Navigating Life with Amyotrophic Lateral Sclerosis PDF Download
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Author: Mark B. Bromberg
Publisher: Oxford University Press
ISBN: 0190241624
Category : Medical
Languages : en
Pages : 281
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Book Description
Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS, a disease that affects approximately 5,600 Americans every year, with as many as 30,000 people managing the disease at any given time. ALS is a difficult disease for the patient and is also challenging for the caregiver and family as there are many questions, issues relating to care, and problems to manage. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Navigating Life with Amyotrophic Lateral Sclerosis is unique because it covers two perspectives: one author is a neurologist with 30 years of experience treating ALS patients, and the other author experienced first-hand the issues in providing care for a parent with ALS. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.
Author: Mark B. Bromberg
Publisher: Oxford University Press
ISBN: 0190241624
Category : Medical
Languages : en
Pages : 281
Get Book
Book Description
Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS, a disease that affects approximately 5,600 Americans every year, with as many as 30,000 people managing the disease at any given time. ALS is a difficult disease for the patient and is also challenging for the caregiver and family as there are many questions, issues relating to care, and problems to manage. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Navigating Life with Amyotrophic Lateral Sclerosis is unique because it covers two perspectives: one author is a neurologist with 30 years of experience treating ALS patients, and the other author experienced first-hand the issues in providing care for a parent with ALS. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.
Author: Sotirios Parashos
Publisher: Oxford University Press
ISBN: 019931120X
Category : Health & Fitness
Languages : en
Pages : 320
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Book Description
Here is a marvelous guide for anyone affected by Parkinson's disease--patients, caregivers, family members, and friends. Containing the most up-to-date information on the disease, one of the most common neurological disorders, it discusses the available treatments and provides practical advice on how to manage the disease in the long term. Emphasizing life-style adjustments that will provide a better quality of life and moderate the burden for patients and their loved ones, the book answers many questions and clarifies misunderstandings regarding the disease. Written by two experts on Parkinson's disease and a freelance journalist, the book is approachable and easily understandable. Question and answer sections are provided, while "hot topics" are highlighted for easy visibility. The authors have also included true patient stories that will both inspire and instruct, and they have addressed several topics often not mentioned in physician-directed disease management, such as how to talk to family and friends about one's life with Parkinson's.
Author: Kathleen Costello
Publisher: Brain and Life Books
ISBN: 0199381739
Category : Health & Fitness
Languages : en
Pages : 209
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Book Description
Navigating Life with Multiple Sclerosis will serve as a practical guide for meeting the challenges of this life-long disease. MS may cause a myriad of symptoms and varies greatly from person to person. The authors demystify MS and offer practical solutions and guidance based upon their extensive combined clinical and research experience. The book tackles many of the common symptoms experienced by the person with MS and looks into the future to explore where research is headed. If you are newly diagnosed or have been living with MS for years, this book is an invaluable guide.
Author: Lynne P. Taylor
Publisher: Oxford University Press
ISBN: 0199897794
Category : Health & Fitness
Languages : en
Pages : 230
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Book Description
Navigating Life with a Brain Tumor is a guide for anyone affected by brain tumors and their associated conditions-patients, family members, friends, and caregivers. Providing readily accessible information and real-world encouragement to people living with primary and metastatic brain tumors and their caregivers, this book discusses the basics of brain tumors, types of tumors, management of different tumors, related symptoms, treatments and side effects, the role of medical team members, and coping strategies from initial diagnosis throughout the course of the illness. At the same time, it also offers practical suggestions on symptom management and lifestyle modification, as well as real-life anecdotes and advice from both patients and family members and friends who are experiencing this diagnosis.
Author: Hiroshi Mitsumoto
Publisher: Contemporary Neurology
ISBN:
Category : Medical
Languages : en
Pages : 520
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Book Description
This volume provides comprehensive background for understanding amyotrophic lateral sclerosis (ALS) and a critical review of research. It points out the distinguishing characteristics of the disease and testing procedures for reliable diagnosis.
Author: Robert A Lavin MD, MS
Publisher: Oxford University Press
ISBN: 0190619694
Category : Medical
Languages : en
Pages : 256
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Book Description
Navigating Life with Chronic Pain provides accessible, comprehensive, and up-to-date information about the challenges patients, family, and caregivers face when confronted by chronic pain. No two pain experiences are the same, so your chronic pain depends on where you have pain, how long you have experienced pain, and how the pain symptoms developed. Everyone needs a customized approach because pain symptoms, other medical conditions, past pain experiences, beliefs about pain, environment, ability to cope with the pain, and financial and social support (like family, friends, and caregivers) are different for every person. This book aims to provide clear and reliable information about chronic pain, including "what" (definition), "how" (pathophysiology), and "why" (etiology). The authors expertly guide the reader through current approaches to diagnoses, including a review of diagnostic tests, as well as a comprehensive, integrated approach to chronic pain treatment. They demystify the pain evaluation and explain why pain professionals might ask you for detailed and seemingly personal information. Through the use of patient stories, you get real-world experiences and advice on navigating the day-to-day challenges of chronic pain. You will learn how to take control of your chronic pain using a variety of tools, like behavioral, exercise and nutritional approaches, medications, alternative treatments (yoga and tai chi), and injections or surgery.
Author: Robert Rymore
Publisher: Imb Publishing
ISBN: 9781909151604
Category : Amyotrophic lateral sclerosis
Languages : en
Pages : 154
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Book Description
The author, Robert Rymore, had a good friend who was diagnosed with Lou Gehrig Disease. He wanted to be able to help her and decided to buy some books about the disease. To his disappointment there was a lack of good informative books available on the subject. He decided to investigate the subject thoroughly and write a book about it to be able to help others. He decided he would start talking to professionals - doctors, physical therapists, speech therapists and occupational therapists - to learn more. He quickly realized the information he was getting would be extremely valuable for other people with ALS and their loved ones. This book has been a labor of love, one born of necessity and certainly one that aims to help those with ALS, their families, and their friends. ALS symptoms, signs, stages, types, diagnosis, treatment, caregiver tips, aids and what to expect is all covered. Including chapters about financial considerations, famous people with Lou Gehrig Disease and resources. The book is written in an easy to read and understandable style and contains tips for caregivers.
Author: David C. Spencer
Publisher: Oxford University Press
ISBN: 0199358966
Category : Health & Fitness
Languages : en
Pages : 256
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Book Description
Roughly 3 million people in the United States have already been diagnosed with epilepsy and another 200,000 new cases are diagnosed each year. Worldwide, approximately 1 percent of the global population is diagnosed with epilepsy at some point in their lives. With the diagnosis come questions, concerns, and uncertainties from both the person diagnosed and their family. So, where to go? Navigating Life with Epilepsy provides accessible, comprehensive, and up-to-date information about epilepsy shared from the two decades of experience of epileptologist David Spencer, MD, FAAN. This book guides the reader through the initial diagnosis, offers explanations on current approaches to diagnostic testing, medications, treatment options, and life management for the patient, their family, and their caregiver. Patient's stories are peppered throughout to illustrate that you are not alone: like you, they must navigate the myriad psychosocial challenges associated with epilepsy, including everyday concerns like driving, work, and relationships. Navigating Life with Epilepsy is a perfect resource for both patients with epilepsy and the family members and friends who care for them.
Author: Eliot H. Dunsky
Publisher: Createspace Independent Publishing Platform
ISBN: 9781534988668
Category : Amyotrophic lateral sclerosis
Languages : en
Pages : 0
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Book Description
Eliot H. Dunsky, MD, is a retired physician who since his diagnosis in 2009 has been living with ALS, the complex, progressively debilitating disorder commonly known as Lou Gehrig's disease. Determined to maintain the best quality of life possible-for as long as possible-he extensively researched the condition and its management. As he immersed himself, talking to ALS patients and exploring emerging assistive technologies and aids, he realized that misunderstanding of this complicated disease was rife, preventing many from making the most of the precious years left. The result is this compilation of not only his personal experiences as his own condition advanced but also current research and links to additional specialized resources. Its aim is to help other patients learn to live with their diagnosis and navigate the day-to-day struggles associated with it. Appropriate symptom management can help fend off the devastating effects of the disease for a longer period of time. ALS: An Orientation offers a practical guide for patients and their families on maximizing quality of life through strategic care and, importantly, coping with the emotional toll the disease can take. A terminal diagnosis simply means savoring to the fullest the life that is still possible.
Author: Beth Witrogen McLeod
Publisher: Turner Publishing Company
ISBN: 1630260630
Category : Medical
Languages : en
Pages : 222
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Book Description
Framed by the author's personal odyssey as a caregiver and richly informed by the inspiring and poignant tales of others, Caregiving explores medical and financial problems, all aspects of spirituality, and such issues as depression, stress, housing, home care, and end-of-life concerns. A rare blend of powerful storytelling and practical information, Caregiving is a revelation.
