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Author: The Parkinality Poet
Publisher: Troubador Publishing Ltd
ISBN: 183859597X
Category : Poetry
Languages : en
Pages : 81
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Book Description
Read about Ralph and his clipboard, Nora with her knitted animals, and Tamara and her botox, Some poems are silly, some funny, some sad, some confusing.
Author: The Parkinality Poet
Publisher: Troubador Publishing Ltd
ISBN: 183859597X
Category : Poetry
Languages : en
Pages : 81
Get Book Here
Book Description
Read about Ralph and his clipboard, Nora with her knitted animals, and Tamara and her botox, Some poems are silly, some funny, some sad, some confusing.
Author: The Parkinality Poet
Publisher: Troubador Publishing Ltd
ISBN: 1838594760
Category : Poetry
Languages : en
Pages : 80
Get Book Here
Book Description
In 2012 The Parkinality Poet was diagnosed, aged 44, with Young Onset Parkinson’s Disease (YOPD). Today, seven years after this diagnosis, she tries to remain positive and concentrate on what can be achieved, rather than dwelling on what cannot. In January 2017 she invented a new word; Parkinality; Parkin(son’s) & (person)ality, and started a website about living with YOPD (www.parkinality.co.uk) to raise awareness, create more understanding, but primarily to highlight the urgent need for a cure. This is The Parkinality Poet’s second book of poetry. Another Book of Parkinality Poetry takes five fictional characters and through a series of poems explores ordinary family life, while at the same time, woven within the pages, is always the spectre of Parkinson’s Disease. Simple poems, simply written; often poignant and sometimes surprising, some poems will raise a smile. As with her earlier book The Parkinality Poetry Book (published July 2019) the poems are entertaining, interesting and are written to appeal beyond the Parkinson’s community.
Author: Peter Dunlap-Shohl
Publisher: Penn State Press
ISBN: 0271078952
Category : Comics & Graphic Novels
Languages : en
Pages : 110
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Book Description
How does one deal with a diagnosis of Parkinson’s disease at the age of forty-three? My Degeneration, by former Anchorage Daily News staff cartoonist Peter Dunlap-Shohl, answers the question with humor and passion, recounting the author’s attempt to come to grips with the “malicious whimsy” of this chronic, progressive, and disabling disease. This graphic novel tracks Dunlap-Shohl’s journey through depression, the worsening symptoms of the disease, the juggling of medications and their side effects, the impact on relations with family and community, and the raft of mental and physical changes wrought by the malady. My Degeneration examines the current state of Parkinson’s care, including doctor/patient relations and the repercussions of a disease that, among other things, impairs movement, can rob patients of their ability to speak or write, degrades sufferers’ ability to deal with complexity, and interferes with the sense of balance. Readers learn what it’s like to undergo a dramatic, demanding, and audacious bit of high-tech brain surgery that can mysteriously restore much of a patient’s control over symptoms. But My Degeneration is more than a Parkinson’s memoir. Dunlap-Shohl gives the person newly diagnosed with Parkinson’s disease the information necessary to cope with it on a day-to-day basis. He chronicles the changes that life with the disease can bring to the way one sees the world and the way one is seen by the wider community. Dunlap-Shohl imparts a realistic basis for hope—hope not only to carry on, but to enjoy a decent quality of life.
Author: Nan Little
Publisher: Createspace Independent Publishing Platform
ISBN: 9781508758341
Category : Hiking
Languages : en
Pages : 0
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Book Description
Chronicles an older woman's unorthodox approach to managing PD. She tells stories, encouraging patients to draw from her experiences points that are relevant to their own lives. She doesn't hide. Hallucinations, constipation, compulsive behaviors, and loss are all part of the picture. So is the emotion of standing on the roof of Africa, dipping her bike wheel in the Mississippi after cycling across Iowa for seven days and paying careful attention as her two year old granddaughter explains how to stop her "dancing hand". Each story is laced with courage, tenacity and love. "Nan shows how even the most challenging obstacles life puts in front of us can be stepping stones to something greater than we ever dreamed!" Linna Dossett Patient efficacy, having some control over her personal Parkinson's path, distinguishes this book from other medical memoirs. Nan encourages patients to take action based on scientific research with measurable outcomes. "You have Parkinson's disease." Those few words throw a person on an ice sheet with no ice axe to arrest the slide. Nan's story can be an ice axe. An estimated 1-1.5 million Americans live with Parkinson's with an additional 50,000-60,000 diagnosed each year, numbers growing as the population ages. Globally, this chronic neurodegenerative disease currently affects about 5 million. Although this book is about her experiences with Parkinson's, it is appropriate for any person who endures a neurodegenerative disease, and those who work with them or care about them.
Author: Sheryl Jedlinski
Publisher:
ISBN: 9780999748107
Category :
Languages : en
Pages : 218
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Book Description
In this book, journalist Sheryl Jedlinski tells the story of her 20-year journey with Parkinson¿s disease in a way that empowers readers to face this degenerative neurological disease with courage, grace, and dignity. Sharing the knowledge, coping strategies, and experiences that have helped her live well with Parkinson¿s, Sheryl offers fellow patients insights that they crave, but rarely receive. She also uses her humorous adventures to address adjustments that must be made to enjoy a full, productive life. Told through entertaining stories, this clever, creative read can benefit newbies and old-timers, care partners, doctors, nurses, and physical therapists eager to learn more about the practical aspects of living with Parkinson¿s. At the same time, the topics are broad enough to be relevant to anyone experiencing a life changing event of any kind. The bottom line, Sheryl says, is that, ¿While we may need to dream new dreams to fit our New Normal, it is important to recognize that in so doing, we may exceed our original expectations.
