help co-found a start-up biotech company, focused exclusively on producing a lifesaving medicine. In Chasing Miracles, John Crowley writes from his heart about how he and his wife set out to do "whatever it takes" against phenomenal odds to help Megan and Patrick first to survive, and then to thrive—and to keep their family, including oldest son John Jr., together and their marriage strong. He tells about learning to ask for help, about not losing faith, about coping with adversity, about the generosity and kindness of others, and, most importantly, about what it means to never, never quit. As Aileen Crowley writes in her foreword, "This book is our family's attempt to share much of what we have learned, especially from our children, who have taught us more about life and love than we have ever taught them."

Truevine

Truevine PDF Author: Beth Macy
Publisher: Little, Brown
ISBN: 0316337560
Category : History
Languages : en
Pages : 496

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Book Description
The true story of two African-American brothers who were kidnapped and displayed as circus freaks, and whose mother endured a 28-year struggle to get them back. The year was 1899 and the place a sweltering tobacco farm in the Jim Crow South town of Truevine, Virginia. George and Willie Muse were two little boys born to a sharecropper family. One day a white man offered them a piece of candy, setting off events that would take them around the world and change their lives forever. Captured into the circus, the Muse brothers performed for royalty at Buckingham Palace and headlined over a dozen sold-out shows at New York's Madison Square Garden. They were global superstars in a pre-broadcast era. But the very root of their success was in the color of their skin and in the outrageous caricatures they were forced to assume: supposed cannibals, sheep-headed freaks, even "Ambassadors from Mars." Back home, their mother never accepted that they were "gone" and spent 28 years trying to get them back. Through hundreds of interviews and decades of research, Beth Macy expertly explores a central and difficult question: Where were the brothers better off? On the world stage as stars or in poverty at home? Truevine is a compelling narrative rich in historical detail and rife with implications to race relations today.

Silent Running

Silent Running PDF Author: Robyn K. Schneider
Publisher: Triumph Books
ISBN: 1629370916
Category : Biography & Autobiography
Languages : en
Pages : 265

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Book Description
Running is a way of life for the Schneider family, but for them, it's about much more than fitness and competition. Silent Running: Our Family's Journey to the Finish Line with Autism is the story of how running saved their lives. At 21 months old, identical twin brothers Alex and Jamie were diagnosed with autism. It was 1992, a time when autism was far from a household word, before online autism forums and advocacy groups even existed. Robyn and her husband Allan were heartsick, but determined to find a cure for their sons, and thus their journey into the world of autism began. But soon it was clear that both Alex and Jamie had severe autism and would most likely not be cured. In Silent Running, Robyn Schneider takes readers on an intimate journey from a double diagnosis of autism, through many years of heartache, to a place of joy. Silent Running is a story of unrelenting love, of parents who never stop chasing after the silver lining, intent on finding happiness for their sons. And find happiness they do—in running. In Schneider's moving memoir, readers see Alex and Jamie transformed through running, their lives enriched. And eventually they reach a place where running, rather than autism, defines them. Along the journey, both Robyn and Allan face their own personal challenges. Allan begins running to help manage his symptoms of multiple sclerosis, and Robyn, while undergoing chemotherapy for breast cancer, laces up her own running shoes, determined to run her way to recovery—for her family and for herself. And she hasn't stopped. Despite their incredible daily challenges, Alex and Jamie have now run in almost 150 mainstream races, including nine marathons. And Robyn and Allan have been right there, either cheering for or running alongside their sons. In Silent Running, Robyn Schneider shares her family's remarkable story of triumph in the face of enormous hurdles, and the passion that has fueled their fight. It is an extraordinary and ins

My Picture Perfect Family

My Picture Perfect Family PDF Author: Marguerite Elisofon
Publisher:
ISBN: 9781938595042
Category :
Languages : en
Pages : 294

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Book Description
On December 26th, 1990 Marguerite Elisofon gave birth to premature twins: Samantha and Matthew. Marguerite and her husband soon noticed their daughter lagged behind her brother in ways that scared them. Samantha, they learned, was on the autistic spectrum. Most "experts" weren't optimistic about her chances for leading a normal life and prepared the Elisofons for the worst. But Marguerite and her family refused to accept these limitations. Twenty-three challenging years later, Samantha graduated from Pace University . . . cum laude! In My Picture Perfect Family, Marguerite tells her family's courageous story. At the end of the twentieth century, when the current supports for children on the autistic spectrum did not exist, Marguerite and her family pioneered their own path. They encountered "special" schools with questionable methods, naysayers telling them to lower their expectations, as well as their own worst fears of what Samantha --and their family--might become. But nothing could shake Marguerite's determination to hold her family together, and nothing could deter Samantha's tremendous persistence, boundless energy and drive to succeed. Addressing not only her disabilities but also her talents, the Elisofons discovered Samantha was a lyrical soprano with perfect pitch. They encouraged Samantha to take singing lessons at age ten, and she gradually developed a strong enough voice to perform the national anthem at Pace University's 2014 freshman convocation. When you hear about autism, it's often the extreme cases. But the vast majority of individuals lie somewhere in the middle of the spectrum. Marguerite's memoir is an inspiring account of how an "ordinary" family faced the challenges of raising a child with disabilities and achieved extraordinary results. My Picture Perfect Family is a universal story about the struggles and successes of a family determined to leave no child behind. It's a tale of unconditional love, a portrait of authentic parenthood, and a message of hope to all families. Most of all, it's a true story about never giving up on your child, or your famil.

Too Much Loss: Coping with Grief Overload

Too Much Loss: Coping with Grief Overload PDF Author: Alan Wolfelt
Publisher: Companion Press
ISBN: 1617222887
Category : Psychology
Languages : en
Pages : 56

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Book Description
Grief overload is what you feel when you experience too many significant losses all at once, in a relatively short period of time, or cumulatively. In addition to the deaths of loved ones, such losses can also include divorce, estrangement, illness, relocation, job changes, and more. Our minds and hearts have enough trouble coping with a single loss, so when the losses pile up, the grief often seems especially chaotic and defeating. The good news is that through intentional, active mourning, you can and will find your way back to hope and healing. This compassionate guide will show you how.