Author: David J. Rothman
Publisher: Routledge
ISBN: 1351472569
Category : Medical
Languages : en
Pages : 584
Book Description
The Willowbrook Wars is a dramatic and illuminating account of the effort to close down a scandal-ridden institution and return its 5,400 handicapped residents to communities in New York. The wars began in 1972 with Geraldo Rivera's televised raid on the Willowbrook State School. They continued for three years in a federal courtroom, with civil libertarian lawyers persuading a conservative and conscience-stricken judge to expand the rights of the disabled, and they culminated in a 1975 consent decree, with the state of New York pledging to accomplish the unprecedented assignment in six years. From 1975 to 1982, David and Sheila Rothman observed this remarkable chapter in American reform of mental disabilities care. Would the state live up to its agreement without "dumping" residents into other nightmarish institutions? Would the lawyers prove as interested in meeting client needs as in securing client rights? Could a tradition-bound bureaucracy create a new network of community services? And finally, would a governor and a legislature tolerate such outside intervention, and if so, for how long? In answering these questions, The Willowbrook Wars takes us behind the scenes to clarify the role of the judiciary, the fate of the underprivileged, and the potential for social justice. In their new afterword, the authors bring the story up to date, describing the results of the closing of the institution in 1987 from the experiences of integrating the former residents into communities to the legal battles between the state of New York and advocates for the mentally handicapped.
The Willowbrook Wars
Author: David J. Rothman
Publisher: Routledge
ISBN: 1351472569
Category : Medical
Languages : en
Pages : 584
Book Description
The Willowbrook Wars is a dramatic and illuminating account of the effort to close down a scandal-ridden institution and return its 5,400 handicapped residents to communities in New York. The wars began in 1972 with Geraldo Rivera's televised raid on the Willowbrook State School. They continued for three years in a federal courtroom, with civil libertarian lawyers persuading a conservative and conscience-stricken judge to expand the rights of the disabled, and they culminated in a 1975 consent decree, with the state of New York pledging to accomplish the unprecedented assignment in six years. From 1975 to 1982, David and Sheila Rothman observed this remarkable chapter in American reform of mental disabilities care. Would the state live up to its agreement without "dumping" residents into other nightmarish institutions? Would the lawyers prove as interested in meeting client needs as in securing client rights? Could a tradition-bound bureaucracy create a new network of community services? And finally, would a governor and a legislature tolerate such outside intervention, and if so, for how long? In answering these questions, The Willowbrook Wars takes us behind the scenes to clarify the role of the judiciary, the fate of the underprivileged, and the potential for social justice. In their new afterword, the authors bring the story up to date, describing the results of the closing of the institution in 1987 from the experiences of integrating the former residents into communities to the legal battles between the state of New York and advocates for the mentally handicapped.
Publisher: Routledge
ISBN: 1351472569
Category : Medical
Languages : en
Pages : 584
Book Description
The Willowbrook Wars is a dramatic and illuminating account of the effort to close down a scandal-ridden institution and return its 5,400 handicapped residents to communities in New York. The wars began in 1972 with Geraldo Rivera's televised raid on the Willowbrook State School. They continued for three years in a federal courtroom, with civil libertarian lawyers persuading a conservative and conscience-stricken judge to expand the rights of the disabled, and they culminated in a 1975 consent decree, with the state of New York pledging to accomplish the unprecedented assignment in six years. From 1975 to 1982, David and Sheila Rothman observed this remarkable chapter in American reform of mental disabilities care. Would the state live up to its agreement without "dumping" residents into other nightmarish institutions? Would the lawyers prove as interested in meeting client needs as in securing client rights? Could a tradition-bound bureaucracy create a new network of community services? And finally, would a governor and a legislature tolerate such outside intervention, and if so, for how long? In answering these questions, The Willowbrook Wars takes us behind the scenes to clarify the role of the judiciary, the fate of the underprivileged, and the potential for social justice. In their new afterword, the authors bring the story up to date, describing the results of the closing of the institution in 1987 from the experiences of integrating the former residents into communities to the legal battles between the state of New York and advocates for the mentally handicapped.
The Willowbrook Wars
Author: David J. Rothman
Publisher: HarperCollins Publishers
ISBN:
Category : Law
Languages : en
Pages : 428
Book Description
Publisher: HarperCollins Publishers
ISBN:
Category : Law
Languages : en
Pages : 428
Book Description
The Rights Revolution
Author: Samuel Walker
Publisher: Oxford University Press
ISBN: 0195344715
Category : Law
Languages : en
Pages : 241
Book Description
The most dramatic change in American society in the last forty years has been the explosive growth of personal rights, a veritable "rights revolution" that is perceived by both conservatives and liberals as a threat to traditional values and our sense of community. Is it possible that our pursuit of personal rights is driving our country toward moral collapse? In The Rights Revolution, Samuel Walker answers this question with an emphatic no. The "rights revolution," says Walker, is the embodiment of the American ideals of morality and community. He argues that the critics of personal rights--from conservatives such as Robert Bork to liberals such as Michael Sandel--often forget the blatant injustices perpetrated against minorities such as women, homosexuals, African-Americans, and mentally handicapped citizens before the civil ights movement. They attack "identity politics" policies such as affirmative action, but fail to offer any reasonable solution to the dilemma of how to overcome exclusion in a society with such a powerful legacy of discrimination. Communitarians, who offer the most comprehensive alternative to a rights-oriented society, rarely define what they mean by community. What happens when conflicts arise between different notions of community? Walker concedes that the expansion of individual rights does present problems, but insists that the gains far outweigh the losses. And he reminds us that the absolute protection of our individual rights is our best defense against discrimination and injustice. The Rights Revolution is an impassioned call to honor the personal rights of all American citizens, and to embrace an enriched sense of democracy, tolerance, and community in our nation.
Publisher: Oxford University Press
ISBN: 0195344715
Category : Law
Languages : en
Pages : 241
Book Description
The most dramatic change in American society in the last forty years has been the explosive growth of personal rights, a veritable "rights revolution" that is perceived by both conservatives and liberals as a threat to traditional values and our sense of community. Is it possible that our pursuit of personal rights is driving our country toward moral collapse? In The Rights Revolution, Samuel Walker answers this question with an emphatic no. The "rights revolution," says Walker, is the embodiment of the American ideals of morality and community. He argues that the critics of personal rights--from conservatives such as Robert Bork to liberals such as Michael Sandel--often forget the blatant injustices perpetrated against minorities such as women, homosexuals, African-Americans, and mentally handicapped citizens before the civil ights movement. They attack "identity politics" policies such as affirmative action, but fail to offer any reasonable solution to the dilemma of how to overcome exclusion in a society with such a powerful legacy of discrimination. Communitarians, who offer the most comprehensive alternative to a rights-oriented society, rarely define what they mean by community. What happens when conflicts arise between different notions of community? Walker concedes that the expansion of individual rights does present problems, but insists that the gains far outweigh the losses. And he reminds us that the absolute protection of our individual rights is our best defense against discrimination and injustice. The Rights Revolution is an impassioned call to honor the personal rights of all American citizens, and to embrace an enriched sense of democracy, tolerance, and community in our nation.
The Willowbrook Wars
Author: David J. Rothman
Publisher: Transaction Publishers
ISBN: 9780202307572
Category : Law
Languages : en
Pages : 417
Book Description
Service of the Engine is a common local Chichewa-English expression in the Malawian fishing village where the author did her fieldwork. It refers to the practice of taking various pills--known locally as Ciba--in order to prevent and cure diseases associated with sex. This study explores the sensitive interface between the use of pharmaceuticals, available through an extensive informal distribution system, and self-treatment of sex-related diseases. The author examines morally sensitive situations in which men and women opt for Ciba, and evaluates its efficacy, or effectiveness. The discussion not only covers physical and metaphorical aspects of efficacy, but also the possible social and moral effects of medication. It offers a fresh and empirically grounded perspective on the links between efficacy, sex-related diseases and moralities. Birgitte Bruun graduated from the Institute of Anthropology, University of Copenhagen, Denmark and is currently working with reproductive health projects for United Nations Population Fund (UNFPA) in Jakarta, Indonesia.
Publisher: Transaction Publishers
ISBN: 9780202307572
Category : Law
Languages : en
Pages : 417
Book Description
Service of the Engine is a common local Chichewa-English expression in the Malawian fishing village where the author did her fieldwork. It refers to the practice of taking various pills--known locally as Ciba--in order to prevent and cure diseases associated with sex. This study explores the sensitive interface between the use of pharmaceuticals, available through an extensive informal distribution system, and self-treatment of sex-related diseases. The author examines morally sensitive situations in which men and women opt for Ciba, and evaluates its efficacy, or effectiveness. The discussion not only covers physical and metaphorical aspects of efficacy, but also the possible social and moral effects of medication. It offers a fresh and empirically grounded perspective on the links between efficacy, sex-related diseases and moralities. Birgitte Bruun graduated from the Institute of Anthropology, University of Copenhagen, Denmark and is currently working with reproductive health projects for United Nations Population Fund (UNFPA) in Jakarta, Indonesia.
From Snake Pits to Cash Cows
Author: Paul J. Castellani
Publisher: State University of New York Press
ISBN: 0791483312
Category : Social Science
Languages : en
Pages : 316
Book Description
Public institutions for people with developmental disabilities continue to operate within New York State, although their very existence has been condemned, and public policies directed their complete closure by the year 2000. From Snake Pits to Cash Cows investigates why these institutions persevere despite virtually universal predictions of their demise. Paul J. Castellani's provocative account spans the years 1935 to 2000, describing decades of conflict and confusion about the role of public institutions. This book demonstrates how and why a convergence of operational, fiscal, and political crises in the mid-1970s resulted in a series of agreements among adversaries that radically changed the political landscape, and reversed the plan to close all public institutions. He also shows why New York's experience has implications and lessons for the study of public policy in the area of developmental disabilities services and for understanding Medicaid policymaking, intergovernmental finance, and human services administration.
Publisher: State University of New York Press
ISBN: 0791483312
Category : Social Science
Languages : en
Pages : 316
Book Description
Public institutions for people with developmental disabilities continue to operate within New York State, although their very existence has been condemned, and public policies directed their complete closure by the year 2000. From Snake Pits to Cash Cows investigates why these institutions persevere despite virtually universal predictions of their demise. Paul J. Castellani's provocative account spans the years 1935 to 2000, describing decades of conflict and confusion about the role of public institutions. This book demonstrates how and why a convergence of operational, fiscal, and political crises in the mid-1970s resulted in a series of agreements among adversaries that radically changed the political landscape, and reversed the plan to close all public institutions. He also shows why New York's experience has implications and lessons for the study of public policy in the area of developmental disabilities services and for understanding Medicaid policymaking, intergovernmental finance, and human services administration.
Disabled Rights
Author: Jacqueline Vaughn Switzer
Publisher: Georgetown University Press
ISBN: 1589013107
Category : Political Science
Languages : en
Pages : 329
Book Description
"Freedom and Justice for all" is a phrase that can have a hollow ring for many members of the disability community in the United States. Jacqueline Vaughn Switzer gives us a comprehensive introduction to and overview of U.S. disability policy in all facets of society, including education, the workplace, and social integration. Disabled Rights provides an interdisciplinary approach to the history and politics of the disability rights movement and assesses the creation and implementation, successes and failures of the 1990 Americans with Disabilities Act (ADA) by federal, state and local governments. Disabled Rights explains how people with disabilities have been treated from a social, legal, and political perspective in the United States. With an objective and straightforward approach, Switzer identifies the programs and laws that have been enacted in the past fifty years and how they have affected the lives of people with disabilities. She raises questions about Congressional intent in passing the ADA, the evolution and fragmentation of the disability rights movement, and the current status of disabled people in the U.S. Illustrating the shift of disability issues from a medical focus to civil rights, the author clearly defines the contemporary role of persons with disabilities in American culture, and comprehensively outlines the public and private programs designed to integrate disabled persons into society. She covers the law's provisions as they apply to private organizations and businesses and concludes with the most up-to-date coverage of recent Supreme Court decisions-especially since the 2000-2002 terms-that have profoundly influenced the implementation of the ADA and other disability policies. For activists as well as scholars, students, and practitioners in public policy and public administration, Switzer has written a compassionate, yet powerful book that demands attention from everyone interested in the battle for disability rights and equality in the United States.
Publisher: Georgetown University Press
ISBN: 1589013107
Category : Political Science
Languages : en
Pages : 329
Book Description
"Freedom and Justice for all" is a phrase that can have a hollow ring for many members of the disability community in the United States. Jacqueline Vaughn Switzer gives us a comprehensive introduction to and overview of U.S. disability policy in all facets of society, including education, the workplace, and social integration. Disabled Rights provides an interdisciplinary approach to the history and politics of the disability rights movement and assesses the creation and implementation, successes and failures of the 1990 Americans with Disabilities Act (ADA) by federal, state and local governments. Disabled Rights explains how people with disabilities have been treated from a social, legal, and political perspective in the United States. With an objective and straightforward approach, Switzer identifies the programs and laws that have been enacted in the past fifty years and how they have affected the lives of people with disabilities. She raises questions about Congressional intent in passing the ADA, the evolution and fragmentation of the disability rights movement, and the current status of disabled people in the U.S. Illustrating the shift of disability issues from a medical focus to civil rights, the author clearly defines the contemporary role of persons with disabilities in American culture, and comprehensively outlines the public and private programs designed to integrate disabled persons into society. She covers the law's provisions as they apply to private organizations and businesses and concludes with the most up-to-date coverage of recent Supreme Court decisions-especially since the 2000-2002 terms-that have profoundly influenced the implementation of the ADA and other disability policies. For activists as well as scholars, students, and practitioners in public policy and public administration, Switzer has written a compassionate, yet powerful book that demands attention from everyone interested in the battle for disability rights and equality in the United States.
Making All the Difference
Author: Martha Minow
Publisher: Cornell University Press
ISBN: 1501705091
Category : Law
Languages : en
Pages : 420
Book Description
Should a court order medical treatment for a severely disabled newborn in the face of the parents' refusal to authorize it? How does the law apply to a neighborhood that objects to a group home for developmentally disabled people? Does equality mean treating everyone the same, even if such treatment affects some people adversely? Does a state requirement of employee maternity leave serve or violate the commitment to gender equality?Martha Minow takes a hard look at the way our legal system functions in dealing with people on the basis of race, gender, age, ethnicity, religion, and disability. Minow confronts a variety of dilemmas of difference resulting from contradictory legal strategies—strategies that attempt to correct inequalities by sometimes recognizing and sometimes ignoring differences. Exploring the historical sources of ideas about difference, she offers challenging alternative ways of conceiving of traits that legal and social institutions have come to regard as "different." She argues, in effect, for a constructed jurisprudence based on the ability to recognize and work with perceptible forms of difference.Minow is passionately interested in the people—"different" people—whose lives are regularly (mis)shaped and (mis)directed by the legal system's ways of handling them. Drawing on literary and feminist theories and the insights of anthropology and social history, she identifies the unstated assumptions that tend to regenerate discrimination through the very reforms that are supposed to eliminate it. Education for handicapped children, conflicts between job and family responsibilities, bilingual education, Native American land claims—these are among the concrete problems she discusses from a fresh angle of vision.Minow firmly rejects the prevailing conception of the self that she believes underlies legal doctrine—a self seen as either separate and autonomous, or else disabled and incompetent in some way. In contrast, she regards the self as being realized through connection, capable of shaping an identity only in relationship to other people. She shifts the focus for problem solving from the "different" person to the relationships that construct that difference, and she proposes an analysis that can turn "difference" from a basis of stigma and a rationale for unequal treatment into a point of human connection. "The meanings of many differences can change when people locate and revise their relationships to difference," she asserts. "The student in a wheelchair becomes less different when the building designed without him in mind is altered to permit his access." Her book evaluates contemporary legal theories and reformulates legal rights for women, children, persons with disabilities, and others historically identified as different.Here is a powerful voice for change, speaking to issues that permeate our daily lives and form a central part of the work of law. By illuminating the many ways in which people differ from one another, this book shows how lawyers, political theorist, teachers, parents, students—every one of us—can make all the difference,
Publisher: Cornell University Press
ISBN: 1501705091
Category : Law
Languages : en
Pages : 420
Book Description
Should a court order medical treatment for a severely disabled newborn in the face of the parents' refusal to authorize it? How does the law apply to a neighborhood that objects to a group home for developmentally disabled people? Does equality mean treating everyone the same, even if such treatment affects some people adversely? Does a state requirement of employee maternity leave serve or violate the commitment to gender equality?Martha Minow takes a hard look at the way our legal system functions in dealing with people on the basis of race, gender, age, ethnicity, religion, and disability. Minow confronts a variety of dilemmas of difference resulting from contradictory legal strategies—strategies that attempt to correct inequalities by sometimes recognizing and sometimes ignoring differences. Exploring the historical sources of ideas about difference, she offers challenging alternative ways of conceiving of traits that legal and social institutions have come to regard as "different." She argues, in effect, for a constructed jurisprudence based on the ability to recognize and work with perceptible forms of difference.Minow is passionately interested in the people—"different" people—whose lives are regularly (mis)shaped and (mis)directed by the legal system's ways of handling them. Drawing on literary and feminist theories and the insights of anthropology and social history, she identifies the unstated assumptions that tend to regenerate discrimination through the very reforms that are supposed to eliminate it. Education for handicapped children, conflicts between job and family responsibilities, bilingual education, Native American land claims—these are among the concrete problems she discusses from a fresh angle of vision.Minow firmly rejects the prevailing conception of the self that she believes underlies legal doctrine—a self seen as either separate and autonomous, or else disabled and incompetent in some way. In contrast, she regards the self as being realized through connection, capable of shaping an identity only in relationship to other people. She shifts the focus for problem solving from the "different" person to the relationships that construct that difference, and she proposes an analysis that can turn "difference" from a basis of stigma and a rationale for unequal treatment into a point of human connection. "The meanings of many differences can change when people locate and revise their relationships to difference," she asserts. "The student in a wheelchair becomes less different when the building designed without him in mind is altered to permit his access." Her book evaluates contemporary legal theories and reformulates legal rights for women, children, persons with disabilities, and others historically identified as different.Here is a powerful voice for change, speaking to issues that permeate our daily lives and form a central part of the work of law. By illuminating the many ways in which people differ from one another, this book shows how lawyers, political theorist, teachers, parents, students—every one of us—can make all the difference,
In The Name Of Progress: The Dark Side Of Medical Research
Author: Campion Quinn
Publisher: World Scientific
ISBN: 9811291837
Category : Medical
Languages : en
Pages : 227
Book Description
In the Name of Progress: The Dark Side of Medical Research is a comprehensive exploration of the dark side of medical progress, examining a series of unethical medical experiments conducted over the past century.This book delves into notorious cases like the Tuskegee Syphilis Study, the Guatemala Syphilis Experiment, and the Holmesburg Prison experiments, among others, to shed light on the ethical violations and exploitation that occurred under the guise of scientific advancement. Each chapter methodically uncovers the disturbing details of these studies, analyzing the impact on the victims and the long-term effects on public trust and medical ethics.By providing a critical examination of the ethical breaches in historical medical research, this book emphasizes the importance of informed consent, the protection of vulnerable populations, and the need for stringent ethical standards in medical studies. It aims to educate and provoke thoughtful discussion on the balance between scientific discovery and ethical conduct, highlighting the necessity of safeguarding human rights in medical research and the importance of maintaining ethical integrity in the pursuit of scientific knowledge.
Publisher: World Scientific
ISBN: 9811291837
Category : Medical
Languages : en
Pages : 227
Book Description
In the Name of Progress: The Dark Side of Medical Research is a comprehensive exploration of the dark side of medical progress, examining a series of unethical medical experiments conducted over the past century.This book delves into notorious cases like the Tuskegee Syphilis Study, the Guatemala Syphilis Experiment, and the Holmesburg Prison experiments, among others, to shed light on the ethical violations and exploitation that occurred under the guise of scientific advancement. Each chapter methodically uncovers the disturbing details of these studies, analyzing the impact on the victims and the long-term effects on public trust and medical ethics.By providing a critical examination of the ethical breaches in historical medical research, this book emphasizes the importance of informed consent, the protection of vulnerable populations, and the need for stringent ethical standards in medical studies. It aims to educate and provoke thoughtful discussion on the balance between scientific discovery and ethical conduct, highlighting the necessity of safeguarding human rights in medical research and the importance of maintaining ethical integrity in the pursuit of scientific knowledge.
Dangerous Pregnancies
Author: Leslie J. Reagan
Publisher: Univ of California Press
ISBN: 0520274571
Category : History
Languages : en
Pages : 390
Book Description
Annotation This is the largely forgotten story of the rubella (German measles) epidemic of the early 1960s & how in the United States it created a national anxiety about dying, disabled & 'dangerous' babies.
Publisher: Univ of California Press
ISBN: 0520274571
Category : History
Languages : en
Pages : 390
Book Description
Annotation This is the largely forgotten story of the rubella (German measles) epidemic of the early 1960s & how in the United States it created a national anxiety about dying, disabled & 'dangerous' babies.
The Routledge Companion to Bioethics
Author: John D. Arras
Publisher: Routledge
ISBN: 1136644849
Category : Philosophy
Languages : en
Pages : 633
Book Description
The Routledge Companion to Bioethics is a comprehensive reference guide to a wide range of contemporary concerns in bioethics. The volume orients the reader in a changing landscape shaped by globalization, health disparities, and rapidly advancing technologies. Bioethics has begun a turn toward a systematic concern with social justice, population health, and public policy. While also covering more traditional topics, this volume fully captures this recent shift and foreshadows the resulting developments in bioethics. It highlights emerging issues such as climate change, transgender, and medical tourism, and re-examines enduring topics, such as autonomy, end-of-life care, and resource allocation.
Publisher: Routledge
ISBN: 1136644849
Category : Philosophy
Languages : en
Pages : 633
Book Description
The Routledge Companion to Bioethics is a comprehensive reference guide to a wide range of contemporary concerns in bioethics. The volume orients the reader in a changing landscape shaped by globalization, health disparities, and rapidly advancing technologies. Bioethics has begun a turn toward a systematic concern with social justice, population health, and public policy. While also covering more traditional topics, this volume fully captures this recent shift and foreshadows the resulting developments in bioethics. It highlights emerging issues such as climate change, transgender, and medical tourism, and re-examines enduring topics, such as autonomy, end-of-life care, and resource allocation.