Author: Annette Leibing
Publisher: Rutgers University Press
ISBN: 0813538033
Category : Health & Fitness
Languages : en
Pages : 263
Book Description
Cultural responses to most illnesses differ; dementia is no exception. These responses, together with a society's attitudes toward its elderly population, affect the frequency of dementia-related diagnoses and the nature of treatment. Bringing together essays by nineteen respected scholars, this unique volume approaches the subject from a variety of angles, exploring the historical, psychological, and philosophical implications of dementia. Based on solid ethnographic fieldwork, the essays employ a cross-cultural perspective and focus on questions of age, mind, voice, self, loss, temporality, memory, and affect. Taken together, the essays make four important and interrelated contributions to our understanding of the mental status of the elderly. First, cross-cultural data show the extent to which the aging process, while biologically influenced, is also very much culturally constructed. Second, detailed ethnographic reports raise questions about the behavioral criteria used by health care professionals and laymen for defining the elderly as demented. Third, case studies show how a diagnosis affects a patient's treatment in both clinical and familial settings.; Finally, the collection highlights the gap that separates current biological understandings of aging from its cultural meanings. As Alzheimer's disease and other forms of dementia continue to command an ever-increasing amount of attention in medicine and psychology, this book will be essential reading for anthropologists, social scientists, and health care professionals.
Thinking about Dementia
Author: Annette Leibing
Publisher: Rutgers University Press
ISBN: 0813538033
Category : Health & Fitness
Languages : en
Pages : 263
Book Description
Cultural responses to most illnesses differ; dementia is no exception. These responses, together with a society's attitudes toward its elderly population, affect the frequency of dementia-related diagnoses and the nature of treatment. Bringing together essays by nineteen respected scholars, this unique volume approaches the subject from a variety of angles, exploring the historical, psychological, and philosophical implications of dementia. Based on solid ethnographic fieldwork, the essays employ a cross-cultural perspective and focus on questions of age, mind, voice, self, loss, temporality, memory, and affect. Taken together, the essays make four important and interrelated contributions to our understanding of the mental status of the elderly. First, cross-cultural data show the extent to which the aging process, while biologically influenced, is also very much culturally constructed. Second, detailed ethnographic reports raise questions about the behavioral criteria used by health care professionals and laymen for defining the elderly as demented. Third, case studies show how a diagnosis affects a patient's treatment in both clinical and familial settings.; Finally, the collection highlights the gap that separates current biological understandings of aging from its cultural meanings. As Alzheimer's disease and other forms of dementia continue to command an ever-increasing amount of attention in medicine and psychology, this book will be essential reading for anthropologists, social scientists, and health care professionals.
Publisher: Rutgers University Press
ISBN: 0813538033
Category : Health & Fitness
Languages : en
Pages : 263
Book Description
Cultural responses to most illnesses differ; dementia is no exception. These responses, together with a society's attitudes toward its elderly population, affect the frequency of dementia-related diagnoses and the nature of treatment. Bringing together essays by nineteen respected scholars, this unique volume approaches the subject from a variety of angles, exploring the historical, psychological, and philosophical implications of dementia. Based on solid ethnographic fieldwork, the essays employ a cross-cultural perspective and focus on questions of age, mind, voice, self, loss, temporality, memory, and affect. Taken together, the essays make four important and interrelated contributions to our understanding of the mental status of the elderly. First, cross-cultural data show the extent to which the aging process, while biologically influenced, is also very much culturally constructed. Second, detailed ethnographic reports raise questions about the behavioral criteria used by health care professionals and laymen for defining the elderly as demented. Third, case studies show how a diagnosis affects a patient's treatment in both clinical and familial settings.; Finally, the collection highlights the gap that separates current biological understandings of aging from its cultural meanings. As Alzheimer's disease and other forms of dementia continue to command an ever-increasing amount of attention in medicine and psychology, this book will be essential reading for anthropologists, social scientists, and health care professionals.
Thinking Through Dementia
Author: Julian C. Hughes
Publisher: Oxford University Press
ISBN: 0199570663
Category : Medical
Languages : en
Pages : 317
Book Description
Dementia affects millions of people throughout the world. 'Thinking Through Dementia' offers a critique of the main models used to understand dementia. It discusses clinical issues and cases, together with philosophical work that might help us to better understand and treat this illness.
Publisher: Oxford University Press
ISBN: 0199570663
Category : Medical
Languages : en
Pages : 317
Book Description
Dementia affects millions of people throughout the world. 'Thinking Through Dementia' offers a critique of the main models used to understand dementia. It discusses clinical issues and cases, together with philosophical work that might help us to better understand and treat this illness.
On Vanishing
Author: Lynn Casteel Harper
Publisher: Catapult
ISBN: 1948226294
Category : Social Science
Languages : en
Pages : 129
Book Description
A New York Times Book Review Editors’ Choice This “beautifully unconventional” book on dementia “reframes our understanding” of Alzheimer’s and aging “with sensitivity and accuracy” (New York Times). Personal stories weave with meditations on history, philosophy, and more in this moving collection of essays for dementia patients and their families. An estimated 50 million people in the world suffer from dementia. Diseases such as Alzheimer’s erase parts of one’s memory but are also often said to erase the self. People don’t simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling book on dementia, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.
Publisher: Catapult
ISBN: 1948226294
Category : Social Science
Languages : en
Pages : 129
Book Description
A New York Times Book Review Editors’ Choice This “beautifully unconventional” book on dementia “reframes our understanding” of Alzheimer’s and aging “with sensitivity and accuracy” (New York Times). Personal stories weave with meditations on history, philosophy, and more in this moving collection of essays for dementia patients and their families. An estimated 50 million people in the world suffer from dementia. Diseases such as Alzheimer’s erase parts of one’s memory but are also often said to erase the self. People don’t simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling book on dementia, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.
Thinking of You
Author: Joanna Collicutt
Publisher:
ISBN: 9780857464910
Category : Church work with nursing home patients
Languages : en
Pages : 208
Book Description
Thinking of You is a comprehensive introduction to the subject of dementia. This accessible book is a practical resource for those directly affected by the condition, their immediate family and carers, and those seeking to offer them pastoral care and encourage continuing spiritual growth. Importantly, the author addresses the spiritual care of the affected individual and how to help churches support them and their carers. The final section includes resources for ministry in residential care homes.
Publisher:
ISBN: 9780857464910
Category : Church work with nursing home patients
Languages : en
Pages : 208
Book Description
Thinking of You is a comprehensive introduction to the subject of dementia. This accessible book is a practical resource for those directly affected by the condition, their immediate family and carers, and those seeking to offer them pastoral care and encourage continuing spiritual growth. Importantly, the author addresses the spiritual care of the affected individual and how to help churches support them and their carers. The final section includes resources for ministry in residential care homes.
Dementia Reimagined
Author: Tia Powell
Publisher: Penguin
ISBN: 0735210918
Category : Health & Fitness
Languages : en
Pages : 322
Book Description
Now in paperback, the cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.
Publisher: Penguin
ISBN: 0735210918
Category : Health & Fitness
Languages : en
Pages : 322
Book Description
Now in paperback, the cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.
Making Tough Decisions about End-of-Life Care in Dementia
Author: Anne Kenny
Publisher: JHU Press
ISBN: 1421426684
Category : Health & Fitness
Languages : en
Pages : 246
Book Description
Practical, essential advice about making tough decisions for people with end-stage dementia. Each year, more than 500,000 people are diagnosed with dementia in the United States. As stunning as that figure is, countless family members and caregivers are also affected by each diagnosis. Families are faced with the need to make vital end-of-life decisions about medical treatment, legal and financial matters, and living situations for those who no longer can; no one is prepared for this process. And many caregivers grapple with sadness, confusion, guilt, anger, and physical and mental exhaustion as dementia enters its final stage. In Making Tough Decisions about End-of-Life Care in Dementia, Dr. Anne Kenny, a skilled palliative care physician, describes how to navigate the difficult journey of late-stage dementia with sensitivity, compassion, and common sense. Combining her personal experience caring for a mother with dementia with her medical expertise in both dementia and end-of-life care, Dr. Kenny helps the reader prepare for a family member's death while managing their own emotional health. Drawing on stories of families that Dr. Kenny has worked with to illustrate common issues, concerns, and situations that occurs in late-stage dementia, this book includes practical advice about • making life-altering decisions while preparing for a loved one's inevitable death • medical care, pain, insomnia, medication, and eating • caring for the caregiver • having conversations about difficult topics with other family members and with health care, legal, and financial professionals Concrete to-do lists and lists of important points provide information at a glance for busy caregivers. Each chapter concludes with a list of additional resources for more information and help. Making Tough Decisions about End-of-Life Care in Dementia is a lifeline, an invaluable guide to assist in the late stage of dementia.
Publisher: JHU Press
ISBN: 1421426684
Category : Health & Fitness
Languages : en
Pages : 246
Book Description
Practical, essential advice about making tough decisions for people with end-stage dementia. Each year, more than 500,000 people are diagnosed with dementia in the United States. As stunning as that figure is, countless family members and caregivers are also affected by each diagnosis. Families are faced with the need to make vital end-of-life decisions about medical treatment, legal and financial matters, and living situations for those who no longer can; no one is prepared for this process. And many caregivers grapple with sadness, confusion, guilt, anger, and physical and mental exhaustion as dementia enters its final stage. In Making Tough Decisions about End-of-Life Care in Dementia, Dr. Anne Kenny, a skilled palliative care physician, describes how to navigate the difficult journey of late-stage dementia with sensitivity, compassion, and common sense. Combining her personal experience caring for a mother with dementia with her medical expertise in both dementia and end-of-life care, Dr. Kenny helps the reader prepare for a family member's death while managing their own emotional health. Drawing on stories of families that Dr. Kenny has worked with to illustrate common issues, concerns, and situations that occurs in late-stage dementia, this book includes practical advice about • making life-altering decisions while preparing for a loved one's inevitable death • medical care, pain, insomnia, medication, and eating • caring for the caregiver • having conversations about difficult topics with other family members and with health care, legal, and financial professionals Concrete to-do lists and lists of important points provide information at a glance for busy caregivers. Each chapter concludes with a list of additional resources for more information and help. Making Tough Decisions about End-of-Life Care in Dementia is a lifeline, an invaluable guide to assist in the late stage of dementia.
The Last Ocean
Author: Nicci Gerrard
Publisher: Penguin
ISBN: 0525521984
Category : Biography & Autobiography
Languages : en
Pages : 274
Book Description
From the award-winning journalist and author, a lyrical, raw and humane investigation of dementia that explores both the journeys of the people who live with the condition and those of their loved ones After a diagnosis of dementia, Nicci Gerrard’s father, John, continued to live life on his own terms, alongside the disease. But when an isolating hospital stay precipitated a dramatic turn for the worse, Gerrard, an award-winning journalist and author, recognized that it was not just the disease, but misguided protocol and harmful practices that cause such pain at the end of life. Gerrard was inspired to seek a better course for all who suffer because of the disease. The Last Ocean is Gerrard’s investigation into what dementia does to both the person who lives with the condition and to their caregivers. Dementia is now one of the leading causes of death in the West, and this necessary book will offer both comfort and a map to those walking through it. While she begins with her father’s long slip into forgetting, Gerrard expands to examine dementia writ large. Gerrard gives raw but literary shape both to the unimaginable loss of one’s own faculties, as well as to the pain of their loved ones. Her lens is unflinching, but Gerrard honors her subjects and finds the beauty and the humanity in their seemingly diminished states. In so doing, she examines the philosophy of what it means to have a self, as well as how we can offer dignity and peace to those who suffer with this terrible disease. Not only will it aid those walking with dementia patients, The Last Ocean will prompt all of us to think on the nature of a life well lived.
Publisher: Penguin
ISBN: 0525521984
Category : Biography & Autobiography
Languages : en
Pages : 274
Book Description
From the award-winning journalist and author, a lyrical, raw and humane investigation of dementia that explores both the journeys of the people who live with the condition and those of their loved ones After a diagnosis of dementia, Nicci Gerrard’s father, John, continued to live life on his own terms, alongside the disease. But when an isolating hospital stay precipitated a dramatic turn for the worse, Gerrard, an award-winning journalist and author, recognized that it was not just the disease, but misguided protocol and harmful practices that cause such pain at the end of life. Gerrard was inspired to seek a better course for all who suffer because of the disease. The Last Ocean is Gerrard’s investigation into what dementia does to both the person who lives with the condition and to their caregivers. Dementia is now one of the leading causes of death in the West, and this necessary book will offer both comfort and a map to those walking through it. While she begins with her father’s long slip into forgetting, Gerrard expands to examine dementia writ large. Gerrard gives raw but literary shape both to the unimaginable loss of one’s own faculties, as well as to the pain of their loved ones. Her lens is unflinching, but Gerrard honors her subjects and finds the beauty and the humanity in their seemingly diminished states. In so doing, she examines the philosophy of what it means to have a self, as well as how we can offer dignity and peace to those who suffer with this terrible disease. Not only will it aid those walking with dementia patients, The Last Ocean will prompt all of us to think on the nature of a life well lived.
Design for People Living with Dementia
Author: Paul A. Rodgers
Publisher: Routledge
ISBN: 1000568652
Category : Design
Languages : en
Pages : 371
Book Description
This book presents the latest research that shows how design thinking, making, and acting contribute to the co-designing and development of products, spaces, and services with people living with dementia. We know that there is currently no cure for the 130+ kinds of dementia that millions of people live with all over the world, but the designed interventions such as the products, spaces, and services described in this book can address stigma, isolation, loss of confidence, and raise awareness and greater understanding of dementia. This book showcases a range of innovative and creative design interventions that have been developed to break the cycle of well-established opinions, strategies, mindsets, and ways of doing that tend to remain unchallenged in the health and social care of people living with dementia. The book will be of interest to scholars working in product design, service design, experience design, architecture, design research, information design, user-centred design, and design for health.
Publisher: Routledge
ISBN: 1000568652
Category : Design
Languages : en
Pages : 371
Book Description
This book presents the latest research that shows how design thinking, making, and acting contribute to the co-designing and development of products, spaces, and services with people living with dementia. We know that there is currently no cure for the 130+ kinds of dementia that millions of people live with all over the world, but the designed interventions such as the products, spaces, and services described in this book can address stigma, isolation, loss of confidence, and raise awareness and greater understanding of dementia. This book showcases a range of innovative and creative design interventions that have been developed to break the cycle of well-established opinions, strategies, mindsets, and ways of doing that tend to remain unchallenged in the health and social care of people living with dementia. The book will be of interest to scholars working in product design, service design, experience design, architecture, design research, information design, user-centred design, and design for health.
Creative Approaches in Dementia Care
Author: Hilary Lee
Publisher: Bloomsbury Publishing
ISBN: 023034450X
Category : Medical
Languages : en
Pages : 276
Book Description
A practical introduction to the use of the arts in dementia care. Based on experience, the book provides clear guidance on how to employ a variety of innovative techniques including art, music and dance therapies, to promote the physical, psychological, emotional, social and spiritual well-being of people with dementia.
Publisher: Bloomsbury Publishing
ISBN: 023034450X
Category : Medical
Languages : en
Pages : 276
Book Description
A practical introduction to the use of the arts in dementia care. Based on experience, the book provides clear guidance on how to employ a variety of innovative techniques including art, music and dance therapies, to promote the physical, psychological, emotional, social and spiritual well-being of people with dementia.
Five Minutes of Amazing
Author: Chris Graham
Publisher: Hachette UK
ISBN: 0751565423
Category : Biography & Autobiography
Languages : en
Pages : 204
Book Description
This story poses a profound question - do we accept the hand that fate deals us, or do we battle to make the most of the life we have and help others in the process? Chris Graham, just 38 years old but already facing the advanced stages of Alzheimer's disease, has emphatically chosen the latter. Having lived through a troubled childhood, Chris joined the British Army at a young age and found that the life of a soldier provided him with a much-needed sense of stability. However, his world was turned upside down when, at just 34 years of age, he was diagnosed with a form of early onset dementia. This brutal disease had already claimed the life of his father at 42, along with several other members of his family, and tragically had already confined his brother to a nursing home at the age of 43. In his brother's life, Chris could see a terrifying window into his own near future. Chris, though, is an extraordinary human being. Having been handed nothing less than a death sentence, he decided overnight to stand up to this horrendous disease and do something to leave his mark before it was too late. And so it was that last year, Chris embarked on an awareness-raising 16,000-mile solo cycle around North America, armed only with his bike, a sense of humour, and some good old-fashioned British grit. Leaving his ever-supportive wife Vicky and baby son Dexter at home, he took on huge challenges - for instance, the fear that the ability to discern left from right might leave him at any point while navigating an entire continent - and made it home in time for Christmas, determined to spending however long he has left pouring his love and attention into his family life. Five Minutes of Amazing is both the story of Chris' epic journey and of his fight against the disease increasingly being recognised as the defining disease of our generation. Inspiring and heart-rending in equal measure, it's as important as it is moving, and it will touch everyone who reads it.
Publisher: Hachette UK
ISBN: 0751565423
Category : Biography & Autobiography
Languages : en
Pages : 204
Book Description
This story poses a profound question - do we accept the hand that fate deals us, or do we battle to make the most of the life we have and help others in the process? Chris Graham, just 38 years old but already facing the advanced stages of Alzheimer's disease, has emphatically chosen the latter. Having lived through a troubled childhood, Chris joined the British Army at a young age and found that the life of a soldier provided him with a much-needed sense of stability. However, his world was turned upside down when, at just 34 years of age, he was diagnosed with a form of early onset dementia. This brutal disease had already claimed the life of his father at 42, along with several other members of his family, and tragically had already confined his brother to a nursing home at the age of 43. In his brother's life, Chris could see a terrifying window into his own near future. Chris, though, is an extraordinary human being. Having been handed nothing less than a death sentence, he decided overnight to stand up to this horrendous disease and do something to leave his mark before it was too late. And so it was that last year, Chris embarked on an awareness-raising 16,000-mile solo cycle around North America, armed only with his bike, a sense of humour, and some good old-fashioned British grit. Leaving his ever-supportive wife Vicky and baby son Dexter at home, he took on huge challenges - for instance, the fear that the ability to discern left from right might leave him at any point while navigating an entire continent - and made it home in time for Christmas, determined to spending however long he has left pouring his love and attention into his family life. Five Minutes of Amazing is both the story of Chris' epic journey and of his fight against the disease increasingly being recognised as the defining disease of our generation. Inspiring and heart-rending in equal measure, it's as important as it is moving, and it will touch everyone who reads it.