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Author: Jennifer Kromberg
Publisher: Academic Press
ISBN: 0128133171
Category : Medical
Languages : en
Pages : 362
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Book Description
Albinism in Africa: Historical, Geographic, Medical, Genetic, and Psychosocial Aspects provides the first in-depth reference for understanding and treating patients of human albinism in Africa. Leading international contributors examine the historical, geographic, psychosocial, genetic and molecular considerations of importance in effectively and sensitively managing this genetic disorder. Foundational chapters covering the historical and psychosocial aspects of albinism are supplemented by discussions of the pathobiology of the disease, as well as a thorough analysis of the genetics of skin pigmentation, eye pigmentation, hair pigmentation, and incidents of skin cancer involved in the manifestations of this disorder. New prenatal diagnostics and genetic testing methods, genetic risk assessment for individuals, families, and communities, and novel genetic markers that may be used for developing new therapeutics for treating albinism are also discussed in detail. The book provides care management approaches that may be applied to instances of albinism in other regions, along with guiding principles for treating rare genetic disorders and stigmatized patient populations across the globe. - Includes contributions from leading international contributors who examine the historical, geographic, psychosocial, genetic and molecular aspects of importance in sensitively managing albinism in Africa - Discusses recent advances in our understanding of the pathobiology of albinism, while also offering a thorough analysis of the genetics of skin pigmentation, eye pigmentation, hair pigmentation, and rates of skin cancer - Highlights new prenatal diagnostics and genetic testing methods and approaches to genetic risk assessment for individuals, families and communities
Author: Jennifer Kromberg
Publisher: Academic Press
ISBN: 0128133171
Category : Medical
Languages : en
Pages : 362
Get Book Here
Book Description
Albinism in Africa: Historical, Geographic, Medical, Genetic, and Psychosocial Aspects provides the first in-depth reference for understanding and treating patients of human albinism in Africa. Leading international contributors examine the historical, geographic, psychosocial, genetic and molecular considerations of importance in effectively and sensitively managing this genetic disorder. Foundational chapters covering the historical and psychosocial aspects of albinism are supplemented by discussions of the pathobiology of the disease, as well as a thorough analysis of the genetics of skin pigmentation, eye pigmentation, hair pigmentation, and incidents of skin cancer involved in the manifestations of this disorder. New prenatal diagnostics and genetic testing methods, genetic risk assessment for individuals, families, and communities, and novel genetic markers that may be used for developing new therapeutics for treating albinism are also discussed in detail. The book provides care management approaches that may be applied to instances of albinism in other regions, along with guiding principles for treating rare genetic disorders and stigmatized patient populations across the globe. - Includes contributions from leading international contributors who examine the historical, geographic, psychosocial, genetic and molecular aspects of importance in sensitively managing albinism in Africa - Discusses recent advances in our understanding of the pathobiology of albinism, while also offering a thorough analysis of the genetics of skin pigmentation, eye pigmentation, hair pigmentation, and rates of skin cancer - Highlights new prenatal diagnostics and genetic testing methods and approaches to genetic risk assessment for individuals, families and communities
Author: Tara Sullivan
Publisher: G.P. Putnam's Sons
ISBN: 0399161120
Category : Juvenile Nonfiction
Languages : en
Pages : 370
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Book Description
"A Tanzanian albino boy finds himself the ultimate outsider, hunted because of the color of his skin"--
Author: Shaun Grech
Publisher: Springer
ISBN: 3319424882
Category : Social Science
Languages : en
Pages : 618
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Book Description
This first-of-its kind volume spans the breadth of disability research and practice specifically focusing on the global South. Established and emerging scholars alongside advocates adopt a critical and interdisciplinary stance to probe, challenge and shift common held social understandings of disability in established discourses, epistemologies and practices, including those in prominent areas such as global health, disability studies and international development. Motivated by decolonizing approaches, contributors carefully weave the lived and embodied experiences of disabled people, families and communities through contextual, cultural, spatial, racial, economic, identity and geopolitical complexities and heterogeneities. Dispatches from Ghana, Lebanon, Sri Lanka, Cambodia, Venezuela among many others spotlight the complex uncertainties of modern geopolitics of coloniality; emergent forms of governance including neoliberal globalization, war and conflicts; the interstices of gender, race, ethnicity, space and religion; structural barriers to redistribution and realization of rights; and processes of disability representation. This handbook examines in rigorous depth, established practices and discourses in disability including those on development, rights, policies and practices, opening a space for critical debate on hegemonic and often unquestioned terrains. Highlights of the coverage include: Critical issues in conceptualizing disability across cultures, time and space The challenges of disability models, metrics and statistics Disability, poverty and livelihoods in urban and rural contexts Disability interstices with migration, race, ethnicity, ge nder and sexuality Disabilit y, religion and customary societies and practice · The UNCRPD, disability rights orientations and instrumentalitie · Redistributive systems including budgeting, cash transfer systems and programming. · Global South–North partnerships: intercultural methodologies in disability research. This much awaited handbook provides students, academics, practitioners and policymakers with an authoritative framework for critical thinking and debate about disability, while pushing theoretical and practical frontiers in unprecedented ways.
Author:
Publisher: BRILL
ISBN: 9004430016
Category : Social Science
Languages : en
Pages : 580
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Book Description
The Africa Yearbook covers major domestic political developments, the foreign policy and socio-economic trends in sub-Sahara Africa – all related to developments in one calendar year. The Yearbook contains articles on all sub-Saharan states, each of the four sub-regions (West, Central, Eastern, Southern Africa) focusing on major cross-border developments and sub-regional organizations as well as one article on continental developments and one on African-European relations. While the articles have thorough academic quality, the Yearbook is mainly oriented to the requirements of a large range of target groups: students, politicians, diplomats, administrators, journalists, teachers, practitioners in the field of development aid as well as business people.
Author: Destiny O. Birdsong
Publisher: Grand Central Publishing
ISBN: 1538721414
Category : Fiction
Languages : en
Pages : 327
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Book Description
“The magic here is not the supernatural kind, but rather an attention to the grace of the ordinary. It is the magic of watching these women come into their power.”—New York Times A GMA Buzz Pick! A Most Anticipated Book by Essence · The Millions · Atlantic Journal Constitution · Glamour · Teen Vogue · Bustle · BookPage · Nashville Scene · Ms. Magazine · Parnassus Musing A Best Book of February by Washington Post · Nylon · BookRiot In this glittering triptych novel, Suzette, Maple and Agnes, three Black women with albinism, call Shreveport, Louisiana home. At the bustling crossroads of the American South and Southwest, these three women find themselves at the crossroads of their own lives. Suzette, a pampered twenty-year‑old, has been sheltered from the outside world since a dangerous childhood encounter. Now, a budding romance with a sweet mechanic allows Suzette to seek independence, which unleashes dark reactions in those closest to her. In discovering her autonomy, Suzette is forced to decide what she is willing to sacrifice in order to make her own way in the world. Maple is reeling from the unsolved murder of her free‑spirited mother. She flees the media circus and her judgmental grandmother by shutting herself off from the world in a spare room of the motel where she works. One night, at a party, Maple connects with Chad, someone who may understand her pain more than she realizes, and she discovers that the key to her mother's death may be within her reach. Agnes is far from home, working yet another mind‑numbing job. She attracts the interest of a lonely security guard and army veteran who’s looking for a traditional life for himself and his young son. He’s convinced that she wields a certain “magic,” but Agnes soon unleashes a power within herself that will shock them both and send her on a trip to confront not only her family and her past, but also herself. This novel, told in three parts, is a searing meditation on grief, female strength, and self‑discovery set against a backdrop of complicated social and racial histories. Nobody's Magic is a testament to the power of family—the ones you're born in and the ones you choose. And in these three narratives, among the yearning and loss, each of these women may find a seed of hope for the future.
Author: Emily Urquhart
Publisher: HarperCollins
ISBN: 1443423580
Category : Biography & Autobiography
Languages : en
Pages : 268
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Book Description
Like any new mother, Emily is thrilled when her first child, a daughter, is born. The baby, Sadie, is healthy and stunningly beautiful, with snow white hair and fair skin. Even the doctors and nurses can’t help a second look at this magical child. But soon a darker current begins to emerge—something is amiss. After three months of testing, Sadie is diagnosed with albinism, a rare genetic condition. Emily, a folklore scholar and an award-winning journalist, is accustomed to understanding and processing the world through stories. With Sadie at her side, Emily researches the cultural beliefs surrounding albinism and finds a curious history of outlandish tales of magic, and of good and evil reaching back through time, along with present-day atrocities. In some parts of the world, people with albinism are stalked; their condition is seen to bring luck and health as well as danger and death. Investigating the different reactions, in different cultures, to those with albinism, Emily begins to see her child as a connection between worlds. Part memoir, part cultural critique, and part genetic travelogue, Beyond the Pale is a brave, intimate investigation into the secret histories that each of us carries in our genes and an inspiring and beautiful memoir about parenting a child with a disability—and building a better future for that child.
Author: Beth Macy
Publisher: Little, Brown
ISBN: 0316337560
Category : History
Languages : en
Pages : 496
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Book Description
The true story of two African-American brothers who were kidnapped and displayed as circus freaks, and whose mother endured a 28-year struggle to get them back. The year was 1899 and the place a sweltering tobacco farm in the Jim Crow South town of Truevine, Virginia. George and Willie Muse were two little boys born to a sharecropper family. One day a white man offered them a piece of candy, setting off events that would take them around the world and change their lives forever. Captured into the circus, the Muse brothers performed for royalty at Buckingham Palace and headlined over a dozen sold-out shows at New York's Madison Square Garden. They were global superstars in a pre-broadcast era. But the very root of their success was in the color of their skin and in the outrageous caricatures they were forced to assume: supposed cannibals, sheep-headed freaks, even "Ambassadors from Mars." Back home, their mother never accepted that they were "gone" and spent 28 years trying to get them back. Through hundreds of interviews and decades of research, Beth Macy expertly explores a central and difficult question: Where were the brothers better off? On the world stage as stars or in poverty at home? Truevine is a compelling narrative rich in historical detail and rife with implications to race relations today.
Author: Harriet Deacon
Publisher: HSRC Press
ISBN: 9780796921048
Category : Social Science
Languages : en
Pages : 122
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Book Description
At a time when alarming numbers of people with HIV/AIDS seek help under cover of darkness, deeply ashamed of their plight, it is crucial to find ways to better comprehend and address the specific nature of stigma around HIV/AIDS in southern Africa.
Author: Cora Butler-Jones
Publisher:
ISBN: 9781634187749
Category : Albinos and albinism
Languages : en
Pages : 0
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Book Description
In Tanzania, there have been accounts of albinos who have been tormented by their neighbors and friends due to superstition, the cries in the night when yet another person with albinism has been taken, the political reaction---local and international; but the arrival of an NGO Under the Same Sun determined to save them, and the amazing survival of these people with albinism has been shared around the world. Why is the climate and the people of this area so damaging to the survival of a person with albinism? What has led to such a notable level of resilience and a civil rights movement among them? This is all reviewed in this book.
Author: Cristiano Gentili
Publisher:
ISBN: 9781370948956
Category :
Languages : en
Pages :
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Book Description
2017 Award Winning B.R.A.G. Medallion Honoree and Awesome Indies Seal of Excellence for Outstanding Independent Literature.Then She Was Born is more than a novel. It's an international human rights awareness campaign supported by eleven Nobel Peace Prize laureates, the Dalai Lama and Pope Francis. Based on an inconceivable reality for many in the world today, Then She Was Born combines the drama and redemption of Khaled Hosseini's The Kite Runner with the spirituality of Paulo Coelho's The Alchemist.A child is born and the joy of her parents turns to horror. The child is different, in a way that will bring bad luck to their superstitious community. The tradition should be for her to be abandoned, but Nkamba, the grandmother, is allowed to care for her.Naming her Adimu, Nkamba raises her as her own. Adimu is constantly marginalized and shunned by the community, although her spirit remains undiminished and full of faith. But when she encounters the wealthy British mine owner Charles Fielding and his wife Sarah, it is the beginning of something which will test them all.As Charles Fielding's fortunes wane, he turns in desperation to a witch doctor whose suggestion leaves him horrified. But as events begin to spiral out of control he succumbs to the suggestions and a group of men are sent on a terrible mission. The final acts, of one man driven by greed and another by power, will have a devastating effect on many lives.Cristiano Gentili's glittering prose and vivid imagery will have you captivated from the first page.
