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Author: Heather Summerhayes Cariou
Publisher: McArthur & Co
ISBN: 1770871063
Category : Biography & Autobiography
Languages : en
Pages : 499
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Book Description
Heather Summerhayes was six when her four-year-old sister Pam was diagnosed with Cystic Fibrosis and given only months to live. “Sixtyfive roses” was the way Pam pronounced the name of the disease that forever altered the lives of her siblings and parents, who in turn helped alter the community’s response to the disease by founding the Canadian Cystic Fibrosis Foundation. With the help of the CF Foundation, research and new treatments, the fight to save Pam’s lasted for years, until her death at the age of twenty-six.This beautifully written memoir offers a compassionate yet unflinching eyewitness account of the hope, pain, and courage of a family in crisis as it falls apart and outs itself together again and again, to emerge stronger and more loving. The heart of the story explores the relationship between the two sisters—one devastatingly ill, the other healthy but burdened with guilt—as they journey through childhood, adolescence, and young adulthood.
Author: Heather Summerhayes Cariou
Publisher: McArthur & Co
ISBN: 1770871063
Category : Biography & Autobiography
Languages : en
Pages : 499
Get Book Here
Book Description
Heather Summerhayes was six when her four-year-old sister Pam was diagnosed with Cystic Fibrosis and given only months to live. “Sixtyfive roses” was the way Pam pronounced the name of the disease that forever altered the lives of her siblings and parents, who in turn helped alter the community’s response to the disease by founding the Canadian Cystic Fibrosis Foundation. With the help of the CF Foundation, research and new treatments, the fight to save Pam’s lasted for years, until her death at the age of twenty-six.This beautifully written memoir offers a compassionate yet unflinching eyewitness account of the hope, pain, and courage of a family in crisis as it falls apart and outs itself together again and again, to emerge stronger and more loving. The heart of the story explores the relationship between the two sisters—one devastatingly ill, the other healthy but burdened with guilt—as they journey through childhood, adolescence, and young adulthood.
Author: Rob Law
Publisher: John Wiley & Sons
ISBN: 1119628598
Category : Business & Economics
Languages : en
Pages : 260
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Book Description
***BUSINESS BOOK AWARDS - FINALIST 2021*** An inspirational success story that shows how anyone can be a champion, overcome challenges and create a better world for yourself and others 65 Roses and a Trunki: Defying the Odds in Life and Business, is the extraordinary success story of entrepreneur Rob Law, designer and inventor of Trunki, the award-winning children's ride-on suitcase that’s sold millions of units worldwide. Born with cystic fibrosis, Rob watched his twin sister die from the same illness at sixteen. Told he could not expect to live into his twenties, he made a promise that he was going to defy the odds and live a long and successful life. Despite being humiliated in Dragons Den where his business was described as "worthless", Rob went on to create a new category of consumer product, build a global business brand, become an accomplished athlete, get an MBE from the Queen, bring joy to millions of children all over the world and become a father to three children after being told he would die childless. After beating overwhelming odds on the road to success in his personal and professional life, Rob wrote this memoir to help anyone facing difficult challenges in life and business. From brand-building and harnessing your creativity to managing a chronic health condition and facing your demons, you'll learn how to defy the odds, follow your passion, keep fighting when experts are telling you to quit and overcome every challenge you face. 65 Roses and a Trunki is a life-affirming book. Drawing on key insights from personal and business psychology, it tells an inspirational story that can be your story too.
Author: Diane Shader Smith
Publisher:
ISBN: 9780970035301
Category : Cystic fibrosis
Languages : en
Pages : 24
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Book Description
Mallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."
Author: Mallory Smith
Publisher: Random House
ISBN: 1984855433
Category : Biography & Autobiography
Languages : en
Pages : 336
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Book Description
The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.
Author: Andy C. Lipman
Publisher: Booklogix
ISBN: 9781610059558
Category : Health & Fitness
Languages : en
Pages : 216
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Book Description
"Andy's book will provide hope for those who so desperately need it. These stories of strength and determination are inspiration to keep fighting in our own lives." --Celine Dion "These are tales of warriors who have beaten the odds by making their dreams come true. These are stories that will give you hope. And by buying this book, you will bring us closer to a cure. That is my dream." --Lewis Black "After spending time with cystic fibrosis warriors throughout the country, I've quickly realized they are the toughest and most resilient people I have ever met. The outlook CF warriors have on life is one that everyone should strive to have." --Colton Underwood "These are the stories of CF warriors who refused to succumb to a distressful prognosis, and instead thrived through the power of belief." --Megan Fox
Author: Rose Marie
Publisher: University Press of Kentucky
ISBN: 9780813133294
Category : Biography & Autobiography
Languages : en
Pages : 308
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Book Description
Author: Rosayra Pablo Cruz
Publisher: HarperCollins
ISBN: 0062941941
Category : Biography & Autobiography
Languages : en
Pages : 215
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Book Description
“Offers hope in the face of desperate odds” – ELLE Magazine, ELLE’s Most Anticipated Books of Summer 2020 “[D]isturbing and unforgettable memoir…This wrenching story brings to vivid life the plight of the many families separated at the U.S.-Mexico border.” – Publisher’s Weekly, STARRED REVIEW “[The] haunting and eloquent…narrative of a Guatemalan woman's desperate search for a better life." -Kirkus, STARRED Review PEOPLE Magazine Best Books of Summer 2020 TIME Magazine Best Books of Summer 2020 PARADE Best Books of Summer 2020 Compelling and urgently important, The Book of Rosy is the unforgettable story of one brave mother and her fight to save her family. When Rosayra “Rosy” Pablo Cruz made the agonizing decision to seek asylum in the United States with two of her children, she knew the journey would be arduous, dangerous, and quite possibly deadly. But she had no choice: violence—from gangs, from crime, from spiraling chaos—was making daily life hell. Rosy knew her family’s one chance at survival was to flee Guatemala and go north. After a brutal journey that left them dehydrated, exhausted, and nearly starved, Rosy and her two little boys arrived at the Arizona border. Almost immediately they were seized and forcibly separated by government officials under the Department of Homeland Security’s new “zero tolerance” policy. To her horror Rosy discovered that her flight to safety had only just begun. In The Book of Rosy, with an unprecedented level of sharp detail and soulful intimacy, Rosy tells her story, aided by Julie Schwietert Collazo, founder of Immigrant Families Together, the grassroots organization that reunites mothers and children. She reveals the cruelty of the detention facilities, the excruciating pain of feeling her children ripped from her arms, the abiding faith that staved off despair—and the enduring friendship with Julie, which helped her navigate the darkness and the bottomless Orwellian bureaucracy. A gripping account of the human cost of inhumane policies, The Book of Rosy is also a paean to the unbreakable will of people united by true love, a sense of justice, and hope for a better future.
Author: Marianne Cronin
Publisher: HarperCollins
ISBN: 0063017512
Category : Fiction
Languages : en
Pages : 352
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Book Description
“A beautiful debut, funny, tender, and animated by a willingness to confront life’s obstacles and find a way to survive. . . . It celebrates friendship, finds meaning in difficulty and lets the reader explore dark places while always allowing for the possibility of light. Lenni and Margot are fine companions for all our springtime journeys.”—Harper’s Bazaar, UK A charming, fiercely alive and disarmingly funny debut novel in the vein of John Green, Rachel Joyce, and Jojo Moyes—a brave testament to the power of living each day to the fullest, a tribute to the stories that we live, and a reminder of our unlimited capacity for friendship and love. An extraordinary friendship. A lifetime of stories. Seventeen-year-old Lenni Pettersson lives on the Terminal Ward at the Glasgow Princess Royal Hospital. Though the teenager has been told she’s dying, she still has plenty of living to do. Joining the hospital’s arts and crafts class, she meets the magnificent Margot, an 83-year-old, purple-pajama-wearing, fruitcake-eating rebel, who transforms Lenni in ways she never imagined. As their friendship blooms, a world of stories opens for these unlikely companions who, between them, have been alive for one hundred years. Though their days are dwindling, both are determined to leave their mark on the world. With the help of Lenni’s doting palliative care nurse and Father Arthur, the hospital’s patient chaplain, Lenni and Margot devise a plan to create one hundred paintings showcasing the stories of the century they have lived—stories of love and loss, of courage and kindness, of unexpected tenderness and pure joy. Though the end is near, life isn’t quite done with these unforgettable women just yet. Delightfully funny and bittersweet, heartbreaking yet ultimately uplifting, The One Hundred Years of Lenni and Margot reminds us of the preciousness of life as it considers the legacy we choose to leave, how we influence the lives of others even after we’re gone, and the wonder of a friendship that transcends time.
Author: John Derian
Publisher: Artisan Books
ISBN: 1579656471
Category : Design
Languages : en
Pages : 369
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Book Description
New York Times Bestseller Named one of the Best Gift Books of the Year by Entertainment Weekly, InStyle, House Beautiful, T: The New York Times Style Magazine, Better Homes & Gardens, Luxe Interiors + Design, People StyleWatch, Garden & Gun, The Los Angeles Times, The Chicago Tribune, New York Magazine, and more John Derian’s home goods empire reaches far and wide—in addition to the four John Derian stores he owns in New York and Massachussetts, his products are sold by more than 600 retailers worldwide, including Neiman Marcus, ABC, and Gump’s in the United States; Conran and Liberty in the UK; and Astier de Villatte in Paris. It all started with his now-iconic collectible plates decoupaged with 19th-century artwork sourced from old and rare books, a process that credited him with elevating the decoupage technique into fine art. Over the past 25 years, the brand has expanded greatly to include home and general design gifts and products. Now, for the first time ever, comes the book John Derian fans have been waiting for. Culled from the thousands of images that have appeared in his biannual collections, here is an astoundingly beautiful assortment of nearly 300 full-bleed images in their original form. From intensely colored flowers and birds to curious portraits, hand-drawn letters, and breathtaking landscapes, the best of John Derian is here. The result is an oversized object of desire, a work of art in and of itself, that brilliantly walks the line between commerce and art, and that is destined to become the gift book of the season.
Author: Bijal P. Trivedi
Publisher: BenBella Books
ISBN: 1948836629
Category : Medical
Languages : en
Pages : 744
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Book Description
Recommended by Bill Gates and included in GatesNotes "Elaborating on the science as well as the business behind the fight against cystic fibrosis, Trivedi captures the emotions of the families, doctors, and scientists involved in the clinical trials and their 'weeping with joy' as new drugs are approved, and shows how cystic fibrosis, once a 'death sentence,' became, for many, a manageable condition. This is a rewarding and challenging work." —Publishers Weekly Cystic fibrosis was once a mysterious disease that killed infants and children. Now it could be the key to healing millions with genetic diseases of every type—from Alzheimer's and Parkinson's to diabetes and sickle cell anemia. In 1974, Joey O'Donnell was born with strange symptoms. His insatiable appetite, incessant vomiting, and a relentless cough—which shook his tiny, fragile body and made it difficult to draw breath—confounded doctors and caused his parents agonizing, sleepless nights. After six sickly months, his salty skin provided the critical clue: he was one of thousands of Americans with cystic fibrosis, an inherited lung disorder that would most likely kill him before his first birthday. The gene and mutation responsible for CF were found in 1989—discoveries that promised to lead to a cure for kids like Joey. But treatments unexpectedly failed and CF was deemed incurable. It was only after the Cystic Fibrosis Foundation, a grassroots organization founded by parents, formed an unprecedented partnership with a fledgling biotech company that transformative leaps in drug development were harnessed to produce groundbreaking new treatments: pills that could fix the crippled protein at the root of this deadly disease. From science writer Bijal P. Trivedi, Breath from Salt chronicles the riveting saga of cystic fibrosis, from its ancient origins to its identification in the dank autopsy room of a hospital basement, and from the CF gene's celebrated status as one of the first human disease genes ever discovered to the groundbreaking targeted genetic therapies that now promise to cure it. Told from the perspectives of the patients, families, physicians, scientists, and philanthropists fighting on the front lines, Breath from Salt is a remarkable story of unlikely scientific and medical firsts, of setbacks and successes, and of people who refused to give up hope—and a fascinating peek into the future of genetics and medicine.
