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Author: Sandra M. Sufian
Publisher: University of Chicago Press
ISBN: 022680867X
Category : History
Languages : en
Pages : 390
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Book Description
The first social history of disability and difference in American adoption, from the Progressive Era to the end of the twentieth century. Disability and child welfare, together and apart, are major concerns in American society. Today, about 125,000 children in foster care are eligible and waiting for adoption, and while many children wait more than two years to be adopted, children with disabilities wait even longer. In Familial Fitness, Sandra M. Sufian uncovers how disability operates as a fundamental category in the making of the American family, tracing major shifts in policy, practice, and attitudes about the adoptability of disabled children over the course of the twentieth century. Chronicling the long, complex history of disability, Familial Fitness explores how notions and practices of adoption have—and haven’t—accommodated disability, and how the language of risk enters into that complicated relationship. We see how the field of adoption moved from widely excluding children with disabilities in the early twentieth century to partially including them at its close. As Sufian traces this historical process, she examines the forces that shaped, and continue to shape, access to the social institution of family and invites readers to rethink the meaning of family itself.
Author: Sandra M. Sufian
Publisher: University of Chicago Press
ISBN: 022680867X
Category : History
Languages : en
Pages : 390
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Book Description
The first social history of disability and difference in American adoption, from the Progressive Era to the end of the twentieth century. Disability and child welfare, together and apart, are major concerns in American society. Today, about 125,000 children in foster care are eligible and waiting for adoption, and while many children wait more than two years to be adopted, children with disabilities wait even longer. In Familial Fitness, Sandra M. Sufian uncovers how disability operates as a fundamental category in the making of the American family, tracing major shifts in policy, practice, and attitudes about the adoptability of disabled children over the course of the twentieth century. Chronicling the long, complex history of disability, Familial Fitness explores how notions and practices of adoption have—and haven’t—accommodated disability, and how the language of risk enters into that complicated relationship. We see how the field of adoption moved from widely excluding children with disabilities in the early twentieth century to partially including them at its close. As Sufian traces this historical process, she examines the forces that shaped, and continue to shape, access to the social institution of family and invites readers to rethink the meaning of family itself.
Author: Denis P. Hogan
Publisher: Russell Sage Foundation
ISBN: 1610447735
Category : Social Science
Languages : en
Pages : 132
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Book Description
The Americans with Disabilities Act (ADA) and other national policies are designed to ensure the greatest possible inclusion of people with disabilities in all aspects of American life. But as a matter of national policy we still place the lion's share of responsibility for raising children with disabilities on their families. While this strategy largely works, sociologist Dennis Hogan maintains, the reality is that family financial security, the parents' relationship, and the needs of other children in the home all can be stretched to the limit. In Family Consequences of Children's Disabilities Hogan delves inside the experiences of these families and examines the financial and emotional costs of raising a child with a disability. The book examines the challenges families of children with disabilities encounter and how these challenges impact family life. The first comprehensive account of the families of children with disabilities, Family Consequences of Children's Disabilities employs data culled from seven national surveys and interviews with twenty-four mothers of children with disabilities, asking them questions about their family life, social supports, and how other children in the home were faring. Not surprisingly, Hogan finds that couples who are together when their child is born have a higher likelihood of divorcing than other parents do. The potential for financial insecurity contributes to this anxiety, especially as many parents must strike a careful balance between employment and caregiving. Mothers are less likely to have paid employment, and the financial burden on single parents can be devastating. One-third of children with disabilities live in single-parent households, and nearly 30 percent of families raising a child with a disability live in poverty. Because of the high levels of stress these families incur, support networks are crucial. Grandparents are often a source of support. Siblings can also assist with personal care and, consequently, tend to develop more helpful attitudes, be more inclusive of others, and be more tolerant. But these siblings are at risk for their own health problems: they are three times more likely to experience poor health than children in homes where there is no child with a disability. Yet this book also shows that raising a child with a disability includes unexpected rewards—the families tend to be closer, and they engage in more shared activities such as games, television, and meals. Family Consequences of Children's Disabilities offers access to a world many never see or prefer to ignore. The book provides vital information on effective treatment, rehabilitation, and enablement to medical professionals, educators, social workers, and lawmakers. This compelling book demonstrates that every mirror has two faces: raising a child with a disability can be difficult, but it can also offer expanded understanding. A Volume in the American Sociological Association's Rose Series in Sociology
Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309104726
Category : Medical
Languages : en
Pages : 619
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Book Description
The future of disability in America will depend on how well the U.S. prepares for and manages the demographic, fiscal, and technological developments that will unfold during the next two to three decades. Building upon two prior studies from the Institute of Medicine (the 1991 Institute of Medicine's report Disability in America and the 1997 report Enabling America), The Future of Disability in America examines both progress and concerns about continuing barriers that limit the independence, productivity, and participation in community life of people with disabilities. This book offers a comprehensive look at a wide range of issues, including the prevalence of disability across the lifespan; disability trends the role of assistive technology; barriers posed by health care and other facilities with inaccessible buildings, equipment, and information formats; the needs of young people moving from pediatric to adult health care and of adults experiencing premature aging and secondary health problems; selected issues in health care financing (e.g., risk adjusting payments to health plans, coverage of assistive technology); and the organizing and financing of disability-related research. The Future of Disability in America is an assessment of both principles and scientific evidence for disability policies and services. This book's recommendations propose steps to eliminate barriers and strengthen the evidence base for future public and private actions to reduce the impact of disability on individuals, families, and society.
Author: Craig R. Fiedler
Publisher: Prentice Hall
ISBN:
Category : Education
Languages : en
Pages : 372
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Book Description
Parents and Families of Children with Disabilities: Providing Effective School Based Support Services provides educators and paraprofessionals with the necessary motivation, research-based practices, skills, and resources to collaborate effectively with families to develop family-centered schools. The book challenges educators to rethink the traditional roles and responsibilities of public schools, training teachers and paraprofessionals how to achieve effective stress management, child advocacy, and transition planning, as well as how to provide academic intervention for the families of children with disabilities and the diverse communities that surround them. Highlights of this book include: Communication and Collaboration Tips provide practical suggestions and examples to professionals that help foster partnership and trust A groundbreaking chapter on Providing Supports for Siblings of children with disabilities (Chapter 2) A chapter on providing Educational Support Services to Assist Parents and Families in Designing and Implementing Positive Behavior Interventions (Chapter 9) A realistic focus on the personal stories of the families of students with disabilities through case study Perspectives and a concluding chapter on Family Stories Illustrating School Based Support A wide variety of pedagogical features in every chapter, including: Learning Objectives, chapter opening Vignettes revisited again at the chapter conclusion, Summary Statements, Questions for Discussion, Reflection Activities, and annotated web link Resources
Author: Mitchell P. LaPlante
Publisher:
ISBN:
Category : Families
Languages : en
Pages : 48
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Book Description
Author: Victoria I. Puig
Publisher: Routledge
ISBN: 0429859856
Category : Education
Languages : en
Pages : 206
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Book Description
Conversations with Families of Children with Disabilities creates a space for diverse families of children with disabilities to share their stories with pre-service and in-service teachers. Specifically designed for professionals preparing to work with families of children with disabilities, this text invites the reader to listen in as families reflect on their personal journeys in conversation with the authors. This powerful book helps educators develop a deeper understanding of families and enhance their capacity for authentic partnerships.
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
ISBN: 0309376882
Category : Medical
Languages : en
Pages : 397
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Book Description
Children living in poverty are more likely to have mental health problems, and their conditions are more likely to be severe. Of the approximately 1.3 million children who were recipients of Supplemental Security Income (SSI) disability benefits in 2013, about 50% were disabled primarily due to a mental disorder. An increase in the number of children who are recipients of SSI benefits due to mental disorders has been observed through several decades of the program beginning in 1985 and continuing through 2010. Nevertheless, less than 1% of children in the United States are recipients of SSI disability benefits for a mental disorder. At the request of the Social Security Administration, Mental Disorders and Disability Among Low-Income Children compares national trends in the number of children with mental disorders with the trends in the number of children receiving benefits from the SSI program, and describes the possible factors that may contribute to any differences between the two groups. This report provides an overview of the current status of the diagnosis and treatment of mental disorders, and the levels of impairment in the U.S. population under age 18. The report focuses on 6 mental disorders, chosen due to their prevalence and the severity of disability attributed to those disorders within the SSI disability program: attention-deficit/hyperactivity disorder, oppositional defiant disorder/conduct disorder, autism spectrum disorder, intellectual disability, learning disabilities, and mood disorders. While this report is not a comprehensive discussion of these disorders, Mental Disorders and Disability Among Low-Income Children provides the best currently available information regarding demographics, diagnosis, treatment, and expectations for the disorder time course - both the natural course and under treatment.
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
ISBN: 0309388570
Category : Social Science
Languages : en
Pages : 525
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Book Description
Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Author: Dave Matheis
Publisher: Advocado Press
ISBN: 9780972118941
Category :
Languages : en
Pages : 194
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Book Description
"A Celebration of Family: Stories of Parents with Disabilities" contains the stories of thirty families. In every family, one or both parents have disabilities: physical, mental, sensory, and/or intellectual. The stories illustrate the infinite variety of the American family. It is that variety that gives the family both its strength and its beauty. Like individuals, no two families are the same.In the course of discussing their family experiences, the parents cover a number of topics. Most stories concern having children through birth, but there are also stories about fostering and adopting. Four stories concern single parenthood. Many parents talk about adaptations and accommodations they made to be effective parents, but even more talk about how wonderfully adaptive their children were to their disabilities. Many parents talk about individual discrimination and societal bias they have faced. A number of stories highlight the decision-making process to have children when the possibility exists of passing on an inheritable condition. Parents are included that had children before they acquired a disability and they relate how that acquired disability affected their family. Several stories discuss legal and policy issues around parenting with a disability. The stories contain humor, compassion, and gratitude. They are proof that one thing you can get any parent to talk about is their children. As one parent in the book puts it, "if you suck as a person, you are going to suck as a parent, whether you have a disability or not. If you are compassionate and caring and nurturing as a person, you will be like that as a parent, too.
Author: Press Barnhill
Publisher:
ISBN: 9780981935782
Category : Family & Relationships
Languages : en
Pages : 224
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Book Description
"I simply could not put this book down! It is very well written and makes me feel like I am sitting in Press and Gena's living room talking about their experiences. I love the Chapter Take Aways and the stories from other families. Readers will feel inspired with new direction. I only wish this was available years ago as our family began our journey caring for our son with autism." Didi Zaryczny Chairperson, disAbility Resource Network "As a parent of a disabled child, I find this book to be an immensely valuable resource. The Barnhills offer practical help for navigating the emotional and relational pitfalls common to those in our situation. Their advice is concrete, realistic, and encouraging." Andrew Dunks Pastor and father of a teenage son with brittle-bone disease
