Biobanks in Low- and Middle-Income Countries: Relevance, Setup and Management

Biobanks in Low- and Middle-Income Countries: Relevance, Setup and Management PDF Author: Karine Sargsyan
Publisher: Springer
ISBN: 9783030876395
Category : Science
Languages : en
Pages : 0

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Book Description
This book introduces the fundamentals of biobanking and guides through the practical planning thereof, with a special focus on the situation in low- and middle-income countries. On the example of the setup of a Ukrainian biobank the book discusses the main steps and aspects of successful biorepository implementation and management. Topics covered include collection, storage and shipping of samples, establishment of an IT system, development of a sustainability plan, and project and risk management. Furthermore, the importance of the formation of international biobanking societies such as the Ukraine Association of Biobanks is highlighted, and their main objectives and tasks are discussed. The book addresses life science and business professionals as well as national authorities who are interested in biobanking in general and in setting up a biobank in particular.

Biobanks in Low- and Middle-Income Countries: Relevance, Setup and Management

Biobanks in Low- and Middle-Income Countries: Relevance, Setup and Management PDF Author: Karine Sargsyan
Publisher: Springer
ISBN: 9783030876395
Category : Science
Languages : en
Pages : 0

Get Book Here

Book Description
This book introduces the fundamentals of biobanking and guides through the practical planning thereof, with a special focus on the situation in low- and middle-income countries. On the example of the setup of a Ukrainian biobank the book discusses the main steps and aspects of successful biorepository implementation and management. Topics covered include collection, storage and shipping of samples, establishment of an IT system, development of a sustainability plan, and project and risk management. Furthermore, the importance of the formation of international biobanking societies such as the Ukraine Association of Biobanks is highlighted, and their main objectives and tasks are discussed. The book addresses life science and business professionals as well as national authorities who are interested in biobanking in general and in setting up a biobank in particular.

Biobanks in Low- and Middle-Income Countries: Relevance, Setup and Management

Biobanks in Low- and Middle-Income Countries: Relevance, Setup and Management PDF Author: Karine Sargsyan
Publisher: Springer Nature
ISBN: 3030876373
Category : Science
Languages : en
Pages : 234

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Book Description
This book introduces the fundamentals of biobanking and guides through the practical planning thereof, with a special focus on the situation in low- and middle-income countries. On the example of the setup of a Ukrainian biobank the book discusses the main steps and aspects of successful biorepository implementation and management. Topics covered include collection, storage and shipping of samples, establishment of an IT system, development of a sustainability plan, and project and risk management. Furthermore, the importance of the formation of international biobanking societies such as the Ukraine Association of Biobanks is highlighted, and their main objectives and tasks are discussed. The book addresses life science and business professionals as well as national authorities who are interested in biobanking in general and in setting up a biobank in particular.

Technopolitcs

Technopolitcs PDF Author: Constantino Pereira Martins (Ed.)
Publisher: Editora Dialética
ISBN: 6527037384
Category : Computers
Languages : en
Pages : 425

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Book Description
Technopolitics is a follow-up book that intends to depart and expand the concept of Cyberpolitics to all the dimensions and effects of technology in our lives but placing politics at the center of debate and thought. Most investigations in the fields of Humanities have highlighted the impact of digitization and social virtualization and mapped the transition from the Industrial Revolution, and mass disciplinary society, to the digital revolution, telework and social atomism. The fusion of disruptive technologies is changing the fundamentals of our world almost roaming on its own towards a near future with unprecedented and unpredictable outcomes. This new technological reason implies a rupture and a paradigm shift in the radical transition from an instrumental reason (auxiliary) to an autonomous reason (essential). This means the impossibility of further sustaining the illusion of technological neutrality. Science, culture and technology appear to be merging and in combat simultaneously. And all fields of knowledge are alert to a main idea: how deep is technology shaping our societies and politics? Regardless of the outcome, an age of instability is also an age of challenges. In our era of uncertainty, and while our civilization moves forward toward a hyper-technological future, we should not forget to discuss and reflect on the values and ethics we would like to survive the ruin of time and to pass on to the next generations.

Biobanks in Low- and Middle-Income Countries: Relevance, Setup and Management

Biobanks in Low- and Middle-Income Countries: Relevance, Setup and Management PDF Author: Karine Sargsyan
Publisher:
ISBN: 9783030876388
Category :
Languages : en
Pages : 0

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Book Description
This book introduces the fundamentals of biobanking and guides through the practical planning thereof, with a special focus on the situation in low- and middle-income countries. On the example of the setup of a Ukrainian biobank the book discusses the main steps and aspects of successful biorepository implementation and management. Topics covered include collection, storage and shipping of samples, establishment of an IT system, development of a sustainability plan, and project and risk management. Furthermore, the importance of the formation of international biobanking societies such as the Ukraine Association of Biobanks is highlighted, and their main objectives and tasks are discussed. The book addresses life science and business professionals as well as national authorities who are interested in biobanking in general and in setting up a biobank in particular.

e-Services

e-Services PDF Author: Sam Goundar
Publisher: BoD – Books on Demand
ISBN: 178985508X
Category : Technology & Engineering
Languages : en
Pages : 198

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Book Description
The turn of the new millennium has brought with it an explosion of activity around electronic services (e-services) in the form of e-commerce, e-business, e-government, e-learning, and so on. The provision of all possible goods and services electronically via the Internet with the use of semantic web technologies has seen a paradigm shift from the traditional brick-and-mortar location-based services to the ubiquitous provision of goods and services online. An understanding of this paradigm shift and the fundamental properties of e-service composition is required in order to take full advantage of the paradigm. As such, this book provides comprehensive coverage and understanding of the use of e-services within the technological, business, management, and organizational domains. Chapters cover such topics as digitized learning, information and communication technology in sports, cloud computing for universities, and more. This book is a reference book for scholars, researchers, and practitioners looking to update their knowledge on methodologies, theoretical analyses, modeling, simulation, and empirical studies on e-services.

Digitalization of Medicine in Low- and Middle-Income Countries

Digitalization of Medicine in Low- and Middle-Income Countries PDF Author: Zisis Kozlakidis
Publisher: Springer Nature
ISBN: 3031623320
Category :
Languages : en
Pages : 280

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Book Description


International Ethical Guidelines for Health-Related Research Involving Humans

International Ethical Guidelines for Health-Related Research Involving Humans PDF Author: Council for International Organizations of Medical Sciences (CIOMS)
Publisher: World Health Organization
ISBN: 9789290360889
Category : Bioethics
Languages : en
Pages : 0

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Book Description
"In the new 2016 version of the ethical guidelines, CIOMS provides answers to a number of pressing issues in research ethics. The Council does so by stressing the need for research having scientific and social value, by providing special guidelines for health-related research in low-resource settings, by detailing the provisions for involving vulnerable groups in research and for describing under what conditions biological samples and health-related data can be used for research."--Page 4 de la couverture.

Registries for Evaluating Patient Outcomes

Registries for Evaluating Patient Outcomes PDF Author: Agency for Healthcare Research and Quality/AHRQ
Publisher: Government Printing Office
ISBN: 1587634333
Category : Medical
Languages : en
Pages : 385

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Book Description
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

Brain Banking

Brain Banking PDF Author:
Publisher: Elsevier
ISBN: 0444636420
Category : Medical
Languages : en
Pages : 448

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Book Description
Brain Banking, Volume 150, serves as the only book on the market offering comprehensive coverage of the functional realities of brain banking. It focuses on brain donor recruitment strategies, brain bank networks, ethical issues, brain dissection/tissue processing/tissue dissemination, neuropathological diagnosis, brain donor data, and techniques in brain tissue analysis. In accordance with massive initiatives, such as BRAIN and the EU Human Brain Project, abnormalities and potential therapeutic targets of neurological and psychiatric disorders need to be validated in human brain tissue, thus requiring substantial numbers of well characterized human brains of high tissue quality with neurological and psychiatric diseases. - Offers comprehensive coverage of the functional realities of brain banking, with a focus on brain donor recruitment strategies, brain bank networks, ethical issues, and more - Serves as a valuable resource for staff in existing brain banks by highlighting best practices - Enhances the sharing of expertise between existing banks and highlights a range of techniques applicable to banked tissue for neuroscience researchers - Authored by leaders from brain banks around the globe – the broadest, most expert coverage available

Ethics, Law and Governance of Biobanking

Ethics, Law and Governance of Biobanking PDF Author: Deborah Mascalzoni
Publisher: Springer
ISBN: 9401795738
Category : Medical
Languages : en
Pages : 275

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Book Description
Biobank research and genomic information are changing the way we look at health and medicine. Genomics challenges our values and has always been controversial and difficult to regulate. In the future lies the promise of tailored medical treatments and pharmacogenomics but the borders between medical research and clinical practice are becoming blurred. We see sequencing platforms for research that can have diagnostic value for patients. Clinical applications and research have been kept separate, but the blurring lines challenges existing regulations and ethical frameworks. Then how do we regulate it? This book contains an overview of the existing regulatory landscape for biobank research in the Western world and some critical chapters to show how regulations and ethical frameworks are developed and work. How should international sharing work? How design an ethical informed consent? An underlying critique: the regulatory systems are becoming increasingly complex and opaque. The international community is building systems that should respond to that. According to the authors in fact, it is time to turn the ship around. Biobank researchers have a moral responsibility to look at and assess their work in relation to the bigger picture: the shared norms and values of current society. Research ethics shouldn’t only be a matter of bioethicists writing guidelines that professionals have to follow. Ethics should be practiced through discourse and regulatory frameworks need to be part of that public discourse. Ethics review should be then not merely application of bureaucracy and a burden for researchers but an arena where researchers discuss their projects, receive advice and practice their ethics skills.