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Author: Kristi Hopkins
Publisher: CreateSpace
ISBN: 9781456358693
Category : Neurofibromatosis
Languages : en
Pages : 0
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Book Description
1 in 3000 people are born with Neurofibromatosis. It affects all of us in different ways. For some, Neurofibromatosis is as clear as the tumors on their face. For others, it hides beneath the surface, creating tumors that destroy hearing, vision, and more. Many of us are misdiagnosed, misunderstood, and often simply missed by a world of medicine that doesn't have a full grasp on all teh effects of NF. Stereotyped, ignored, or shunned by a world who thinks we either have the Elephant Man's disease, common migraines, or a few too many moles and birthmarks. In a society that values beauty so highly, NF'ers often choose to hide from others, and end up hiding from themselves. In 2007, Kristi chose to stop hiding, and start Thriving, as NF became a bigger part of my life than ever before, taking a firm grip on the health of three of my six children. Most people with NF, or any of a thousand other genetic disorders, focus on surviving from day to day. My kids deserve more than just to survive. And so do YOU. Thriving with Neurofibromatosis. We ALL have a story, this is mine.
Author: Kristi Hopkins
Publisher: CreateSpace
ISBN: 9781456358693
Category : Neurofibromatosis
Languages : en
Pages : 0
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Book Description
1 in 3000 people are born with Neurofibromatosis. It affects all of us in different ways. For some, Neurofibromatosis is as clear as the tumors on their face. For others, it hides beneath the surface, creating tumors that destroy hearing, vision, and more. Many of us are misdiagnosed, misunderstood, and often simply missed by a world of medicine that doesn't have a full grasp on all teh effects of NF. Stereotyped, ignored, or shunned by a world who thinks we either have the Elephant Man's disease, common migraines, or a few too many moles and birthmarks. In a society that values beauty so highly, NF'ers often choose to hide from others, and end up hiding from themselves. In 2007, Kristi chose to stop hiding, and start Thriving, as NF became a bigger part of my life than ever before, taking a firm grip on the health of three of my six children. Most people with NF, or any of a thousand other genetic disorders, focus on surviving from day to day. My kids deserve more than just to survive. And so do YOU. Thriving with Neurofibromatosis. We ALL have a story, this is mine.
Author: Allan E. Rubenstein
Publisher:
ISBN: 9783136651018
Category : Neurofibromatosis
Languages : en
Pages : 256
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Book Description
Author: Bruce R. Korf
Publisher: Tny
ISBN: 9783136651025
Category :
Languages : en
Pages : 253
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Book Description
This collaborative monograph covers the various problem areas associated with neurofibromatosis, e.g. neurology, learning disabilities, skin disorders etc. - also diagnosis and clinical overview, genetics, and the impact on the patient.
Author: Karin Soares Gonçalves Cunha
Publisher: Nova Biomedical
ISBN: 9781613246610
Category : Medical
Languages : en
Pages : 273
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Book Description
This is a practical and objective book that provides an updated and comprehensive overview, offering insight into the research advances in neurofibromatosis. This book represents a reference source for researchers, healthcare professionals from various fields, as well as students, about different aspects of neurofibromatosis. In addition, this book useful guidance to researchers and health professionals seeking to contribute to longevity and improved quality of life for patients and their families.
Author: Janet Damon
Publisher: Tate Publishing
ISBN: 1618627120
Category : Biography & Autobiography
Languages : en
Pages : 218
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Book Description
At four years old, a mysterious bump appeared on the inside of Beth's left wrist, so I took her to see a doctor. He brought out his books, studied them carefully, and returned with a startling diagnosis. 'Neurofibromatosis.' In shock, confusion, and dismay, my mind reeled. What on earth was it, and how did Beth get it? Was there a cure? Could her older sister or the baby I was now carrying get it? These and many other questions begged for answers. Thus began my quest to find help for my daughter—one that would take many unexpected and nearly tragic turns.Rising Above: Facing the Dragon of Neurofibromatosisis the true account of Beth's indomitable, uplifting spirit while coping with a disfiguring and disabling disorder of her central nervous system. One hundred percent of cases are congenital, meaning if you aren't born with NF, you will never have it. But lack of knowledge leads to fear, and many think NF is contagious, causing those with NF, like Beth, to feel isolated and judged. Told by her mother, Janet, along with snippets of Beth's story in her own words,Rising Abovewill encourage those going through a difficult time, inspire those who are facing or have faced trials, and educate those who may not be aware of this tragic condition.
Author: Vincent M. Riccardi
Publisher:
ISBN: 9780801843488
Category : Medical
Languages : en
Pages : 0
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Book Description
Author: Nicole Porlier
Publisher: Xlibris Corporation
ISBN: 1479787884
Category : Religion
Languages : en
Pages : 76
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Book Description
My Life with NF I believe in my own power to change. Louise Hay I wrote this book about my experience with neurofibromatosis, commonly known as NF, because I wanted to give adults and children affected with this disorder the hope that one can live a happy, fulfilling life despite NF. NF can affect so many different organs within the body, causing such severe complications that it can sometimes be difficult to see life in a positive way. This is my story, and I hope it will encourage you and help you to let shine your own light.
Author: LINK, the Neurofibromatosis Association
Publisher:
ISBN:
Category :
Languages : en
Pages : 16
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Book Description
Author: Kirsty Ashton
Publisher:
ISBN: 9781456770471
Category : Biography & Autobiography
Languages : en
Pages : 264
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Book Description
In 1998 Kirsty was enjoying weekly swimming lessons; and she had also joined the same dance school as her brother (Christopher). Chris had been having dance lessons for a few years and Kirsty wanted to dance on a stage like her brother and was looking forward to her next stage show. Ten years on and Kirsty can no longer dance or swim as well as she could when she was eight years old. She had to give it all up due to being in so much pain. She depends on elbow crutches and use's a power scooter when out shopping and needs help with some of her everyday needs. Kirsty's story tells how and why her life changed due to the problems caused by Neurofibromatosis and Scoliosis. And how she's managed to overcome any obstacles put in her way. When Kirsty was 11 weeks old she was diagnosed with Neurofibromatosis (NF1), which caused no problems until she was eight years old when she was also diagnosed with scoliosis. She now lives a very different, but full life, where she is surrounded by her family and a large group of friends, some of whom have made a contribution to this book with their own thoughts. Kirsty's story is a remarkable one. Physically she remains weakened by her condition but her personality and character remains undamaged.
Author: Dr Shayla Lewis
Publisher: Independently Published
ISBN:
Category : Health & Fitness
Languages : en
Pages : 0
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Book Description
Are you ready to take control of your neurofibromatosis symptoms through the power of nutrition? Dive into the world of optimal wellness with the "Neurofibromatosis Management Diet Cookbook". Here are some key points to consider: Are you seeking effective strategies to manage neurofibromatosis symptoms? Wondering how nutrition can play a pivotal role in your journey towards better health? Curious about delicious recipes tailored specifically for neurofibromatosis management? Yearning for a comprehensive guide that merges dietary science with culinary delights? Discover a wealth of insights and practical solutions within the pages of this indispensable cookbook. Crafted by experts in neurofibromatosis management and culinary arts, this book seamlessly integrates cutting-edge research with mouthwatering recipes to empower you on your wellness journey. Inside, you'll find: A comprehensive overview of neurofibromatosis and its dietary implications Strategies for incorporating neurofibromatosis-friendly foods into your daily meals Delectable recipes designed to support neurological health and overall well-being Tips for meal planning, grocery shopping, and kitchen organization tailored to your needs Guidance on navigating social situations and dining out while adhering to your dietary goals Personal anecdotes and success stories from individuals thriving with neurofibromatosis Nutritional information and serving suggestions for each recipe Practical advice for maintaining a balanced and sustainable approach to nutrition Whether you're newly diagnosed or seeking fresh inspiration on your journey, this cookbook is your ultimate companion for nourishing both body and mind. Take the first step towards a healthier, happier you with the "Neurofibromatosis Management Diet Cookbook". Unlock the door to better health today! Embrace the power of nutrition to manage neurofibromatosis symptoms effectively and deliciously. Don't wait any longer-take charge of your wellness journey now with the "Neurofibromatosis Management Diet Cookbook".
