Navigating Life with Amyotrophic Lateral Sclerosis PDF Download
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Author: Mark B. Bromberg
Publisher: Oxford University Press
ISBN: 0190241624
Category : Medical
Languages : en
Pages : 281
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Book Description
Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.
Author: Mark B. Bromberg
Publisher: Oxford University Press
ISBN: 0190241624
Category : Medical
Languages : en
Pages : 281
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Book Description
Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.
Author: Robert Rymore
Publisher: Imb Publishing
ISBN: 9781909151604
Category : Amyotrophic lateral sclerosis
Languages : en
Pages : 154
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Book Description
The author, Robert Rymore, had a good friend who was diagnosed with Lou Gehrig Disease. He wanted to be able to help her and decided to buy some books about the disease. To his disappointment there was a lack of good informative books available on the subject. He decided to investigate the subject thoroughly and write a book about it to be able to help others. He decided he would start talking to professionals - doctors, physical therapists, speech therapists and occupational therapists - to learn more. He quickly realized the information he was getting would be extremely valuable for other people with ALS and their loved ones. This book has been a labor of love, one born of necessity and certainly one that aims to help those with ALS, their families, and their friends. ALS symptoms, signs, stages, types, diagnosis, treatment, caregiver tips, aids and what to expect is all covered. Including chapters about financial considerations, famous people with Lou Gehrig Disease and resources. The book is written in an easy to read and understandable style and contains tips for caregivers.
Author: Hiroshi Mitsumoto
Publisher: F. A. Davis Company
ISBN:
Category : Medical
Languages : en
Pages : 520
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Book Description
This volume provides comprehensive background for understanding amyotrophic lateral sclerosis (ALS) and a critical review of research. It points out the distinguishing characteristics of the disease and testing procedures for reliable diagnosis.
Author: Lynne P. Taylor
Publisher: Oxford University Press
ISBN: 0199311226
Category : Health & Fitness
Languages : en
Pages : 230
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Book Description
Providing readily accessible information and real-world encouragement to people living with primary and metastatic brain tumors, this book discusses the basics of brain tumors, types of tumors, management of different tumors, related symptoms, treatments and side effects, the role of medical team members, and coping strategies from initial diagnosis throughout the course of the illness. At the same time, it also offers practical suggestions on symptom management and lifestyle modification, as well as real-life anecdotes and advice from both patients and family members and friends who are experiencing this diagnosis. Written by two experts working with a professional writer, as well as advice from other professionals, the book is crystal clear and easy to use. Balancing the uncertainties of prognosis with hope, Navigating Life with a Brain Tumor is an authoritative, realistic, yet compassionate guide to living with brain cancer.
Author: Robert A. Lavin
Publisher:
ISBN: 0190619686
Category : Health & Fitness
Languages : en
Pages : 233
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Book Description
Navigating Life with Chronic Pain provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by chronic pain, showing that no two pain experiences are the same. The authors expertly guide the reader through current approaches, to diagnoses including a review of diagnostic tests, and discuss a comprehensive, integrated approach to chronic pain treatment. Through the use of patient stories, you get real-world experiences and advice on navigating the day-to-day challenges, associated with chronic pain like exercising and nutrition, using non-opioid drugs, deciding when surgery is the best option, how to maintain intimacy with a partner, and how to manage caregiver burnout.
Author: Jodi O'Donnell-Ames
Publisher: People Tested Publications
ISBN: 9780996867801
Category :
Languages : en
Pages : 136
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Book Description
Kevin and Jodi O'Donnell, were a young New Jersey couple busy raising a toddler and making plans for their future when they received life-altering news in 1995 that changed everything as they knew it. Kevin was only 30 years old when he was told that his health problems were the result of a rare, terminal disease called ALS (Amyotrophic Lateral Sclerosis), or Lou Gehrig's disease. Kevin and Jodi had not heard of ALS until then and had no idea how those three letters would challenge everything they thought to be certain. After more than 20 years of working with ALS families, Jodi realized that more information and better resources could be available to help families who are coming to grips with the challenges of the disease and the caregiving responsibilities that are involved. In the Introduction to "Someone I Love Has ALS: A Family Caregiver's Guide," Jodi recounts the journey she took as a caregiver, advocate and writer and embraces and shares the lessons learned throughout the pages of this wonderful guide, "This guide was created by a variety of caregivers and professionals who have years of experience with various aspects of ALS. It was written by volunteers and experts who care about ALS and your journey. It is the resource that I wish we had received along with the shocking diagnosis." Although Kevin died of ALS in 2001 at the age 35, the disease never won the battle. ALS only strengthened Kevin and Jodi's love for God and each other and it created an even bigger purpose and plan: the creation of Hope Loves Company(r), the only non-profit whose mission is to support the children and grandchildren caregivers of PALS (people with ALS).
Author: Alison Acheson
Publisher: Brindle and Glass
ISBN: 1927366879
Category : Biography & Autobiography
Languages : en
Pages : 321
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Book Description
A profoundly honest and intensely personal story of a woman who cares for her husband after the devastating terminal diagnosis of ALS. Marty, age 57, was given a preliminary diagnosis of ALS by his family doctor. Seven weeks later, the diagnosis was confirmed by a neurologist. Ten months and ten days later, Marty passed away. From day one, Alison, Marty’s spouse of over twenty-five years, kept a journal as a way to navigate the overwhelming state of her mind and soul. Soon the rawness of her words harmonized to tell the story of Marty’s diagnosis, illness, and decline. Her journal became a chronicle of caregiving as well as an emotional exploration of the tensions between the intuitive and the pragmatic, the logical and illogical, and the all-consuming demands of being both spouse and nurse. Divided into short pieces, some of which reads as free verse, Alison’s words are at times profoundly intense and painfully private. The composition of the intricate notes of a life in its final movements includes another stanza of the journal that became Dance Me to the End: the guiding of children grappling with the imminent loss of a parent, and the shifting roles of family, friends, and community—all of which add their own complex rhythms. Dance Me to the End is an evocative memoir about the emotional impact of witnessing a loved one suffer from a neurological, degenerative, and terminal disease. This is a detailed account of grief, shock and pain coexisting with the levity, laughter and love shared with her husband and sons in those final months of Marty's life.
Author: Amalia Flecksteiner
Publisher:
ISBN: 9780578896571
Category : Education
Languages : en
Pages : 28
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Book Description
ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that currently has no cure. ALS is a disease that typically involves a gradual onset, with initial symptoms that can be quite varied in different people. One person may struggle with lifting a coffee cup or grasping a pen, while others may begin slurring or losing their speech - ALS affects everyone differently. Regardless, ALS is a disease that always takes - takes someone's ability to help themselves, takes someone's ability to express themselves, and ultimately takes someone from the ones who love them most.Mom was taken from us by this disease too soon. She was a nurse of over 30 years, always taking care of others, to end up being taken care of herself. Though we ultimately lost Mom to ALS, we gained a purpose to bring awareness and support to others who may have or had the same experience with their loved one. Whether it's Mom, Dad, Grandma, Grandpa, or another loved one affected by this disease that always takes, always remember - but they still can love.For more ALS information and resources, visit als.org. A large portion of the proceeds from this book will benefit the ALS Association of Georgia Chapter's 'Walk to Defeat ALS' in honor of Mom, Marina Pascarelli.
Author: Paul L. Nunez
Publisher: Oxford University Press, USA
ISBN: 019505038X
Category : Medical
Languages : en
Pages : 629
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Book Description
This work investigates the connections between psychology and physiology. Topics include synaptic sources, electrode placement, choice of reference, volume conduction, power and coherence, projection of scalp potentials to dura surface, dynamic signatures of conscious experience and more.
Author: Louis R. Caplan
Publisher: Oxford University Press
ISBN: 0199945713
Category : Health & Fitness
Languages : en
Pages : 289
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Book Description
Navigating the Complexities of Stroke is a practical guidebook for readers with no medical training about the various types of strokes, as well as their evaluation, treatment, prevention, recovery, and effects on community and family.
