The Complete Directory for People with Rare Disorders

The Complete Directory for People with Rare Disorders PDF Author: National Organization for Rare Disorders
Publisher: Sedgwick Press
ISBN: 9781891482182
Category : Health & Fitness
Languages : en
Pages : 828

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Book Description
This reference for lay readers and health care professionals presents information on disorders affecting fewer than 200,000 people in the U.S. at any one time. Each of the more than 1,100 entries describes the characteristics, causes, and symptoms of a particular disorder. The extensively cross-referenced volume also features profiles of 680 disease specific organizations as well as 629 umbrella organizations and 77 government agencies. Annotation copyrighted by Book News, Inc., Portland, OR

The Complete Directory for People with Rare Disorders

The Complete Directory for People with Rare Disorders PDF Author: National Organization for Rare Disorders
Publisher: Sedgwick Press
ISBN: 9781891482182
Category : Health & Fitness
Languages : en
Pages : 828

Get Book Here

Book Description
This reference for lay readers and health care professionals presents information on disorders affecting fewer than 200,000 people in the U.S. at any one time. Each of the more than 1,100 entries describes the characteristics, causes, and symptoms of a particular disorder. The extensively cross-referenced volume also features profiles of 680 disease specific organizations as well as 629 umbrella organizations and 77 government agencies. Annotation copyrighted by Book News, Inc., Portland, OR

The Complete Directory for People with Rare Disorders

The Complete Directory for People with Rare Disorders PDF Author: National Organization for Rare Disorders
Publisher: Sedgwick Press
ISBN: 9780939300983
Category : Diseases
Languages : en
Pages : 0

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Book Description
This outstanding reference is produced in conjunction with the National Organization for Rare Disorders to provide comprehensive and needed access to important information on over 1,000 rare disorders, including Cancers, Muscular, Genetic and Blood Disorders. An informative Disorder Description is provided for each disorder, followed by information on Organizations, Publications and Government Agencies involved with the disorder. For quick, easy access to information, this directory contains two indexes: Entry Name Index and Acronym/Keyword Index.

The Complete Directory for People With Rare Disorders 1998/99

The Complete Directory for People With Rare Disorders 1998/99 PDF Author: Grey House Publishing
Publisher: Grey House Pub
ISBN: 9781891482038
Category : Medical
Languages : en
Pages : 726

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Book Description


Rare Disease Information Directory

Rare Disease Information Directory PDF Author:
Publisher:
ISBN:
Category : Health education
Languages : en
Pages : 2

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Book Description


The Complete Directory for People with Rare Disorders, 2002/03

The Complete Directory for People with Rare Disorders, 2002/03 PDF Author: Laura Mars
Publisher: Sedgwick Press
ISBN: 9781891482199
Category : Health & Fitness
Languages : en
Pages : 800

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Book Description


NORD Guide to Rare Disorders

NORD Guide to Rare Disorders PDF Author: National Organization for Rare Disorders
Publisher: Lippincott Williams & Wilkins
ISBN: 9780781730631
Category : Medical
Languages : en
Pages : 982

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Book Description
NORD Guide to Rare Disorders is a comprehensive, practical, authoritative guide to the diagnosis and management of more than 800 rare diseases. The diseases are discussed in a uniform, easy-to-follow format--a brief description, signs and symptoms, etiology, related disorders, epidemiology, standard treatment, investigational treatment, resources, and references.The book includes a complete directory of orphan drugs, a full-color atlas of visual diagnostic signs, and a Master Resource List of support groups and helpful organizations. An index of symptoms and key words offers physicians valuable assistance in finding the information they need quickly.

Grey House Rare Disorders Directory

Grey House Rare Disorders Directory PDF Author: Grey House Publishing, Inc
Publisher: Sedgwick Press
ISBN: 9781592371235
Category : Medicine
Languages : en
Pages : 0

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Book Description


The Complete Directory for People with Chronic Illness

The Complete Directory for People with Chronic Illness PDF Author: Sedgwick Press
Publisher: Sedgwick Press
ISBN: 9781592370818
Category : Health & Fitness
Languages : en
Pages : 954

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Book Description
This informative resource provides a comprehensive overview of the support services and information resources available for people diagnosed with a chronic illness. Thousands of hours of research have gone into this 2005/06 edition, hundreds of new entries have been added and thousands of enhancements have been made to existing entries. This widely-hailed directory is structured around the 90 most prevalent chronic illnesses - from Asthma to Cancer to Wilson's Disease - and provides a comprehensive overview of the support services and information resources available for people diagnosed with a chronic illness. Each chronic illness has its own chapter and contains a brief description in layman's language, followed by important resources for National & Local Organizations, State Agencies, Newsletters, Books & Periodicals, Libraries & Research Centers, Support Groups & Hotlines, Web Sites and much more. Two indexes provide quick access to this wealth of information: Entry Index and Geographic Index. This directory is an important resource for health care professionals, the collections of hospital and health care libraries, as well as an invaluable tool for people with a chronic illness and their support network.

The Complete Directory for People with Disabilities

The Complete Directory for People with Disabilities PDF Author:
Publisher:
ISBN:
Category : Hearing impaired
Languages : en
Pages : 1094

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Book Description


The Complete Directory for People with Chronic Illness

The Complete Directory for People with Chronic Illness PDF Author: Laura Mars
Publisher: Sedgwick Press
ISBN: 9781891482168
Category : Medical
Languages : en
Pages : 1068

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Book Description
The widely hailed Complete Directory for People with Chronic Illness, updated for 2000/01, is structured around the 80 most prevalent chronic illnesses - from Asthma to Cancer to Wilson's Disease, providing a comprehensive overview of the support services and information resources available for people diagnosed with a chronic illness. Each chronic condition contains a brief description of the illness in layman's language followed by National and Local Organizations, State Agencies, Newsletters, Research Centers, Hotlines, Books and Periodicals. Also provided are sections on General Resources, both Associations and Media, as well as chapters on Death and Bereavement and Wish Foundations. This directory makes it possible to provide comprehensive and critical information from just one source in just one stop. An Entry Name Index and a Geographic Index will quickly direct users to relevant information and support services. The Complete Directory for People with Chronic Illness is a necessary addition to any reference collection.