Care Coordination for Children with Special Health Care Needs and Their Families in the New Millennium

Care Coordination for Children with Special Health Care Needs and Their Families in the New Millennium PDF Author: AMCHP Working Group on Care Coordination
Publisher:
ISBN:
Category : Child health services
Languages : en
Pages : 15

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Book Description


Caring for Children with Special Healthcare Needs and Their Families

Caring for Children with Special Healthcare Needs and Their Families PDF Author: Linda L. Eddy
Publisher: John Wiley & Sons
ISBN: 0813820820
Category : Medical
Languages : en
Pages : 272

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Book Description
Caring for Children with Special Healthcare Needs and Their Families: A Handbook for Healthcare Professionals provides a guide for addressing the challenges of providing optimal general and routine care for the special needs population. More than just caring for the patients, the text stresses the importance of caring for their families as well. The book begins with chapters on common aspects of this population, including physical or sensory disabilities and developmental and learning disabilities. Subsequent chapters expound on more specific topics related to communication, mobility, emotional issues, quality of life, and end-of-life. Caring for Children with Special Healthcare Needs and Their Families is a must-have book for family and pediatric nurse practitioners, registered nurses, healthcare technicians, physician assistants and social services professionals who see these patients regularly as part of their daily patient load.

Handbook of Children with Special Health Care Needs

Handbook of Children with Special Health Care Needs PDF Author: David Hollar
Publisher: Springer Science & Business Media
ISBN: 146142335X
Category : Medical
Languages : en
Pages : 443

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Book Description
Children with chronic conditions, developmental disorders, and birth defects represent a sizeable minority of American children—as many as one in five. Often their families have financial or other issues limiting their access to appropriate care, thus limiting their adult prospects as well. Compounding the problem, many valuable resources concerning this population are difficult to access although they may be critical to the researchers, practitioners, and policymakers creating standards for quality care and services. In response, the Handbook of Children with Special Health Care Needs assembles research, applied, and policy perspectives reflecting the range of children’s problems requiring special services. Widely studied conditions (e.g., communication disorders, substance abuse) and those receiving lesser attention (e.g., tuberculosis) are covered, as are emerging ideas such as the “medical home” concept of continuity of care. Its interdisciplinary outlook makes the Handbook of Children with Special Health Care Needs a vital, forward-looking text for developmental psychologists, pediatricians, early childhood and special education researchers and practitioners, disability researchers, policymakers, and advocates, and providers for children with special health care needs.

Pediatric Life Care Planning and Case Management

Pediatric Life Care Planning and Case Management PDF Author: Susan Riddick-Grisham
Publisher: CRC Press
ISBN: 0203508475
Category : Medical
Languages : en
Pages : 1010

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Book Description
The life care plan is a dynamic document that provides an organized plan for the current and future needs of individuals with chronic health care needs. It can serve as a roadmap for the families, caregivers, therapists, physicians, and others involved with the ongoing care of a special needs child. Pediatric Life Care Planning and Case Mana

A Critical Analysis of Care Coordination Strategies for Children with Special Health Care Needs

A Critical Analysis of Care Coordination Strategies for Children with Special Health Care Needs PDF Author: U. S. Department of Health and Human Services
Publisher: Createspace Independent Pub
ISBN: 9781490386263
Category : Medical
Languages : en
Pages : 44

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Book Description
The goal of this technical review is to examine critical issues of care coordination for children with special health care needs. It is intended to supplement the more comprehensive Evidence-based Practice Center (EPC) report on care coordination currently under preparation. Experts in the field such as Perrin and colleagues and Stein have described in detail the requirements for providing coordinated care for children with complex medical needs. In addition, professional organizations such as the American Academy of Pediatrics and a variety of advocacy groups and service programs for families with children with special health care needs have developed care coordination strategies and developed very useful guidance materials regarding this issue. These sources, while embracing general principles of care coordination that are relevant for all populations and age groups, emphasize those elements of care that are of particular importance for children with special health care needs. Although quite varied, they tend to be due to (1) the dependence of children on parents or other adult caretakers; (2) the distinct epidemiology of childhood and its implications for the organization of health services; (3) the developmental nature of child health problems and the need to link care with educational institutions; and (4) the special financial basis for child health and related services. The inherent dependence of children on adults acting on their behalf adds a level of complexity to care coordination efforts in that the facilitation, monitoring, and at times the enforcement of this proxy function must always be incorporated into coordinative programs for children. The most important distinctive characteristic of the epidemiology of childhood is that unlike in the elderly, serious chronic illness is relatively rare. This requires that specialized services for children with such disorders are heavily dependent on regional referral centers, programs that maintain the expertise, volume of patients, and resource commitment to address these serious but relatively rare disorders. The developmental nature of childhood implies that the problems and service needs of children will be highly dynamic over time and involve developmental support services, such as early intervention programs, as well as school-based interactions. Because children are the poorest segment of our population, poverty and means-tested public programs, such as Medicaid, are of particular concern in developing and evaluating care coordination efforts for children. In general, these efforts for improving the coordination of care for children with special health care needs have taken two forms: Specialized care coordination interventions for selected clinical populations. These include the use of case managers, the establishment of a medical home, or home care strategies. The structural organization of health care services. The dominant current approach is managed care. What has generally been lacking is an assessment of the evidence regarding the actual impact of care coordination efforts on outcomes for children with special health care needs. In response, this technical review is directed at the evaluative literature, those published reports that attempt to assess the experience of children with special health care needs and their families in response to purposeful care coordination efforts. Specifically, the technical review addresses the following objectives: 1. To identify and critically examine studies that empirically evaluate models of care coordination interventions for children with special health care needs. 2. To identify and critically examine studies that empirically evaluate the impact of managed care on children with special health care needs, particularly those enrolled in Medicaid. 3. To develop recommendations for future research and the evidence related to potential ameliorative action.

Pediatric Life Care Planning and Case Management

Pediatric Life Care Planning and Case Management PDF Author: Kate M. Grady
Publisher: CRC Press
ISBN: 1439803595
Category : Law
Languages : en
Pages : 1054

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Book Description
Pediatric Life Care Planning and Case Management provides a comprehensive and unique reference that goes beyond the clinical discussion to include legal and financial aspects, life expectancy data, and assistive technology. It also includes case samples of actual plans related to specific conditions. The book is divided into five parts: Normal Grow

Care coordination, family-centered care and functional ability in children with special health care needs in the United States

Care coordination, family-centered care and functional ability in children with special health care needs in the United States PDF Author: Madeline Marti-Morales
Publisher:
ISBN:
Category :
Languages : en
Pages : 0

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Caring for Children With Neurodevelopmental Disabilities and Their Families

Caring for Children With Neurodevelopmental Disabilities and Their Families PDF Author: Claudia Maria Vargas
Publisher: Routledge
ISBN: 1135626596
Category : Education
Languages : en
Pages : 394

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Book Description
Children with neurodevelopmental disabilities such as mental retardation or autism present multiple challenges to their families, health care providers, and teachers. Professionals consulted by desperate parents often see the problems from their own angle only and diagnosis and intervention efforts wind up fragmented and ineffective. This book presents a model multidisciplinary approach to care--family-centered and collaborative--that has proven effective in practice. A pillar of the approach is recognition of the importance of performing culturally competent assessment and adjusting service delivery so that is responsive to cultural differences. Detailed case stories illuminate the ways in which the approach can help children with different backgrounds and different disabilities. Most chapters include study questions, lists of resources, and glossaries to facilitate easy comprehension by professionals with different backgrounds--in special education, communication sciences, and disorders, clinical and counseling psychology, neuropsychology and psychiatry, social work, pediatrics--and program administrators as well as students, trainees and educated parents. Caring for Children With Neurodevelopmental Disabilities and Their Families constitutes a crucial new resource for all those professionally and personally concerned with these children.

Handbook of Special Education

Handbook of Special Education PDF Author: James M. Kauffman
Publisher: Routledge
ISBN: 113686962X
Category : Education
Languages : en
Pages : 807

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Book Description
Special education is now an established part of public education in the United States—by law and by custom. However, it is still widely misunderstood and continues to be dogged by controversies related to such things as categorization, grouping, assessment, placement, funding, instruction, and a variety of legal issues. The purpose of this 13-part, 57-chapter handbook is to help profile and bring greater clarity to this sprawling and growing field. To ensure consistency across the volume, chapter authors review and integrate existing research, identify strengths and weaknesses, note gaps in the literature, and discuss implications for practice and future research. Key features include: Comprehensive Coverage—Fifty-seven chapters cover all aspects of special education in the United States including cultural and international comparisons. Issues & Trends—In addition to synthesizing empirical findings and providing a critical analysis of the status and direction of current research, chapter authors discuss issues related to practice and reflect on trends in thinking. Categorical Chapters—In order to provide a comprehensive and comparative treatment of the twelve categorical chapters in section IV, chapter authors were asked to follow a consistent outline: Definition, Causal Factors, Identification, Behavioral Characteristics, Assessment, Educational Programming, and Trends and Issues. Expertise—Edited by two of the most accomplished scholars in special education, chapter authors include a carefully chosen mixture of established and rising young stars in the field. This book is an appropriate reference volume for anyone (researchers, scholars, graduate students, practitioners, policy makers, and parents) interested in the state of special education today: its research base, current issues and practices, and future trends. It is also appropriate as a textbook for graduate level courses in special education.

Primary Care of the Child with a Chronic Condition

Primary Care of the Child with a Chronic Condition PDF Author: Patricia Jackson Allen
Publisher:
ISBN:
Category : Medical
Languages : en
Pages : 842

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Book Description
Primary Care of the Child with a Chronic Condition, fourth edition by Patricia Jackson Allen, RN, MS, PNP, FAAN; and Judith A. Vessey, RN, PhD, MBA, DPNP, FAAN, supplies the necessary knowledge to provide comprehensive primary care to children with chronic conditions and their families. Book jacket.