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Author: Maria J. Kefalas
Publisher: Beacon Press
ISBN: 0807040266
Category : Biography & Autobiography
Languages : en
Pages : 202
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Book Description
The inspiring story of a mother who took unimaginable tragedy and used her grief as a force to do good by transforming the lives of others. When Maria Kefalas’s daughter Calliope was diagnosed with a degenerative, uncurable genetic disease, the last thing Maria expected to discover in herself was a superpower. She and her husband, Pat, were head over heels in love with their youngest daughter, whose spirit, dancing eyes, and appetite for life captured the best of each of them. When they learned that Cal had MLD (metachromatic leukodystrophy), their world was shattered. But as she spent time listening to and learning from Cal, Maria developed the superpower of grief. It made her a fearless warrior for her daughter. And it gave her voice a bell-like clarity—poignant and funny all at once. This superpower of grief also revealed a miracle—not the conventional sort that fuels the prayers of friends and strangers but a realization that, in order to save themselves, Maria and Pat would need to find a way to save others. And so, with their two older children, they set out to raise money so that they, in their son PJ’s words, could “find a cure for Cal’s disease.” They had no way of knowing that a research team in Italy was closing in on an effective gene therapy for MLD. Though the therapy came too late to help Cal, this news would be the start of an unexpected journey that would introduce Maria and her family to world-famous scientists, brilliant doctors, biotech CEOs, a Hall of Fame NFL quarterback, and a wise nun, and it would also involve selling 50 thousand cupcakes. They would travel to the FDA, the NIH, and the halls of Congress in search of a cure that would never save their child. And their lives would become inextricably intertwined with the families of 13 children whose lives would be transformed by the biggest medical breakthrough in a generation. A memoir about heartbreak that is also about joy, Harnessing Grief is both unsparing and generous. Steeped in love, it is a story about possibility.
Author: Maria J. Kefalas
Publisher: Beacon Press
ISBN: 0807040266
Category : Biography & Autobiography
Languages : en
Pages : 202
Get Book Here
Book Description
The inspiring story of a mother who took unimaginable tragedy and used her grief as a force to do good by transforming the lives of others. When Maria Kefalas’s daughter Calliope was diagnosed with a degenerative, uncurable genetic disease, the last thing Maria expected to discover in herself was a superpower. She and her husband, Pat, were head over heels in love with their youngest daughter, whose spirit, dancing eyes, and appetite for life captured the best of each of them. When they learned that Cal had MLD (metachromatic leukodystrophy), their world was shattered. But as she spent time listening to and learning from Cal, Maria developed the superpower of grief. It made her a fearless warrior for her daughter. And it gave her voice a bell-like clarity—poignant and funny all at once. This superpower of grief also revealed a miracle—not the conventional sort that fuels the prayers of friends and strangers but a realization that, in order to save themselves, Maria and Pat would need to find a way to save others. And so, with their two older children, they set out to raise money so that they, in their son PJ’s words, could “find a cure for Cal’s disease.” They had no way of knowing that a research team in Italy was closing in on an effective gene therapy for MLD. Though the therapy came too late to help Cal, this news would be the start of an unexpected journey that would introduce Maria and her family to world-famous scientists, brilliant doctors, biotech CEOs, a Hall of Fame NFL quarterback, and a wise nun, and it would also involve selling 50 thousand cupcakes. They would travel to the FDA, the NIH, and the halls of Congress in search of a cure that would never save their child. And their lives would become inextricably intertwined with the families of 13 children whose lives would be transformed by the biggest medical breakthrough in a generation. A memoir about heartbreak that is also about joy, Harnessing Grief is both unsparing and generous. Steeped in love, it is a story about possibility.
Author: Julie Potter
Publisher:
ISBN: 9781950328147
Category :
Languages : en
Pages : 108
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Book Description
Author: Fiona Marshall
Publisher: Sheldon Press
ISBN: 1529352517
Category : Self-Help
Languages : en
Pages : 175
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Book Description
The death of a parent brings a special kind of grief. When a parent dies, we lose a unique connection with our roots, our past, our identity and our childhood - and we are forced to confront our own mortality. Often the practicalities of bereavement take over, leaving us unable to focus on the complex realities of this loss, or platitudes and easy answers are proferred, distracting us from the grieving process. The work of grief, in fact, can take years and may change our view of life profoundly. Losing a Parent looks at how we may find meaning in what has happened. It covers both terminal illness and sudden death, helps you to navigate feelings of abandonment, and to understand the new family dynamics after loss. It will show you how, where and when to seek further support and offer you the reassurance you need to actually get on with your life after this difficult and painful time.
Author: Andrew Wommack
Publisher: Destiny Image Publishers
ISBN: 1680313924
Category : Religion
Languages : en
Pages : 176
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Book Description
Emotions Are: Off the top of your head, you could probably think of times when you've been very emotional and lost control at the slightest set back or challenge. You then had to come back and apologize for how your emotions overtook you. NO MORE! Harnessing Your Emotions teaches us how to take responsibility for our emotions and...
Author: Andrew Wommack
Publisher: Destiny Image Publishers
ISBN: 1680314017
Category : Religion
Languages : en
Pages : 49
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Book Description
Difficult situations have a way of revealing the heart. Extreme financial pressure, a broken family relationship, or the death of a loved one may be a crisis to one person, while to another, an opportunity to prove the power of God's Word. What's the difference? That's the question Andrew will answer in this book. He speaks straight...
Author: Alan D Wolfelt
Publisher: Companion Press
ISBN: 1617220884
Category : Self-Help
Languages : en
Pages : 128
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Book Description
With compassionate insight, this handbook helps those in mourning through what can be the hardest time of year—the holiday season. Mourners will better understand their complex emotions after reading about such topics as honoring thoughts and feelings, creating new traditions, finding ways to de-stress, and incorporating healing rituals into the holiday season. This book's practical wisdom also covers issues such as decision-making during the holidays and coping with the blending of mourning and celebration. All of the answers and advice in this guide are provided in the popular 100 ideas format that features one idea per page, allowing readers to fully absorb each suggestion.
Author: Breeshia Wade
Publisher: North Atlantic Books
ISBN: 1623175526
Category : Social Science
Languages : en
Pages : 194
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Book Description
Typically, when we reference grief work in relation to anti-Blackness, people think about the grief experienced by those oppressed by white supremacy. But Breeshia Wade encourages those who are not Black to consider how their own unexplored grief amplifies the suffering of Black people. Most of us understand grief as sorrow experienced after a loss—the death of a loved one, the end of a relationship, or a change in life circumstance. Breeshia Wade approaches grief as something that is bigger than what's already happened to us—as something that is connected to what we fear, what we love, and what we aspire toward. Drawing on stories from her own life as a Black woman and from the people she has midwifed through the end of life, she connects sorrow not only to specific incidents but also to the ongoing trauma that is part and parcel of systemic oppression. Wade reimagines our relationship to power, accountability, and boundaries and points to the long-term work we must all do in order to address systemic trauma perpetuated within our interpersonal relationships. Each of us has a moral obligation to attend to our own grief so that we can responsibly engage with others. Wade elucidates grief in every aspect of our lives, providing a map back to ourselves and allowing the reader to heal their innate wholeness.
Author: Patrick J. Carr
Publisher: Beacon Press
ISBN: 0807042390
Category : Social Science
Languages : en
Pages : 175
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Book Description
Two sociologists reveal how small towns in Middle America are exporting their most precious resource—young people—and share what can be done to save these dwindling communities In 2001, with funding from the MacArthur Foundation, sociologists Patrick J. Carr and Maria J. Kefalas moved to Iowa to understand the rural brain drain and the exodus of young people from America’s countryside. They met and followed working-class “stayers”; ambitious and college-bound “achievers”; “seekers,” who head off to war to see what the world beyond offers; and “returners,” who eventually circle back to their hometowns. What surprised them most was that adults in the community were playing a pivotal part in the town’s decline by pushing the best and brightest young people to leave. In a timely, new afterword, Carr and Kefalas address the question “so what can be done to save our communities?” They profile the efforts of dedicated community leaders actively resisting the hollowing out of Middle America. These individuals have creatively engaged small town youth—stayers and returners, seekers and achievers—and have implemented a variety of programs to combat the rural brain drain. These stories of civic engagement will certainly inspire and encourage readers struggling to defend their communities.
Author: Michael J. Mauboussin
Publisher: Harvard Business Review Press
ISBN: 1422155544
Category : Business & Economics
Languages : en
Pages : 177
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Book Description
No matter your field, industry, or specialty, as a leader you make a series of crucial decisions every single day. And the harsh truth is that the majority of decisions—no matter how good the intentions behind them—are mismanaged, resulting in a huge toll on organizations, the people they employ, and even the people they serve. So why is it so hard to make sound decisions? In Think Twice, now in paperback, Michael Mauboussin argues that we often fall victim to simplified mental routines that prevent us from coping with the complex realities inherent in important judgment calls. Yet these cognitive errors are preventable. In this engaging book, Mauboussin shows us how to recognize and avoid common mental missteps. These include misunderstanding cause-and-effect linkages, not considering enough alternative possibilities in making a decision, and relying too much on experts. Through vivid stories, the author presents memorable rules for avoiding each error and explains how to recognize when you should “think twice”—questioning your reasoning and adopting decision-making strategies that are far more effective, even if they seem counterintuitive. Armed with this awareness, you'll soon begin making sounder judgment calls that benefit (rather than hurt) your organization.
Author: Claire Bidwell Smith
Publisher: Da Capo Lifelong Books
ISBN: 0738234761
Category : Self-Help
Languages : en
Pages : 249
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Book Description
With this groundbreaking book, discover the critical connections between anxiety and grief—and learn practical strategies for healing, based on the Kübler-Ross stages model. If you're suffering from anxiety but not sure why, or if you're struggling with loss and looking for solace, Anxiety: The Missing Stage of Grief offers help and answers. As grief expert Claire Bidwell Smith discovered in her own life—and in her practice with her therapy clients—significant loss and unresolved grief are primary underpinnings of anxiety. Using research and real life stories, Smith breaks down the physiology of anxiety, providing a concrete explanation that will help you heal. Starting with the basics questions—“What is anxiety?” and “What is grief?” and moving to concrete approaches such as making amends, taking charge, and retraining your brain, Anxiety takes a big step beyond Elisabeth Kübler-Ross's widely accepted five stages to unpack everything from our age-old fears about mortality to the bare vulnerability a loss can make us feel. With concrete tools and coping strategies for panic attacks, getting a handle on anxious thoughts, and more, Smith bridges these two emotions in a way that is deeply empathetic and profoundly practical.
