Growing Up with a Chronic Disease

Growing Up with a Chronic Disease PDF Author: Christine Eiser
Publisher: Jessica Kingsley Publishers
ISBN: 9781853021688
Category : Psychology
Languages : en
Pages : 260

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Book Description
This book, drawing on theoretical and practical sources, acknowledges the potential for distress involved in caring for a sick child but also emphasizes the coping resources and skills that can be, and frequently are, adopted by families.

Growing Up with a Chronic Disease

Growing Up with a Chronic Disease PDF Author: Christine Eiser
Publisher: Jessica Kingsley Publishers
ISBN: 9781853021688
Category : Psychology
Languages : en
Pages : 260

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Book Description
This book, drawing on theoretical and practical sources, acknowledges the potential for distress involved in caring for a sick child but also emphasizes the coping resources and skills that can be, and frequently are, adopted by families.

Tackling Chronic Disease in Europe

Tackling Chronic Disease in Europe PDF Author: Reinhard Busse
Publisher: WHO Regional Office Europe
ISBN: 9289041927
Category : Medical
Languages : en
Pages : 127

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Book Description
Chronic conditions and diseases are the leading cause of mortality and morbidity in Europe, accounting for 86% of total premature deaths, and research suggests that complex conditions such as diabetes and depression will impose an even greater health burden in the future - and not only for the rich and elderly in high-income countries, but increasingly for the poor as well as low- and middle-income countries. The epidemiologic and economic analyses in the first part of the book suggest that policy-makers should make chronic disease a priority. This book highlights the issues and focuses on the strategies and interventions that policy-makers have at their disposal to tackle this increasing challenge. Strategic discussed in the second part of this volume include (1) prevention and early detection, (2) new provider qualifications (e.g. nurse practitioners) and settings, (3) disease management programmes and (4) integrated care models. But choosing the right strategies will be difficult, particularly given the limited evidence on effectiveness and cost-effectiveness. In the third part, the book therefore outlines and discusses institutional and organizational challenges for policy-makers and managers: (1) stimulating the development of new effective pharmaceuticals and medical devices, (2) designing appropriate financial incentives, (3) improving coordination, (4) using information and communication technology, and (5) ensuring evaluation. To tackle these challenges successfully, key policy recommendations are made.

Shadow Child

Shadow Child PDF Author: Randall S. Beach
Publisher: Outskirts Press
ISBN: 9781478782025
Category : Biography & Autobiography
Languages : en
Pages : 166

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Book Description
A story of the impact of childhood chronic disease on siblings and families. Each year, thousands of families are faced with the specter of childhood chronic disease. Despite often being labeled as "lucky ones," childhood chronic diseases take a severe toll on the healthy brothers and sisters of the sick child. Feelings of fear, jealousy, resentment and extraordinary responsibility are common among such healthy siblings. These children and young adults can feel emotionally neglected within the family structure. Shadow Child explores all of these impacts in the context of the author's relationship with his younger brother. Shadow Child is the story of the author's personal experience as a healthy sibling of a brother inflicted with Type 1 Diabetes when he was four years old (preceded by Juvenile Rheumatoid Arthritis when he was two). The book focuses on the impact that chronic diseases such as diabetes have on the families of the inflicted child, and explores how various interfamily relationships change due to the introduction of chronic disease.

When Your Child Has a Chronic Medical Illness

When Your Child Has a Chronic Medical Illness PDF Author: Frank J. Sileo
Publisher: American Psychological Association (APA)
ISBN: 9781433833816
Category : Family & Relationships
Languages : en
Pages : 419

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Book Description
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you're focused on ensuring your child gets the best possible treatments for their symptoms, it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Life Disrupted

Life Disrupted PDF Author: Laurie Edwards
Publisher: Bloomsbury Publishing USA
ISBN: 0802779735
Category : Family & Relationships
Languages : en
Pages : 288

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Book Description
Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals. Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.

Childhood Disrupted

Childhood Disrupted PDF Author: Donna Jackson Nakazawa
Publisher: Simon and Schuster
ISBN: 1476748365
Category : Family & Relationships
Languages : en
Pages : 304

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Book Description
An examination of the link between Adverse Childhood Events (ACE's) and adult illnesses.

The Handbook of Salutogenesis

The Handbook of Salutogenesis PDF Author: Maurice B. Mittelmark
Publisher: Springer Nature
ISBN: 3030795152
Category : Medical
Languages : en
Pages : 634

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Book Description
This open access book is a thorough update and expansion of the 2017 edition of The Handbook of Salutogenesis, responding to the rapidly growing salutogenesis research and application arena. Revised and updated from the first edition are background and historical chapters that trace the development of the salutogenic model of health and flesh out the central concepts, most notably generalized resistance resources and the sense of coherence that differentiate salutogenesis from pathogenesis. From there, experts describe a range of real-world applications within and outside health contexts. Many new chapters emphasize intervention research findings. Readers will find numerous practical examples of how to implement salutogenesis to enhance the health and well-being of families, infants and young children, adolescents, unemployed young people, pre-retirement adults, and older people. A dedicated section addresses how salutogenesis helps tackle vulnerability, with chapters on at-risk children, migrants, prisoners, emergency workers, and disaster-stricken communities. Wide-ranging coverage includes new topics beyond health, like intergroup conflict, politics and policy-making, and architecture. The book also focuses on applying salutogenesis in birth and neonatal care clinics, hospitals and primary care, schools and universities, workplaces, and towns and cities. A special section focuses on developments in salutogenesis methods and theory. With its comprehensive coverage, The Handbook of Salutogenesis, 2nd Edition, is the standard reference for researchers, practitioners, and health policy-makers who wish to have a thorough grounding in the topic. It is also written to support post-graduate education courses and self-study in public health, nursing, psychology, medicine, and social sciences.

The Hurried Child

The Hurried Child PDF Author: David Elkind
Publisher: ReadHowYouWant.com
ISBN: 1458777871
Category : Family & Relationships
Languages : en
Pages : 426

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Book Description
With the first edition of The Hurried Child, David Elkind emerged as the voice of parenting reason, calling our attention to the crippling effects of hurrying our children through life. He showed that by blurring the boundaries of what is age appropriate, by expecting--or imposing--too much too soon, we force our kids to grow up too fast, to mimic adult sophistication while secretly yearning for innocence. In the more than two decades since this book first appeared, new generations of parents have inadvertently stepped up the assault on childhood, in the media, in schools, and at home. In the third edition of this classic (2001), Dr. Elkind provided a detailed, up-to-the-minute look at the Internet, classroom culture, school violence, movies, television, and a growing societal incivility to show parents and teachers where hurrying occurs and why. And as before, he offered parents and teachers insight, advice, and hope for encouraging healthy development while protecting the joy and freedom of childhood. In this twenty-fifth anniversary edition of the book, Dr. Elkind delivers important new commentary to put a quarter century of trends and change into perspective for parents today.

Development in Adolescence

Development in Adolescence PDF Author: W. Everaerd
Publisher: Springer Science & Business Media
ISBN: 9780898385816
Category : Medical
Languages : en
Pages : 278

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Book Description
Depending on the definition of this concept that is adopted, adolescence is the narrow threshold or a vast no-man's land that separates adulthood from childhood. In one -physica1ist- view, adolescence begins when secondary sex characters become noticeable and ends when they are fully developed. In another -socio1ogica1- view, adolescence ends when social independence has been gained. It may easily take many years more to span the interval between those two events. In this collection of papers by specialists from various disciplines, physical, psychological and social aspects of adolescence are considered. The book originates from a postgraduate course for medical practitioners, who deal with adolescents, but the range of the papers is such that we hope it may be of value to a much wider readership, including educators and all who are concerned with adolescents. The course was entitled: 'Adolescence: psychological, social and biological aspects', and was held in Leiden in November 1981. It was the fourth in a series of Boerhaave Courses instigated by the Dutch Growth Foundation of available. which a published record has now become Previous titles are 'Somatic growth of the child' (1966), 'De samenstel1ing van het mense1ijk 1ichaam' (1968) (=Human body composition), and 'Normal and abnormal development of brain and behaviour' (1971). VI The detailed programme of the course was planned by Dr. F.J. Bekker, Prof. Dr. J.L. van den Brande, Prof. Dr. W. Everaerd, Prof. A.Th. Schweizer and Prof. Dr. J.J. van der Werff ten Bosch.

Living Well with Chronic Illness

Living Well with Chronic Illness PDF Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309221277
Category : Medical
Languages : en
Pages : 350

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Book Description
In the United States, chronic diseases currently account for 70 percent of all deaths, and close to 48 million Americans report a disability related to a chronic condition. Today, about one in four Americans have multiple diseases and the prevalence and burden of chronic disease in the elderly and racial/ethnic minorities are notably disproportionate. Chronic disease has now emerged as a major public health problem and it threatens not only population health, but our social and economic welfare. Living Well with Chronic Disease identifies the population-based public health actions that can help reduce disability and improve functioning and quality of life among individuals who are at risk of developing a chronic disease and those with one or more diseases. The book recommends that all major federally funded programmatic and research initiatives in health include an evaluation on health-related quality of life and functional status. Also, the book recommends increasing support for implementation research on how to disseminate effective longterm lifestyle interventions in community-based settings that improve living well with chronic disease. Living Well with Chronic Disease uses three frameworks and considers diseases such as heart disease and stroke, diabetes, depression, and respiratory problems. The book's recommendations will inform policy makers concerned with health reform in public- and private-sectors and also managers of communitybased and public-health intervention programs, private and public research funders, and patients living with one or more chronic conditions.