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Author: Lee Gutkind
Publisher: Underland Press
ISBN: 1937163059
Category : Family & Relationships
Languages : en
Pages : 303
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Book Description
What should medicine do when it can’t save your life? The modern healthcare system has become proficient at staving off death with aggressive interventions. And yet, eventually everyone dies—and although most Americans say they would prefer to die peacefully at home, more than half of all deaths take place in hospitals or health care facilities. At the End of Life—the latest collaborative book project between the Creative Nonfiction Foundation and the Jewish Healthcare Foundation—tackles this conundrum head on. Featuring twenty-two compelling personal-medical narratives, the collection explores death, dying and palliative care, and highlights current features, flaws and advances in the healthcare system. Here, a poet and former hospice worker reflects on death’s mysteries; a son wanders the halls of his mother’s nursing home, lost in the small absurdities of the place; a grief counselor struggles with losing his own grandfather; a medical intern traces the origins and meaning of time; a mother anguishes over her decision to turn off her daughter’s life support and allow her organs to be harvested; and a nurse remembers many of her former patients. These original, compelling personal narratives reveal the inner workings of hospitals, homes and hospices where patients, their doctors and their loved ones all battle to hang on—and to let go.
Author: Roi Livne
Publisher:
ISBN: 0674545176
Category : Medical
Languages : en
Pages : 361
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Book Description
Once defiant of death--or even in denial--many American families and health care professionals are embracing the notion that a life consumed by suffering may not be worth living. Sociologist Roi Livne documents the rise and effectiveness of hospice and palliative care, and the growing acceptance that less treatment may be better near the end of life.
Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309303133
Category : Medical
Languages : en
Pages : 470
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Book Description
For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
Author: Allan Kellehear
Publisher:
ISBN: 9780231182140
Category :
Languages : en
Pages : 224
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Book Description
This book is about how, when, and why our dead visit us. Allan Kellehear--a medical sociologist and expert on death, dying, and palliative care--has gathered data and conducted studies on deathbed visions across cultures.
Author: Dr. Jessica Nutik Zitter, M.D.
Publisher: Penguin
ISBN: 0525533419
Category : Medical
Languages : en
Pages : 353
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Book Description
For readers of Being Mortal and Modern Death, an ICU and Palliative Care specialist offers a framework for a better way to exit life that will change our medical culture at the deepest level In medical school, no one teaches you how to let a patient die. Jessica Zitter became a doctor because she wanted to be a hero. She elected to specialize in critical care—to become an ICU physician—and imagined herself swooping in to rescue patients from the brink of death. But then during her first code she found herself cracking the ribs of a patient so old and frail it was unimaginable he would ever come back to life. She began to question her choice. Extreme Measures charts Zitter’s journey from wanting to be one kind of hero to becoming another—a doctor who prioritizes the patient’s values and preferences in an environment where the default choice is the extreme use of technology. In our current medical culture, the old and the ill are put on what she terms the End-of-Life Conveyor belt. They are intubated, catheterized, and even shelved away in care facilities to suffer their final days alone, confused, and often in pain. In her work Zitter has learned what patients fear more than death itself: the prospect of dying badly. She builds bridges between patients and caregivers, formulates plans to allay patients’ pain and anxiety, and enlists the support of loved ones so that life can end well, even beautifully. Filled with rich patient stories that make a compelling medical narrative, Extreme Measures enlarges the national conversation as it thoughtfully and compassionately examines an experience that defines being human.
Author: Lee Gutkind
Publisher: Underland Press
ISBN: 1937163059
Category : Family & Relationships
Languages : en
Pages : 303
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Book Description
What should medicine do when it can’t save your life? The modern healthcare system has become proficient at staving off death with aggressive interventions. And yet, eventually everyone dies—and although most Americans say they would prefer to die peacefully at home, more than half of all deaths take place in hospitals or health care facilities. At the End of Life—the latest collaborative book project between the Creative Nonfiction Foundation and the Jewish Healthcare Foundation—tackles this conundrum head on. Featuring twenty-two compelling personal-medical narratives, the collection explores death, dying and palliative care, and highlights current features, flaws and advances in the healthcare system. Here, a poet and former hospice worker reflects on death’s mysteries; a son wanders the halls of his mother’s nursing home, lost in the small absurdities of the place; a grief counselor struggles with losing his own grandfather; a medical intern traces the origins and meaning of time; a mother anguishes over her decision to turn off her daughter’s life support and allow her organs to be harvested; and a nurse remembers many of her former patients. These original, compelling personal narratives reveal the inner workings of hospitals, homes and hospices where patients, their doctors and their loved ones all battle to hang on—and to let go.
Author: Joseph T. Batuello
Publisher: Virtual Bookworm.Com Pub Incorporated
ISBN: 9781589393059
Category : Self-Help
Languages : en
Pages : 108
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Book Description
The time in life when a person or their loved one confronts a serious or terminal illness is trying and stressful. Serious decisions must often be made on short notice and with a minimum of preparation. This time is often burdened by the emotional shock of impending death, and the associated grief. Many people are unprepared to face these trying circumstances and often have little understanding of the medical facts and options available to them.End-of-Life Decisions: A Practical Guide is a concise book designed to provide the relevant information that dying patients and loved ones need to deal with medical decisions and the end of life. It presents, in everyday language, the basic facts regarding end-of-life decision making, the relevant issues concerning mechanical ventilation and tube feeding, as well as discussions of hospice and palliative care, and pain control. This book omits academic discussions of philosophy and tangential anecdotes. When people are confronted with the imminent death of a loved one, they do not wish to wade through hundreds of pages of theory; they need concise facts and accurate information. That's exactly what End-of-Life Decisions provides.
Author: Chris Palmer
Publisher: Rowman & Littlefield
ISBN: 1475850522
Category : Family & Relationships
Languages : en
Pages : 339
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Book Description
Death is inevitable, dying badly is not. A good death is achievable, and this book explains how. There is an art to dying well that can be taught and learned. While death is inevitable, dying badly is not. This practical guide to achieving a good death will reduce the fear that often cloaks discussions about death and dying and give readers the knowledge and skills to achieve a peaceful and gentle death. With the multiple options available at the end of life, people can design and direct their end-of-life journey so they have as fulfilling and meaningful life as possible right up to the end and achieve the elusive good death when the time comes. Chapters focus on essential elements of living well and preparing for a good death including: Death cleaning so we don’t burden our loved ones with a big mess Talking with loved ones and doctors about our end-of-life wishes and aspirations so they know what matters to us and how we want to be treated Writing a legacy letter (an ethical will) and a memoir to let loved ones know what is deep in our hearts. Understanding caregivers, an under-appreciated group of people, usually unpaid women, who number in the millions. The benefits of palliative care, hospice care, and end-of-life doulas and the necessary vigilance to get the most out of these essential services. End-of-life options, including medical-aid-in-dying (MAID) and voluntarily stopping eating and drinking (VSED). What it’s like to die and how to help people as they die. Options for disposition of the body of a loved one (or your own body) after death, especially in an economically and ecologically responsible way Planning commemorations and celebrations of life. The nature of grief, including how to deal with it, and why it is often unbearably painful. This thoughtful and gentle guide, exploring one of the most difficult human topics, equips every reader with the information they need to overcome the anxiety and confusion that so often overwhelms end-of-life planning so they may intentionally plan for “a good death” that will provide comfort for all during one’s final act.
Author: Donald E. Gelfand, PhD
Publisher: Springer Publishing Company
ISBN: 0826126766
Category : Family & Relationships
Languages : en
Pages : 249
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Book Description
End-of-life experiences are often viewed in terms of only one perspective such as medicine. In this volume, a variety of end-of life experiences are presented and each case is analyzed from a variety of disciplinary perspectives. These range across a broad array of the helping professions, and disciplines such as information, law and the social sciences. The book provides a variety of narratives about end-of-life experiences contributed by members of the Wayne State University End-of-Life Interdisciplinary Project. Each of the narratives is then analyzed from several different disciplinary perspectives. These analyzes illustrate how specific end-of-life narratives can be viewed from different dimensions and helps students, researchers and practitioners see the important and varied meanings that end-of-life experiences have at the level of the individual, the family, and the community. The narratives include end-of-life experiences of individuals from a number of diverse backgrounds.
Author: David Feldman
Publisher: New Harbinger Publications
ISBN: 1608824985
Category : Self-Help
Languages : en
Pages : 202
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Book Description
This book address both the emotional and psychological issues associated with death and dying and the practical and medical realities typically dealt with at this time-unusual among titles in this subject area. The authors, a psychologist and medical doctor, are passionate advocates for quality end-of-life care. Author Feldman's background in positive psychology brings an emphasis on hope, inspiration, meaning, and human connection at the end of life to the book. As medical technology progresses and life expectancies edge upward, families are being faced with ever-more-complicated choices as loved ones approach their final hours. This book offers readers much-needed guidance and support for making these often difficult decisions.
Author: Barbara Karnes
Publisher:
ISBN: 9780998469188
Category :
Languages : en
Pages :
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Book Description
The End of Life Guideline Series PLUS is a compilation of Barbara Karnes' five books on the end of life. When you or someone you know is faced with having a disease that may not be treatable, life changes instantly. At such a time people enter a phase of life for which they often have no preparation. End of Life Guideline Series PLUS informs people on how to live with a life-threatening illness, what to expect when someone is dying, what to do to help, managing pain, how to address the fear of death and dying and how to grieve.??The series includes the following books.1. A Time to Live: Living with a Life Threatening Illness2. Gone From My Sight: The Dying Experience 3. The Eleventh Hour: A Caring Guideline For the Hours to Minutes Before Death 4. Pain at End of Life: What You Need to Know About End of Life Comfort and Pain Management 5. My Friend, I Care: The Grief Experience Knowledge of the dying process and its natural and normal unfolding can help create a meaningful and comforting experience as a loved one journeys from life. It is written in a simple, gentle voice. It is a short and valuable read. ?Following a death, we often have questions about the disease progression and concerned memories. The End of Life Guideline Series Plus prepares its readers for the natural, normal process of dying and grief. You can find comfort in these books on end of life even years after the death of a loved one.
