Author: Valerie Free
Publisher: FriesenPress
ISBN: 1460280512
Category : Health & Fitness
Languages : en
Pages : 514
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Book Description
The onset can be fast and shocking or slow and insidious. It can happen to anyone at any age. A flu, a vaccination, or an infection can be the innocent beginnings to the potentially life-long and disabling illness called myalgic encephalomyelitis (ME), which is more commonly known as chronic fatigue syndrome (CFS) or ME/CFS in North America. In the mid 1980s, the U.S. Centers for Disease Control (CDC) was called in by concerned doctors who were witnessing an influx of patients with a mysterious illness. Eventually the CDC labeled the condition “chronic fatigue syndrome” which turned out to be very misleading. Decades later, in 2016, health agencies are finally beginning to agree with international experts that ME/CFS is a serious, chronic, multi-system illness. Through artwork, poetry, story-telling, and meticulous research, Lighting Up a Hidden World: CFS and ME takes readers into the fascinating, yet frightening, landscape of ME/CFS. Author Valerie Free shares her personal experiences and delivers illuminating first-hand perspectives from patients, caregivers, journalists, and medical professionals from within the global community in short easy-to-read segments. These stories reveal the disgrace, controversy, and tragedy of worldwide neglect by political and health care systems, leaving ME/CFS research underfunded and millions of people marginalized, sick, and socially unsupported. Lighting Up a Hidden World: CFS and ME advocates for those too ill to speak out, abounds with patient resources, and offers realistic hope for the future. People living with this illness, along with their family and friends, will find compassion and camaraderie in its pages. This book reaches beyond the ME/CFS community exposing the themes of human suffering, resilience, and the need for social change.
Author: Natalie Boulton
Publisher:
ISBN: 9780956026606
Category : Chronic fatigue syndrome
Languages : en
Pages : 120
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Book Description
Author: Peggy Munson
Publisher: Routledge
ISBN: 1135411743
Category : Medical
Languages : en
Pages : 297
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Book Description
Develop a better understanding of what CFS/CFIDS sufferers are going through!In the 1980s, a strange emerging epidemic baffled doctors in Incline Village, Nevada. Dismissed by the media as “The Yuppie Flu,” Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) turned out to be neither a faddish disease of the wealthy nor a passing trend, but rather a growing worldwide epidemic of devastating proportions.In the voices of a South African journalist, a former marathon runner, a teenage girl, a public health activist living on the edge of race and gender, a cancer patient neglected by doctors because of disdain for her chronic illness, and a theologian relearning the art of spiritual empathy, the people who share their stories in Stricken: Voices from the Hidden Epidemic of Chronic Fatigue Syndrome defy cultural stereotypes and explore the complex social and political dynamics of this hidden epidemic. Through their distinct points of view, we feel the grief and hope of those stricken with CFIDS and learn of the complex nature of this misunderstood disorder. These are compelling stories about a quiet and baffling epidemic. The first American anthology to contain stories from a diverse range of people with CFIDS, Stricken offers an intimate look at the political and social issues surrounding CFIDS, as told by those who are living through this ordeal. Stricken addresses several issues, such as: why some doctors still do not believe CFIDS is real how the disease is mocked in the media myths about this illness the personal fight for medical or public recognition the skepticism and hope that is felt by the ever-growing number of CFIDS sufferers Stricken confronts fascinating CFIDS issues such as the Kevorkian suicides, accusations of Munchausen Syndrome By Proxy, Gulf War Syndrome, the role of storytelling in a memory-impaired patient movement, and the feasibility of mass activism in a disabled population. With contributions from Pulitzer-prize nominated writer Susan Griffin, renowned health writer and radio host Gary Null, well-known feminist activist Joan Nestle, and award-winning poet and essayist Floyd Skloot, Stricken is an eloquent testament to the heroism, defiance, and diversity of the CFIDS community.
Author: Orlagh Farrell Delaney
Publisher: Cambridge Scholars Publishing
ISBN: 1527573281
Category : Body, Mind & Spirit
Languages : en
Pages : 277
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Book Description
This ground-breaking book explores and explains the day-to-day realities of living long-term with Myalgic Encephalomyelitis (ME). ME is an acquired complex disorder characterised by a variety of symptoms affecting multiple systems of the body. Marked fatigue and weakness, sickness, cognitive dysfunction and symptom flare-up can follow any physical or cognitive exertion. It is estimated that there are 17-24 million sufferers worldwide. The author has lived with moderately severe ME for the last 18 years. Utilising autoethnography as a methodology and drawing on multidisciplinary social science theory, the book tells the story of the author’s own lived experiences of the illness, and how she sought to reimagine a ‘self’ or a life living alongside the illness, that could still be considered a ‘good life’. This autoethnographic book is beautifully and evocatively written. It is a work of scholarship that will be highly accessible to academic and other readers. It is also a comprehensive introduction to autoethnography as a methodology, but it is much more. The images and poetry complement the narrative discussion, and are exemplary as part of an approach that integrates creative work with academic argument. It illuminates the struggles of living with ME and how there can be sanctuary.
Author: Judith Vanistendael
Publisher: SelfMadeHero
ISBN: 9781906838546
Category : Comics & Graphic Novels
Languages : en
Pages : 0
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Book Description
"The moment his granddaughter Louise is born, David learns that he has cancer. He would rather keep quiet about his illness, the pain and the end that awaits him-- much to the frustration of the women in his life. They wait, powerless, for the silent but inexorable end"--Page 4 of cover.
Author: Meghan O'Rourke
Publisher: Penguin
ISBN: 1594633797
Category : Health & Fitness
Languages : en
Pages : 337
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Book Description
A NEW YORK TIMES BESTSELLER FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue “Remarkable.” –Andrew Solomon, The New York Times Book Review "At once a rigorous work of scholarship and a radical act of empathy.”—Esquire "A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal "Essential."—The Boston Globe A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.
Author: Robert Kolker
Publisher: Anchor
ISBN: 0385543778
Category : Biography & Autobiography
Languages : en
Pages : 427
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Book Description
#1 NEW YORK TIMES BESTSELLER • OPRAH’S BOOK CLUB PICK • ONE OF GQ's TOP 50 BOOKS OF LITERARY JOURNALISM IN THE 21st CENTURY • The heartrending story of a midcentury American family with twelve children, six of them diagnosed with schizophrenia, that became science's great hope in the quest to understand the disease. "Reads like a medical detective journey and sheds light on a topic so many of us face: mental illness." —Oprah Winfrey Don and Mimi Galvin seemed to be living the American dream. After World War II, Don's work with the Air Force brought them to Colorado, where their twelve children perfectly spanned the baby boom: the oldest born in 1945, the youngest in 1965. In those years, there was an established script for a family like the Galvins--aspiration, hard work, upward mobility, domestic harmony--and they worked hard to play their parts. But behind the scenes was a different story: psychological breakdown, sudden shocking violence, hidden abuse. By the mid-1970s, six of the ten Galvin boys, one after another, were diagnosed as schizophrenic. How could all this happen to one family? What took place inside the house on Hidden Valley Road was so extraordinary that the Galvins became one of the first families to be studied by the National Institute of Mental Health. Their story offers a shadow history of the science of schizophrenia, from the era of institutionalization, lobotomy, and the schizophrenogenic mother to the search for genetic markers for the disease, always amid profound disagreements about the nature of the illness itself. And unbeknownst to the Galvins, samples of their DNA informed decades of genetic research that continues today, offering paths to treatment, prediction, and even eradication of the disease for future generations. With clarity and compassion, bestselling and award-winning author Robert Kolker uncovers one family's unforgettable legacy of suffering, love, and hope.
Author: Randye Kaye
Publisher: Rowman & Littlefield Publishers
ISBN: 1442210915
Category : Psychology
Languages : en
Pages : 321
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Book Description
When readers first meet Ben, he is a sweet, intelligent, seemingly well-adjusted youngster. Fast forward to his teenage years, though, and Ben's life has spun out of control. Ben is swept along by an illness over which he has no control—one that results in runaway episodes, periods of homelessness, seven psychotic breaks, seven hospitalizations, and finally a diagnosis and treatment plan that begins to work. Schizophrenia strikes an estimated one in a hundred people worldwide by some estimates, and yet understanding of the illness is lacking. Through Ben's experiences, and those of his mother and sister, who supported Ben through every stage of his illness and treatment, readers gain a better understanding of schizophrenia, as well as mental illness in general, and the way it affects individuals and families. Here, Kaye encourages families to stay together and find strength while accepting the reality of a loved one's illness; she illustrates, through her experiences as Ben's mother, the delicate balance between letting go and staying involved. She honors the courage of anyone who suffers with mental illness and is trying to improve his life and participate in his own recovery. Ben Behind His Voices also reminds professionals in the psychiatric field that every patient who comes through their doors has a life, one that he has lost through no fault of his own. It shows what goes right when professionals treat the family as part of the recovery process and help them find support, education, and acceptance. And it reminds readers that those who suffer from mental illness, and their families, deserve respect, concern, and dignity.
Author: Yolanda Hadid
Publisher: Macmillan + ORM
ISBN: 1250121663
Category : Biography & Autobiography
Languages : en
Pages : 486
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Book Description
From the star of The Real Housewives of Beverly Hills comes an emotional and eye opening behind-the-scenes look at her descent into uncovering the mystery of chronic Lyme disease. In early 2011, Yolanda was struck by mysterious symptoms including brain fog, severe exhaustion, migraines and more. Over the months and years that followed, she went from being an outspoken, multi-tasking, hands-on mother of three, reality TV star, and social butterfly, to a woman who spent most of her time in bed. Yolanda was turned inside out by some of the country’s top hospitals and doctors, but due to the lack of definitive diagnostic testing, she landed in a dark maze of conflicting medical opinions, where many were quick to treat her symptoms but could never provide clear answers to their possible causes. In this moving, behind the scenes memoir, Yolanda Hadid opens up in a way she has never been able to in the media before. Suffering from late stage Lyme, a disease that is an undeniable epidemic and more debilitating than anyone realizes, Yolanda had to fight with everything she had to hold onto her life. While her struggle was lived publicly, it impacted her privately in every aspect of her existence, affecting her family, friends and professional prospects. Her perfect marriage became strained and led to divorce. It was the strong bond with her children, Gigi, Bella and Anwar, that provided her greatest motivation to fight through the darkest days of her life. Hers is an emotional narrative and all-important read for anyone unseated by an unexpected catastrophe. With candor, authenticity and an unwavering inner strength, Yolanda reveals intimate details of her journey crisscrossing the world to find answers for herself and two of her children who suffer from Lyme and shares her tireless research into eastern and western medicine. Believe Me is an inspiring lesson in the importance of having courage and hope, even in those moments when you think you can’t go on.
Author: Janet Cardiff
Publisher: London : Artangel
ISBN: 9781902201078
Category : Art
Languages : en
Pages : 71
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Book Description
This book documents Janet Cardiff's 1999 audio project, The Missing voice (Case Study B), and includes the full audio CD as well as images from this exploration of London's inner city. Part urban guide, part fiction, part film noir, her audio walk entwines the listener in a narrative that shifts through time and space. Intimate, even conspirational, Cardiff has created a psychologically absorbing experience for an audience of one at a time. You find yourself transported back in time. What was that sound? Who is speaking to you? Where does reality end, and what's imagined begin? Also included is an extended essay analyzing the artist's career to date. Born in 1957, in Brussels, Canada, Cardiff works and lives in Alberta and has shown internationally in, among others, London, New York, Berlin, and Vienna. Her work has been included in significant group exhibitions, notably Skulptur Projekte Munster, 1997; Present Tense: Nine Artists in the Nineties, at San Francisco Museum of Modern Art; the 1999 Carnegie International; and the Museum as Muse at New York's Museum of Modern Art.
